1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

The pain

Posted , 8 users are following.

tiggers1
tiggers1

Good evening everyone hope your all have a lovely weekend so far well today has got to be the worse day with this fibro I haven't slept all night due to 5he pain my legs . Earlyer u went shopping with my husband but found I was struggling to walk the pain is unbraeble all I won't to do is a cry 😢 I've not experience anything like this the pain has now traveled to my arms and the use of my hole body is awful atm all I won't to do is scream and cry I'm not sure the pain killers are going to help tonight . Wishing you all a wonderful weekend xx

2 likes, 13 replies

13 Replies

  • debbie_1966
    debbie_1966 tiggers1

    Posted

    Sorry to hear that tiggers it is horrible when you feel like that & there is nothing you can do about it x I was like that last week n n just wanted to scream was using heat bags painkillers n gel nothing was helping .x

    Hope your get some ease from the pain soon gentle hugs x

    • tiggers1
      tiggers1 debbie_1966

      Posted

      Hi Debbie I know how you feel it's driving me insane I've been like it for over a week now and wish I could remove my legs . I just don't know what's going to help all I wish is that I get some sleep tonight . I wish you.warm hugs x
  • ann46903
    ann46903 tiggers1

    Posted

    I know how you feel. I think my husband must be sick of hearing me say. 'im in pain'  but I am, all over. I only average 2-3 hours sleep a night, but take Dosulepin most night just to get a few more hours, they are a great help. I'm at a point in my life now where everything is good, no money worries, lovely house etc, its taken me 57 years to get to this stage and now when I should be enjoying life, Im always in pain, feel bad inside, my body hurts, teeth problems etc. Its all come from the past. People dont understand that, they only see the 'now'. What have YOU got to feel down about. No matter what you have if your ill. 
    • tiggers1
      tiggers1 ann46903

      Posted

      Hi Ann thanks for your reply I feel for you at the stage you are in life you should be enjoying things but sadly this fibro takes over when you least expect it and when it does it hits you like a ton of bricks I've been like this for aver a wk now but today has been the wo4se so far . I just wish I could take my legs of there driving me mad . Well warm hugs to you xx
    • bronwyn97278
      bronwyn97278 tiggers1

      Posted

      Morning tiggers;  hi sounds like the change of season is? affecting you, too?  Can I ask what meds/treatments that you take/use for your pain?...as am wondering if you have started taking Magnesium for your muscle/leg pain?It does take a while to take affect (I've probably been taking them for about 3 months now), but do feel that they are making a difference......the other thing that I use at night is the use of Tubi-grip/TED stockings to help the pain/spasms of leg muscles......you can also put Tubi-grip onto your arms to help with "the dead weight feeling".......it is made to aid circulation, and although we ?don't suffer from circulation problems, it does Really help with this issue of the Pain and Dead-weight.......you can buy both from your local phamacy...........is this the type of "pain" that you are complaining of? or is it the "burning under the skin" that is also another issue?   for this I find the taking of Amitriptylline and Magnesium tabs are Very helpful..................hoping this gives you something to help???? if not get back and I'll try some other tips.............Bron
    • tiggers1
      tiggers1 bronwyn97278

      Posted

      Hi I'm on tramadol at the moment and naproxen but there not doing anything to help the pain . Funny u saying about circulation feeling that exactly how I can explain my pain it like the circulation had stope in my legs and arm I've found walking today a real struggle and have been in tears . All I'd like is to be pain free but been like this for over a week now . Sending u warm hugs
    • bronwyn97278
      bronwyn97278 tiggers1

