THE JURY IS STILL OUT

Posted , 16 users are following.

My name is Vern and my initial dilemma was a choice between the HoLEP method of BPH treatment and REZUM. The doctor that would have performed the HoLEP moved from one medical facility to the Mayo Clinic and unfortunately, the Mayo Clinic would not accept Medicare. I suppose I could have searched for another doctor that performed the HoLEP treatment but I was in a hurry to get some relief, plus, the REZUM treatment seemed less invasive and tissue traumatic. Therefore, I went with the REZUM.

I had the REZUM performed on 10/15/2019. Contrary to the advertisements, the procedure itself was not exactly a walk in the park. Besides being very uncomfortable (to be expected) the pain of the needle and injection of water vapor into the prostate through the urethra was quite painful. I did not enjoy it at all and afterward thought I would not choose to go through that again. I honestly think that the level of pain one experiences from the procedure justifies at least a twilight sleep, if not general anesthesia. The procedure lasts only about five to ten minutes so putting someone under for that period of time would not be that harmful, in my opinion. After the procedure, my urologist put a catheter in place. I was instructed to remove it the third day post surgery and revisit the urology office for a flow test.

On the third day post surgery, I removed the catheter at home and drove to the urologist who was about an hour and a half away. On the way, I developed an urge to urinate that was so strong that I pulled off to the side of the road but could not urinate even a drop. I got back in my car and continued my journey to the urologist. I felt like I was going to explode. I was torn between getting off the road again but the thought of loosing more time and not being able to urinate anyway kept me moving forward. When I arrived at the office of my urologist, I skipped the check in procedure and walked into the back room without being called. They took me right in but unfortunately, the doctor was in surgery and I had to wait in what turned from significant urgency to significant pelvic pain. Luckily, the doctor was not too far away and he eventually arrived to reinsert the catheter. What a relief. For that reason, I would not advise anyone to remove the catheter themselves after RESUM, unless you are very close to the office of your urologist and very close to your appointment time.

My doctor said the lack of ability to urinate was normal and that I should not be worried or lose patience. We set yet another appointment for a flow test in another four days but this time, I waited to remove the catheter until I was at the office of the urologist. I wasn't about to go through the discomfort I went through the last time I removed it myself at home. It was now a full week post REZUM surgery and I was again at the office of my urologist. I removed the catheter in the waiting room lavatory and waited for my appointment time, which was in about an hour. During that wait, I drank a sixteen ounce of bottled water and by the time I was called in, I was in distress again because I could still not expel urine from my bladder. Once again, my urologist inserted a catheter and once again I left the office disappointed that I could not urinate on my own.

This time, I made another appointment a week out, which will be exactly two weeks from the date of my REZUM surgery. I am crossing my fingers that I will be able to urinate on my own by then. My urologist is hopeful and encouraging that this will be the case. He continues to say that my inability to urinate on my own, at this point, is normal. That's not what all the REZUM advertisements said.

Having a catheter is quite uncomfortable to say the least. I experience a constant urge to urinate and I have bladder spasms that are very painful, lasting anywhere from 30 to 45 seconds. When the spasms occur, urine pushes past the catheter and out the penis so I have to hold a paper towel over the tip to catch the urine, unless I happen to be at a toilet when the spasms happen. Additionally, urethral itching ensues, after the spasms and lasts for sometimes hours afterward. A heat pack gives me some relief. In the mean time, more spasms and continued itching can occur. I asked my urologist about self catheterization but my urologist did not want me to do that at this juncture. It would have made it so much easier than having a catheter in place but what's a little bit more inconvenience and discomfort, right?

I will be returning to have the catheter removed in another week (two weeks post REZUM treatment). After that, I will report on whether or not I can urinate on my own, two weeks post treatment. Until then I will suck up the discomfort, pain and inconvenience of the constant urge to urinate, the urethral itching, the bladder spasms and the leaking past the catheter. I will keep you posted on the long term outcome but for now I can say that I probably should have found someone who could do the HoLEP and left the REZUM treatment to the guinea pigs. The saving grace is that the REZUM treatment is so benign that it still allows for other treatments like TURP and HoLEP to be performed. Therefore I am hopeful that one day, I will be able to urinate on my own again.

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  • Posted

    Steve: Will definitely report back. Was wondering how you ended up with bladder damage? Curious to know if it was caused by catheter, REZUM, etc.?

  • Posted

    Hi Vernon, Wow your story is very interesting.How old are you? Were you in complete urine retention?I sure hope the rezum works for you.

    frank,

  • Posted

    Hi Frank:

    I'm 69. My stream was getting very weak but no, not in complete retention.

    I could see what was coming so it was a preemptive move. I too hope it helps.

    I'm feeling confident that there will be an improvement. Thanks for the well

    wishes.

    Vern

  • Posted

    A couple of things come to mind:

    1. Sorry for the pain you experienced. I agree with you that it approaches a scandal that sedation if not anaesthesia is not offered for the procedure;
    2. When it comes to procedures, I always follow the doctor. If I think he's good and he changes places of employment, then he is still good and if he still takes my insurance, then I'd stick with him; and most importantly
    3. You opted for a procedure that can be followed with other procedures. Wise choice.
  • Posted

    Thanks for that input.

    Vern

  • Posted

    Vernon, I had my Rezum on 10/14/19 so we are in this together. I had the exact same thing happen: 3 days post procedure they removed the Foley and that night ended up at the ER. During that day I was able to dribble out pee, but became totally blocked that night. Back to the Foley for another 5 days and after it was pulled, same problem. This time my doctor let me self-cath... this was a better solution and I highly advise telling your doctor that other urologists are letting their patients do this.

