The Urolift procedure; patient views and questions

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Would it be possible to keep this thread purely about Urolift and a means of sharing experiences from those who have undergone the process and invite debate from those considering it.

The Urolift process plus pros and cons are accurately described at many a website. Other very long threads discuss in detail BPH and other treatments such as TURPS, laser tend to overshadow people looking for advice on Urolift.

So for me, tired of getting up in the night. Tired of the medication and its side effects, tiredness and ED. Quality of life getting me down. I am 60 and reckon to be pretty fit and active.

I underwent this treatment (as an alternative to TURPS) 2 weeks ago at one of the 5 or 6 clinics/hospitals that appear to offer this treatment in the UK. It really was as simple as described on the web.

I had a 30 minute consultation with the consultant whereby he explained the procedure.

The treatment was booked for 10 am., it took about 15 minutes. I had it done under a local anaesthetic. To be frank if you are used to having your prostate and other bits probed there is no pain. It is just the thought of it you have to come to terms with. After the treatment you have to drink a lot of water to flush your system but I was allowed to drive home by dinner time.

First warning here. I did have to stop probably every 15 minutes with a sudden need to urinate. Fortunately I took a urine bottle from the clinic !

I could write for ages but will see what response I get to this post. I know on the day I was there, 4 other blokes were having the procedure and I sensed there was a regular flow of patients.

I’m now going through the period whereby I’m asking myself is there any improvement? It’s only 2 weeks in. I’m not sure is the answer at the moment. We are all different and recovery and improvement I am told does take time anything from 2/3 weeks to 2/3 months maybe longer. Your system needs time to readjust, I understand that, I don’t know how much time but I’m due for a follow up next week. I'm remaining positive.Would welcome comments from others.

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  • Posted

    Hi David:

    I think I waited about 3 weeks before I started up spin class again,  but I also did not sit on the saddle for the first week just to make sure.  

  • Posted

    Urolift now available on the NHS in the UK; as is PAE and Rezum but only at certain hospitals. My preferred option for BPH symptoms was PAE however on investigation with Trans-rectal scan, my prostate was only 28g and hence did not qualify. As my flow was very poor, the Uro suggested HOLEP would be the normal course of action. However I held out for a Urolift as I didnt want retro and the small prostate size seemed ideally suited to Urolift. As many have mentioned the Uro' insisted that with retro everything would feel the same, just be dry but I didn't buy that nor want to lose that function. So we agreed on Urolift. He said it might not work and a bladder-neck incision might also be needed though we never really discussed that. I recalled after our meeting he said he'd get me to sign a form for a BNI as well in case that was needed; I was worried about that as the side-effects can be similar to Turp but thought oh well, if he's in there and thinks the bladder neck is more of a problem than the prostate then it makes sense to fix it while in there.

    A cancellation came up last week (otherwise I was told I had a long wait) and I think I was selected out of three as my flow-rate was poor, 2.4 on Urodynamics compared to the Urologists own measurement on himself of 33. Thankfully when I got to the hospital there was no more muttering about BNI; only the urolift and that is all I was asked to consent to. I was the first one done. It was under general anaesthetic which I was thankful for.

    When I came round I asked how many inserts and was told 5. Very uncomfortable for the first 8 hours. As I was a day patient, I had to leave around 6pm but didn't really feel like going anywhere. Problem was I had drunk a lot but wasn't peeing much though felt like I needed to very much! Anyway I was deemed good to go as I was at least peeing a little, no catheter. So we went somewhere nearby and then got home around 9pm. By this time flow was very good but only short bursts. Up about 6 or 7 times in the night, very urgent and painful.

    Now on day 4 after the operation, flow still good but frequency and urgency an issue; I understand this takes time to settle down; possibly months. Pelvic floor painful and still some pain peeing but it is getting less. So far it is looking good due to the much better flow rate; like 10X improvement so it looks as though my small prostate was pressing in on the urethra and restricting it; I have a pre-op endoscope photo showing that.

    I was fortunate that my Uro does both PAE and Urolift as otherwise if he had been PAE or HOLEP only, I might have had trouble and a long wait swapping horses on the NHS. I've heard Urolift is around £6,000 in the UK though I am not sure if that includes all the pre-op checks like cystoscopy, urodynamics, ultrasound. