Thank you Mrs.K and Administrators
Posted , 9 users are following.
What a relief! Couldn't get here for the last two and a bit days and felt quite bereft. Did this happen to everyone or did it depend on individual set-ups, I wonder?
Anyway, hallo again and best wishes to all for a good week ( or, preferably, year ) :D :ta:
0 likes, 30 replies
Lizzie_Ellen
Posted
Lizzie Ellen
mollycoo
Posted
Good to be back,
Molly.
Mrs_G
Posted
Tried the main Patienbt UK and couldnt get on there so realised it was a big problem Welcome back everyone missed you all !!
Best wishes Mrs G
EileenH
Posted
As for week, year - how about decade? Is this the start of the new one or was that last year?????? Questions, questions!
But - can we have some sun please? Pretty please!
Eileen
Green_Granny
Posted
Makes me realise how much I look forward to catching up with everybody :D
Pam
BettyE
Posted
Going over to the leg pain thread now.
MrsO-UK_Surrey
Posted
Not excited to be told by the Dr that my 4 week old swollen glands could take another month to return to normal but he said the good news was that it was on both sides - apparently had it been one sided it would have led to worries that something nasty was lurking. He has made an appointment to see me again in 3 weeks. His parting shot was that he would then check my blood pressure - like Betty, a sore point with me as I don't want to add more tablets into the equation either! The worst part is that there's swelling on the glands under my tongue as well so everything I eat has to be swimming in gravy as I'm not making enough saliva to break down the food in my mouth. Also hubby's new nickname of gerbil for me is now wearing a bit thin! :lol:
Really now trying to cheer myself up here as just had to break off for a 'phone call - very sad news that a friend died this morning (only 65), and yesterday my cousin died at the age of 68. I'm not enjoying this year so far.
At least I'm glad I'm back with all my PMR/GCA friends on here and I'm grateful for that - thank you moderators.
MrsO
Guest
Posted
Preds.So far, only mild, not too bothersome pains. Gone on the bus to the City, done some shopping. Now back home, and checked the site !. So Happy now !. Wednesday I am going to see the doctor and asking for an ESR ? and, as I am having slight pains in the head, sh :D ould I ask to check me for GCA ? I seem to worry about getting it ? And should I also ask for CRP ? While I am there ? I will go now and make some beef burgers.....and later on come and check if I have some answers...THANK YOU TO THOSE whom give us the use of this site. Saves me having the terrible depressions that I would have if I was having to cope with PMR alone ! THANK YOU !. And thank you all for your help to me ! Granny Moss. :D
Guest
Posted
I haven't posted for a while. I am 76 yrs old. Started on 20 mg prednisone Feb. 2010 with my 2nd bout of pmr. I am now down to 6 mg/day and feeling better than I have in a while. Have yo yo'd a bit from Aug. to Nov. going from 7 back up to 12 because of some good and not so good stress. This seemed to help and have been reducing at 1 mg every 2 weeks or so since then.
As I was a few months changing doctors (my previous one moved away), I was pretty much on my own and went by how I was feeling. Taking more tests, eg. bone density, xrays, etc. before really getting started with the new doctor. He seemed to be aware of pmr and signed for refills of pred.
One bit of really good news, I think, is that a recent lab test showed ESR as 10. Two years ago it was 90 and 4 months ago it was 30. I don't know if CRP was tested. The 2nd page of the lab report didn't print out the day I was there.
Good wishes to all of you for 2011, hope it is a more comfortable one than last year.
Winnipeg, Canada
EileenH
Posted
The sort of pain you should look for to do with GCA is around your temples and in your jaw when chewing. And also any blurring of vision, especially when you wake up, even after a doze, or anything like a curtain across what you are looking at, even if it disappears again.
You amaze me! Now me: when I couldn't get onto the site I first assumed the whole of Italy was playing on the internet so the download was slow and then, when every other site was fine, assumed this had problems not me! I couldn't check the settings if I wanted to - and I wouldn't waste money on Microsoft helplines! The frustrating bit was not knowing how to contact the site's administrators! Wonderful woman MrsK! :lol:
EileenH
BettyE
Posted
We read so often that PMR symptoms are pain in the large muscles of hip shoulders and thigh and sometimes neck. Reading on here it seems to me that the pain can be anywhere. Eileen complains of foot pain, I know and I have had it sometimes. Sometimes my hands hurt and last time around it was my arms which this time have been totally free of pain and it's mostly in my legs. I've said before that it would be a good idea for some of the profession to read this site before pontificating.
Did anyone else see the doctor joke in the S. Times or Observer?
A doctor died and went to the pearly gates in his scrubs and walked to the front of the queue saying he should be given priority as he was a doctor who had a degree and had cared for sick people etc.He was told to take his place in the queue. While he was waiting another doc arrived in scrubs and was not challenged when HE went through the gates into heaven. First Doc asked ST.Peter why second doc got prefferential treatment. \"Oh\", said ST P. \"that's God. He thinks he's a doctor.\"
RickF
Posted
For future reference (like Wpg shared), if you can't get to this site – or any other site for that matter – try going to 'Google dot com' (had to leave out the real dot or this won't show up for awhile :roll: ) and search for part of the web address or URL. For instance, I searched for 'experience (dot) patient' and every link I tried didn't respond. That's what made me think the server was down.
Hope everyone stays warm and starts feeling better. :wink:
mrs_k
Posted
Thought you should all see it.
Thank you for your message.
Yes the website was down at the weekend for some reason and this is being looked into, however, it should be up and running now! Thanks
MrsO-UK_Surrey
Posted
Thank you for that useful advice - really helpful when one's short on technical know-how. I did eventually try accessing the site through another link (PMR-GCA North East Support Group) and when I found I couldn't get in that way either I realised something was really wrong - we are so lucky that our Mrs K knew how to contact the right people.
Hope you're doing well.
MrsO
sparklin
Posted