Posted , 6 users are following.
My Massive saddle PE was found on the first of April and I was given IV thrombolytics, which I was told saved my life, I was in hospital for 10 days and was put on Rivaroxaban and my pain medication started at a low doge of 30mg of Zomorph (slow release) twice a day, morning and night and a break through pain relief of Oramorph. 600ml per month, 5-10ml ever four hours or as needed.
Sorry I will try to keep this short,
Last Sunday we had visitors and to be honest I hadn't realised that talking for a long time would have any effect on me but within approx four hours the pain across my lungs, in the back and by my heart was so bad I was in tears.
I took 10 ml of Oramorph and found this would only hold the pain off for approx two hours max, I did ring my GP to ask for advice, who put my slow release up to now 40mg twice a day and said to just take the Oramorph as needed and she would be out to see me on Friday.
On Friday I was told that my Zomorph will be increased until they get the right amount to stop the pain and to keep taking the Oramorph as needed plus she has started me on another pain killer Pregablin 50mg twice a day but like the Zomorph this will increase as I need it.
Which is why at the moment my dosette packs are weekly as my medication is changing constantly.
I'm so sorry this is long,
But the pain is still here
infact it is waking me through out the night, last night I was just in tears as I couldn't move from my bed due to the pain and one of my German Shepherds kept coming up to me licking my face, I just thought is this it.
My doctor is due out again Friday and I've got a full body CT scan tomorrow at 3pm.
Is this amount of pain normal?
It's just it has never been this bad, when I first was ill. I had no pain, just couldn't breath and felt light headed but this pain is so bad I'm unable to move or concentrate on a book. Sometimes I wonder if I'm actually having a heart attack it's that bad but all my doctor is doing is keep giving me tablets, which I'm grateful for but can anyone help to explain why has the pain got this bad after so long from me first having the PE?
also why am I getting given so much morphine?
As surely the amount I'm taking can't be good and I don't want to become addicted to them but I want this pain to go away.
I'm sorry as I'm crying again as I'm in pain again and I'm just like how long can I cope with this.
My son tells me to just call 999 but I don't want to be a nuisance, so I try to sleep, which you'd think with the amount of pills I'm taking I'd be knocked out but I can't sleep.
Any advice I would be grateful for as I just don't know anymore what to do.
0 likes, 17 replies