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The Game of Steroids

Posted , 6 users are following.

davidmelville
davidmelville

Don't misunderstand my title . . . it's no joke. It's life-changing, challenging and one big, often misunderstood battle.

My story is recorded in various posts over the last couple of years. Yes, I'm two and a half years in. Started at 30mg and worked down to 7.5mg. 

I saw the 'Rhummy' a few weeks ago and my blood test showed 3 (whatever's) so it is pronounced that the Polymyalgia rheumatica [PMR] has probably gone and I'm signed off and returned to my GP. I'm also told I seem to know what am doing with managing the Prednisolone and unless I go over 10mg the 'Rhummy' was happy to leave me to my own devices.

But having had to increase to 10mg in the lead up to a very traumatic Chrustmas and onslaught of personal pressure I got down again to 8.5mg. But the old symptoms are returning, so worked on the principle that it was most likely steroid withdrawal I perseved, covering myself with pain killers. But now some 14 days on thise symptoms still stay and I want to go back to 10mg and get some 'peace'. But if I do I know I have to come down again.

The ' Rhummy' has said he is not bothered if I stay on 10 (I assume forever!) but that's not the best answer unless he knows something I dont.

i suppose my question is "Do people stay on 10mg for really long periods"?

Thanks everyone for being so great!

2 likes, 20 replies

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  • carol16456
    carol16456 davidmelville

    Posted

    Thanks David you have made me smile .Only been on this journey three month although have probably had PMR undiagnosed for years ,will stick with 12.5 for a few more days and make a decision then .Hope those milk maids come dancing your way soon Carol
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