      Posted

      Me again tiggers; i feel that you need to get your GP to refer you to a Rhuematologist for the two (2) medications that you are taking are No-Where near enough for Fibro Pain.......I first trialled Tramadol years ago, and they Did Nothing for me....and as for Naproxen, this an Over the Counter drug (an anti-inflammatory that is only supposed to be used for about 3 weeks max, and if pain not settling, then you need to be reviewed and  something stronger is needed).......There are many meds/treatments available for Fibro, and you need to get a review from a Rhuematologist ASAP (even try going/paying privately for first consultation....that way you will be seen earlier).....you ?May find the drugs such as Lyrica and Cymbalta helpful; but many of us who have severe pain, do not.   For me I take Amitriptylline and Neurontin, with some other strong pain killers when pain is very bad (but I also have OA, which requires drugs for this, so the same strong pain-killers are for this, too).....always read the "Side Effects" of all drugs before taking them, as you may have allergies to some that I do not, so may work/not work for you, but your Rhuemy will help you.....also remember, that you Need to give yourself time for these new drugs/meds to build-up in your body's system, before deciding if they are helping you/not....(usually withing a few weeks you will know).....Other treatments that we all agree on are the use of Physio/Massages to Relax our muscles.....taking Magnesium tabs daily (as recommended on bottle) are Very good for your leg/arm/muscle pains..........so, please do yourself a favour, and get to your GP and "Insist" on a Referral to a Rhuematologist..(and especially one who Really understands/knows Fibro)...........good luck, and let us know how you get on.............Bron
  • Meg53
    Meg53 tiggers1

    Posted

    Hi Tiggers, yes it is so awful when you are in that much pain. I find ordinary pain killers just don't touch it, all you want to do is lie down and zone out. Are you on any other medication for the condition, in some people there are approved drugs, for fibro, which can help somewhat to take the edge out of the pain and help you sleep. Can you talk to your GP about trying some of them? Any thing is better than being in so much pain!!! Hope you make it through the weekend, gentle hugs Meg
    • tiggers1
      tiggers1 Meg53

      Posted

      Evening meg I am on tramadol and naproxen but I'm finding theses are not even touching the pain I just wish they'd make me sleepy so I could at least get some sleep but they don't affect me in that way . I think my body is get used to the meds and there nor working for me . Gentle hugs to you too xx
    • Meg53
      Meg53 tiggers1

      Posted

      No some drugs have a contradictory effect on me and instead of making me drowsy they give me insomnia, you may be the same. Have you been diagnosed with Fibro? Even if you have not, maybe suggest your doctor trial the approved fibro treatment medicines like; Lyrica, cymbalta, Savella or Neurotin. Drugs are scary and I tried every else first, magnesium pills ( which I still take, as I think they are essential). Meditation, gentle exercise, diet etc etc. all play their own role but in my case a low dose of Lyrica was the only way I could get some sleep. Please remember though in the immortal words of Monty Python 'we are all individuals'. Gentle hugs Meg.
    • kaz_40
      kaz_40 Meg53

      Posted

      morning meg how are you hun hope your having a good weekend and not too much pain. I slept a bit better last night hope you slept well too. enjpy the rest of the weekend take care gentle hugs xx
  • kaz_40
    kaz_40 tiggers1

    Posted

    Hi tiggers1 I feel for you hun Im never free from pain in legs and back The only thing I find thats helps give me a bit of  relief is hot water bottles. I use them alot and also wheat bags.try a warm bath and see if that helps. hope you manage some sleep gentle hugs
  • konnie48710
    konnie48710 tiggers1

    Posted

    I notice everyone offering you the names of fibromyalgia medications, and please do try them!  I did and found they work wonders for the pain.  Unfortunately they had side effects that I couldn't handle, so I can't take them and had to find alternatives.  Acupuncture and chiropractic medicine work the best for me and my pain, but you have to find knowledgable practitioners, and now that I've moved to Poland from the States I'm still searching for new ones.

    The doctors I've seen here have me on a wonderful anti inflammatory though called Olfen Uno.  I take the maximum dosage of 500 mg per day.  It is similar to Celebrex, and I have to say that I do notice if I have missed a dose.  I also take a lot of B vitamins and magnesium.

    I know exercise is the worst, and no one wants to even think about it never mind do it, but I used to have access to a gym with a pool and water aerobic excercises for the elderly and infirm.  What a blessing that was!  It helped my mobility and decreased my pains (especially the Jacuzzi afterward).  I'm still looking to duplicate that experience as well since walking for exercise only causes more pain than it helps for me.  I hurt myself doing dance and yoga, but the pool worked.

    Good luck in finding what works for you too.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.