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Thank God for you guys!!!

Posted , 5 users are following.

bluemoon811
bluemoon811

I am so delighted to have found a site that I can follow other patients with PMR, like myself, and to be able to follow your diets and comments. I am 68 yrs old, and diagnosed with PMR just recently

in August 2013. My symptoms started overnight - so weird that I just did not know what happened. Went to bed feeling fine,and woke up that I could barely get out of bed with pain in my whole body and my legs. I thought I must have slept wrong.... but as the days went by, it continued day after

day for almost 2 weeks (taking Advil with not much help), went to see doctor. Explaining to him my symptoms, he saw that I had eczema in my elbows and asked me "how long" have I had thiscondition. I have had eczema issues since I was a child - and had NO IDEA that PMR is related to this, as you get older. He told me, "he was almost sure he knew what my condition was", ran a lot of blood work and 2 days later told me I had contracted PMR. I never heard of this illness before

(and I am in the medical field). He put me on 20 mg Prednisone and for the past 4 months have been weaned down to 10mg, (however 3 weeks ago, my symptoms returned so now I am back to 20 mg again). He says maybe we went down too quickly.

Reading your stories about stress related to PMR, let me tell you: Over a year ago, out of the blue, I started a series of "panic attacks" where I had to be put on B/P medicine and experienced some anxiety - all stress related to my job.... Now looking back, I do think definitely Stress issues in your body must wreck havoc and must have started my PMR condition.

I am so glad to have found you all - and to read your way of improving ourselves to get better. We are all in the same situation and I thank you for your suggestions. I do try to eat a lot of vegetables and fruits, oranges seem to agree with me -I take one in the mornings. Also I happen to love tomatoes, I did not know they were bad.I will go in the website and see what foods are anti-inflammatory

Thank You all so much....

1 like, 18 replies

18 Replies

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  • bluemoon811
    bluemoon811

    Posted

    Hello everyone. I was gone for a couple of weeks, (was scheduled for surgery) and was not able to readanyone's responses. I love this website and all your help. I had no idea, that the Pred gives you a better result if you take it early in the morning!!!! I am going to try it tomorrow. I thank you ALL so much!!!

    Had a hemorrhoidectomy (the most painful surgery I have had), it was a nightmare for almost 2 weeks. Between the surgical pain, and the PMR - I was a mess. My doctor checked my blood work, and the Sed Rate went up a little now. Crap!!!!! He says it probably is a reaction to the surgery, to stay in my current 20mg.

    Also have anemia, so have to take iron. Regardless I am feeling better, little by little, and I am glad I can log in again.

    Once thing Mrs O said, that is SO TRUE!!!! I have noticed any emotional reactions and stress does affect me, I did not realize that. Thank You.

  • MrsO-UK_Surrey
    MrsO-UK_Surrey

    Posted

    Welcome back bluemoon - that surgery sounds bad enough at the best of times let alone when suffering from PMR. Glad that's all behind you now (excuse the pun!), and glad to see you've still got your sense of humour too in spite of everything.

    The ESR no doubt increased due to the stress of surgery on your body so staying at 20mg is a must for now - no decreasing until the next blood test shows an improvement and that you also feel better.

    I was also anaemic at diagnosis but that resolved itself as the inflammation improved.

    All good wishes.

    MrsO

  • EileenH
    EileenH

    Posted

    Yes - not a surgery I fancy from all I've heard!

    Anaemia is often found in patients with PMR - common in autoimmune diseases generally. I hope you have nice iron tablets - some really go for your gut!

    Glad to hear you are on the mend though - and MrsO is so right to say wait until you feel rather less stressed before reducing.

    Eileen

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