Thank God,I’m back on prednisone!

Posted , 6 users are following.

After starting to flare a few mths. ago my sed rate and crp rose significantly so Dr put me back on pred. I have been telling him all along but my blood takes way to long to prove me right. Spent $$$$ on chiropractet, massage, cbd, tests and all along it's pmr. Cried a million tears yesterday because Iknow I will finally get relief. My blood finally validated what I felt all along. This had been a tough 4 yr journey. I often feel alone in it so Im glad I can vent here.

0 likes, 6 replies

6 Replies

  • Posted

    You are certainly not alone. I do hope you get some wonderful relief. Thinking of you !

  • Posted

    Hi Patti, you can vent here anytime we are all in the same boat on these PMR journey. Unfortunately some of have rough seas the across and Prednisone helps a lot. Hope the rest of your journey is smooth. Good luck with a smile. 🙂

  • Posted

    Result!!!!! No-one knows their body like the patient!

    I'd make a list of what you have paid out as a result - and show him. He won't offer to reimburse you but might get the message.

    • Posted

      This has caused for extra suffering along the way. Can't seem to get off prednisone. I am 60 and recently disgnosed with osteoporosis. My tapers have been very slow(I lost count of how many times) and it still comes back ever so slowly. Iam concerned about my future and looking for another Dr.'s advice. Tried a few other drugs and they do 0.

    • Posted

      If you have had the PMR diagnosis for 4 years and have attempted to stop the pred repeatedly it is a message to you that your body simply isn't ready to stop the pred. PMR lasts a long time - half of patients take up to 5.9 years to stop pred, the other half take longer. 40% of patients still need it after over 10 years, albeit at a low dose. It doesn't matter how slowly you reduce, that just makes it more comfortable and you identify the "right" long term dose more accurately but it won't get you to a dose that is less than the amount you need to manage the daily dose of inflammation that is created as long as the underlying disease is active.

      If you stay on the low doses, even 1 or 2 mg, for a long time and react immediately you feel any sign of symptoms returning you won't allow flares to happen, it will save you going back to higher doses repeatedly and at such low doses the impact is minimal.

  • Posted

    Makes sense to me. I am looking for a new Dr. My flares take awhile to calm down because I have to wait so long to get back on pred. I've always followed Dr.'s orders but this doesn't make sense.

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