The Great Pleurisy Conspiracy

Hi hope u are feeling a bit better. I have had plurisy twice last year in January and in. September with the September one I was in hospital for 2 weeks getting all the tests they could do even put a camera down my nose into my lungs to see wat the pain was coming from when I was coming round from the procedure I nearly died with having a reaction to the drug they gave me.

Anyway I have had a constant pain in my left side for over a year and had to go and see a pain specialist that has found I had nerve damage in my back from getting plurisy twice.

Now I am on 8 tramadol a day and 150mg of another table, I feel like a zombie most days and I am only 30 years old with 2 young kids and now my husband is my carer instead of my husband I can't get out much I have to use a walking stick and have to quit work.

This is not a good time for me just now I just want to be better.

Thank you. Sometimes it's nice just to know you're not alone in this misery.

I'm not better. I'm so sick of this pain. It's daily, I can sometimes get it to a level 3, but then I'll have a day like today, pain so bad I couldn't sleep last night. I have three kids. It hurts so bad. I just want relief.

I'm not in a good place either. Hugs hun, and prayers for relief

My son is now 43 but had pleurisy 3 years ago. It came on quickly while he was at his first day at a new job.  He suddenly came down with incredible pain and inability to breath. I took him to the ER and he was diagnosed with pneumonia and admitted.  The next day his breathing and pain got worse and he was taken to ICU where he was intabated and taken to the operating room where he had a chest tube put in and kept in a medical coma. Just as you, he had all the tests, xrays, CAT scans after which he was finally diagnosed with empyema which is pleurisy in it's worse condition.  Pneumonia in his lungs and the empyema on the outside which kept his lungs from taking in air and expelling it.They were for all intents and purposes "frozen" He was in intensive care for 2 weeks.

 

He too still experiences the constant pain for which he takes  medication making it tolerable but after seeing several drs and therapists has been told that like you, he will most likely always endure this pain and takes this medication daily.

He has since developed ashma and has had a reoccurance of pneumonia and/or pleurisy a few times which has weakened his lungs and makes him suseptible to resperatory problems.

I understand your depression  and the pain you have and wish I could give you a more positive reply.  I know what my son lives with and can only imagine what you're feeling. This is why I visit this site hoping to find help for him.

That so good he could keep his job, doing something you love helps. Even doing anything that's not physically demanding is distracting, and helps a bit.

I definitely blame the doctors- this past summer I had a good week and went through my garage. I found the original paperwork the hospital sent me home with, and sent my pcp, when I was first admitted With this. It says that my doc needed to start me on antibiotics and antivirals immediately,, otherwise the condition could become permanent! I remember asking my doc for it, too, but she refused- stating it had not shown to clear pleurisy! But the hospital doctors said it did! Anyway, I was too bad off to argue at that point.

There are some things I'm not allowed to say on this website. The mods delete. Which I don't understand because aren't we here to support and help one another? So I'm in the process of creating a website for this condition. I want to share with people what works, and what NOT to waste your money on. I've literally wasted my savings.

I hope doctors will read my site, too, because of the 21 I've seen over the last two years, none of them knew much about pleurisy or cared to become knowledgeable.

Please it'll be public in about two weeks. Please check back here for info. I want to help those of us who suffer from this horrid condition.