    I also am pretty upset with the Rezum website for advertising a "2 weeks until you see improvement" nonsense. I was left pretty upset and thinking something went wrong until I found this forum. Given the majority of the people here say 4-6 weeks is when you really start to heal, I started feeling much better with all the information and support I got here...

    On Monday my doc put me on 200mg celebrex to control the inflammation and my stream got a bit better on Tuesday. I peed naturally all day, albeit weak and bloody stream...

    Hang in there and lets keep each other updated.

    My stats: 50 YO, 35ml size prostate, "pretty blocked" according to cystoscope, no LUTS score (but had urgency pre-procedure as well as waking up 2-3 times a night)

  • Posted

    Kevin881: Yes, it seems we are on the same track healing wise. You had Rezum only one day prior to me. I had it done in Flagstaff, Arizona. While I like the doctor that did it, he wasn't particularly explanatory about the recovery time until after I experienced retention after Foley removal. Then he explained that it was normal. I too was miffed at the advertisements and thought something was wrong until I found this group. Actually my wife found it for me after seeing my disappointment at the immediate results. After two weeks on the Foley, I removed it and found I could pee for at least eight seconds. I knew though that I was not completely emptying my bladder so I would sit or lay down for five or ten minutes and got up to go again and "viola" more came out. I do this at night now until I feel my bladder is sufficiently emptied as the night is when I always had my worst symptoms prior to and post procedure. The blood spotting is still occurring which I hear is also normal and can last 10 weeks or more post surgery. I am glad though that I have not yet had to self cath, although there were several times I was tempted to do so. The stream is quite weak now and I would say even weaker than before the procedure so there is still swelling that needs to heal. I don't expect as much as I did before the procedure since I found this blog so I'm just biding my time with lower expectation of a quick recovery and hoping for the best in three months, which I hear seems to be the maximum time for recovery. Good luck Kevin. Keep in touch.

    Vern

  • Posted

    FWIW, the biggest mistake I made post procedure was not self cathing as I was improving. There is an emotional thing (at least for me there was) about getting off the cath, but I wish I had peed as much as I could then cathed out the rest as I was recovering. I never felt empty and was going every 45 minutes. In the long run it won't matter, but my suggestion is use the catheter to finish emptying until you can do it on your own. Based on my recovery, you should be out of the woods in 2-3 weeks. And for me the blood stopped (almost on a dime) at about week 5.

    • Posted

      oldbuzzard: Thanks for the tip. I have heard that some still pee blood up to 10 weeks so it is obvious that everybody is different. The REZUM videos on the internet really don't tell it like it is and that bugs me but hey, they want to sell their procedure right. What I like best about REZUM is that you can do it again or any of the other precedures like TURP, HoLEP, TULSA Pro, etc.

      Vern

    • Posted

      Vernon,

      .

      Just to 2nd what oldbuzzard is saying. While you start to open up from the Rezum, make sure that you are still self-cathing to completely empty. For me that went from 4 times a day to 1 time a day. You don't want to stretch your bladder out by retaining over 400 ml. Also, I tried to pee often to work my bladder muscles.

      .

      Steve

    • Posted

      steven05114: I do not feel like my bladder still contains urine after I urinate during the day but it does feel that way when I wake up in the middle of the night. I sometimes have to lay back down for five minutes or so and then get back up to empty the rest. After I do that, I can push on my groin and I do not feel any urine retention. Therefore, I have not been self catheterizing. I wanted to save the catheters for a time when and if I could not urinate at all. I don't feel the urge to go after I urinate two or three times within fifteen minutes. Therefore, I did not self-cath. Did you find it easy to self-cath? I have been a bit apprehensive about doing it, concerned about causing damage due to improper insertion.

    • Posted

      Vernon,

      .

      I was in complete retention for 10 months, so I had no choice but to self-cath. I never found it to be a problem. I used the reusable soft red latex ones size 14 with a curved tip, soaking them in alcohol before and after each use. After my Rezum, 2 times when I was swelling, I used a stiffer catheter to get passed the prostate.

      .

      You may want to try supra-pubic tapping after you pee to try to get more out. Tap over your bladder with 3 or 4 fingers to stimulate the bladder. Do this for a minute or two. I came across this by accident when searching on the Credé maneuver. This works very well for me. This is good for overnight and 1st thing in the morning.

      .

      Steve

  • Posted

    well Vernon, we are truly in the same boat today. Overnight I was unable to use my at home catheters. I kept on hitting something and the catheter would not advance. I was able to make it through the night just kind of going on my own every 30 minutes, but I got almost no sleep.

    Went to the doctor today and he did a cystoscope. turns out I have a “false passage," Which is essentially a hole that I made in my prostate because it’s swelled up and soft, by catheterizing and putting a little divot into it. The catheter finds its way into the divot and not up to my bladder.

    Doctor said we need to let that heal, and there’s no way I’m going to be able to self catheterize for the next week while it’s healing. Back to a Foley for a full week.

    • Posted

      Kevin,

      I had the same thing happen. Could not insert the catheter all the way. Fortunately by then I could urinate adequately, so I stayed out of the emergency room. An interesting twist was that if I woke up in the middle of the night with a really full bladder and had severe urgency then the catheter would go in. This lasted 3 or 4 weeks and then resolved. I haven't had to use a catheter in a couple of weeks but last time I did it worked just fine. Thanks for the comment; I didn't realize this had happened to others.

      Fred

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