The pain of HS

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Good day

I've been diagnosed with HS for 10 years now,during that time it's been real painfull even to this day. The pain affect me all over sometimes I cannot move or walk properly.

My question is....is my body pain associated with HS ?...or is this something else that I have to worry about ?....

Thanks in advance......

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5 Replies

  • Posted

    In my experience the lesions themselves are painful for a few weeks at a time when they flare.

    Overall there is a lot of pain to deal with but it's specific and attributable to the lesions.

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  • Posted

    I agree the lesions are extremely painful wjen they flare up.. but i dont have whole body pain so maybe its something else that u should look into

    But yes this is an extremely painful disease

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  • Posted

    I also suffer from flu like pain during flares. I was diagnosed 12years ago. My doctors have informed me that this is common because inflammation. I was prescribed vitamin d supplements thats that actually help some. I also take meds for arthritis to help with inflammation.
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  • Posted

    Hi sorry your going through this. I have had HS now for 12 years and the last 2 years my body started to hurt all over so I found out that HS gave me fibromyalgia so maybe check with your doctor. I'm also on Humira so now it's even more painful as it effects joint pain some days I can't walk so I use a motor scooter available at the stores just to pick up groceries. I'm only 48 but some days feel like I'm 80 years old. Good luck take dare

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