The pain has got too much should I take myself to a and e?

Miss Laura, I'v suffered since Feb 8, 2011, finally pain and shock free. My neurologist gave me oxcarbazepine, it helped for 6 yrs and was taken off due to liver enzymes off charts, last Dec. I was desperate, shocks were constant, I went to health food store and got charlotts webb cbd oil, didn't tell anyone., it started helping and by Xmas I was much better, I put 3/4 dropper of cbd under tongue, do not swallow for 10 minutes . I take am and pm, I very seldom have a shock or pain, it has been a miracle for me. Good luck and God Bless, I have my life back.

hello laura. i presented to a and e when i had my first bad attack 3 years ago. sadly tn isnt that well understood in a casualty situation. you must hold out for the neuro appointment. i luckily found the carbamazapine effective but it took 2 weeksand some increase in the dosage until i found the right level. i phoned the neuro surgeons secretary regulaly to ask for any any cancelled appointments and said i would attend at short notice.

but what helped me the most was a mindfulness practise. a lot of the pain in tn is caused by reacting to the pain. this causes more stimulus to the nerve and on and on it goes in a vicious circle. the more still you can be when that zap hits, the less stimulus from you moves the nerve. but its not easy . it almost feels like giving in. its as if your opening yourself to what is ( this nightmare pain) ive written about it on other posts . i had an mvd in july and was pain free the following day. when you get to see the neurologist take someone with you so you get your story over accurately and can have a back up to what was said. google john kabat zinn. mindfulness and pain on utube. itll give you a flavour of sincere mindfulness. take care. peter hobson.

I have been on carbamazapine (after several others) and it helped keep the pain under control. However, I recently visited an osteopath for a problem with my shoulder and when taking my history, he said he felt he could help with the TN. So, anything to take less meds, I gave it a go. He uses a method called 'intra-oral inhibition of the lateral pterigoid muscle'. All I can say is that I reduced my medication over a few weeks and have not been taking any for a month or so - and all I experience is occasional twinges a couple of times a day. I can live with that. Worth a try.

Hi! I can relate to your pain i have been dealing with Trigeminal Neuralgia for 4years now off and on and right now im on my sixth month dealing with the pain with this episode im on Carbamazepine and baclofen together not helping much tho and i use liquid lidocane when needed i went once to ER pain was horrible felt like dragging myself on the floor my husband took me and they sent me home with Vicodin so it could just put me to sleep i was told i should of never been at ER since pain medication doesn't help so i have tried CBD oil and it just makes me sleepy but many people get different results from it hopefully they can get u in to see Neurologist sooner .Hope you feel better soon

I hope you are feeling better . I have had TN for 5 years now i am not a candidate for surgery as my neurologist told me so i have used CBD oil in tea to help me sleep at night i have 3 kids and a loving husband.But my episodes lasts up to 8 months and come back stronger i also use liquid lidocaine to numb my mouth for a bit the pain under my tongue makes it worse i feel relief at least a few minutes . I use tregatol and after a while my body doesn't respond to it the same so my neurologist added baclofen to use along with the tregatol and it helped abit more to get the relief. Hopefully by now you have found something to help you out .

After much research I stared to use a Tens unit on my left cheek where the pain is and the other electrode on the base of the neck on the trigiminal nerve. It helped put my TN into remission. There is a tens unit for TN called pain shield sold on the internet.