Posted , 16 users are following.
Thanks to all for sharing the wealth of information.
Does anyone know what causes PMR?
Thanks!
0 likes, 18 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
lodgerUK_NE valdez
Posted
Visit pmr gca northeast website and fill in the International Survey.
dollyR valdez
Posted
My understanding is that it is an autoimmune disorder. Doesn't seem to be well known. I was just sent to a new rheumatologist because mine had relocated, and she decided that I had scoliosis, even though I have a background over the years of PMR diagnosed by several doctors. She also neglected to do the sed test etc. so I am still looking for a new one in my area.
ron25099 valdez
Posted
I tell people that they don't know thw cause of PMR except that it generally happens to older people--so [u]stay away from that![/u]
lodgerUK_NE ron25099
Posted
Untrue, unless you class people 50 and over as 'older people'. I might be a silver surfer but at 69 I did not class myself as 'Old'.
I might be 78 now, but in my head 21, my body well 78 'wear and tear!!
And I Chair a Charity.
I also know people aged in there 20's, 30's and 40's. Not a lot but some.
tpaggs lodgerUK_NE
Posted
According to what I have read, PMR "usually" strikes people over 60; I was 67 when in blindsided me. Type A personality; that's me; a perfectionist, active working woman who has many younger (and older) friends, loves to sing and dance; play with my grandkids. Needles to say, this PMR devastated me 2 + years ago. Down to 1 3/4 mg/day of Medrol. I refuse to let it lick me. My faith and determination keep me positive.
maid_mariane valdez
Posted
As someone said there is no known cause however many of us feel it is brought on by stress and or with a combination of illness.
Personally i swear mine was brought on by stress. I also noticed many of us were very active and A type personalities which is interesting.
erika59785 maid_mariane
Posted
susan29426 maid_mariane
Posted
Me too. Major stress, working 10-12 hours a day, 6 days a week. Seems to be a common "thread" here. In my case, I think stress and inflammation combined to bring this on. I had an inflammed hip that amazed my doctor, also excess belly fat which seems to exacerbate inflammation. And a diet otherwise fairly healthy but high in sugar. The PMR showed up a few months before I had the hip joint replaced. The surgeon who worked on my colon a year later (thank you, prednisone!) called in a gynecologist because my lady parts were so inflammed he thought I might have cancer. (So far, not!)
maid_mariane susan29426
Posted
It seems so common we A types
I ended up leaving work and no thanks for all those extra hours. I use to get hell for not taking my lunches and breaks and now that I'm sick not a peep.
I've always said very few employers really care once your gone. I get emails from my clients not my employer.
To tell you the truth i don't miss work.
susan29426 maid_mariane
Posted
maid_mariane susan29426
Posted
In one of my past lives (career) i too owned a restaurant and i don't know how you do it. I can't rely on me daily and when i do things daily for several days rhis is when i crash hard.
Take it easy
mark9992 valdez
Posted
Nobody knows, but it is often triggered by stress. In my case I went into the hospital thinking I was going to die. I had afib, and bounced back quickly from the attack, but...guess what, PMR showed up. I didn't know it was that at the time, in fact it took me months to figure out, but that is how it happened for me. And of course the obvious, it happens to older people (I'm 62) so it appears to be a reminder from God to start paying attention to your bucket list.
mark
pauline36422 valdez
Posted
tpaggs valdez
Posted
They don't know the cause, and there is no cure. They only know how to treat the symptoms. Most of us, here, with PMR were blindsided by this autoimmune disease. I know I was. It came upon me at first with horrible aching of my legs; as though I had just run a Marathon. At first, I blamed it on the fact that I'm sitting for too long at my job, and I began walking up and down the hallway several times a day. Eventually, all the other symptoms started and I got to the point where my energy was totally zapped which prompted me to go to Urgent Care. The rest is history. Over 2 years now and counting down on
valdez
Posted
Thank you all for your input. I can see the similarities ... that we are overachievers, driven by stress, excess work, and our bodies finally protested from being overtaxed for too long. My first episode was when I was 57; fortunately in remission until this past summer and I'm now 66. The wealth of info from this group is so helpful in learning how to deal with this. Again, my sincere thanks.