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The plot thickens...as does the macular oedema!

Posted , 5 users are following.

alison79127
alison79127

Hi siesta cove (Beverly) and anyone else interested,

I've just got back from the eye clinic, where, surprise surprise, the consultant hadn't come across anyone else experiencing the same problem as me.  He said the black ring I now have on my retina is not a side effect of the Lucentis and he couldn't see anything wrong with the retina or the vitreous humour.  The swelling is back, though, so he is keen for me to have some sort of treatment before too long. I'm due to get a second opinion from the other retina specialist and have an angio-thing (dye in the eye - forgotten its name, and can't google without losing this post!) he is now talking about me having Ozurdex, which lasts longer - 3months, but has higher risk of cataracts and raised pressure in the eye.  Waiting to hear when the appt will be as the other consultant is due to have 2 weeks off.  

I love this waiting around!

2 likes, 3 replies

3 Replies

  • janet74211
    janet74211 alison79127

    Posted

    Hi Alison, not heard of this condition before. It sounds terrible and just wanted to say all the best.
    • alison79127
      alison79127 janet74211

      Posted

      Hi Janet

      thanks for the message.  My saga started with my third central retinal vein occlusion - had the first one back in the eighties.  This one happened in September last year.  So far I've had two injections in the eye but the second one I believe caused damage to the retina. So I'm reluctant to have the next one! I feel so helpless as I'm not sure the consultant really believed me about the black ring. I'll have to see what the other consultant says - but it doesn't seem as if I have much choice!

  • siestacove2
    siestacove2 alison79127

    Posted

    Hi, Allison:  It sounds like good news and bad news!  It sounds as if you have a good retinologist and getting a 2nd opinion is always an excellent idea.

    Maybe while you are waiting for the doctor to return from his vacation the problem will resolve itself.  Always think positively!!!

    Beverly  (siestacove)

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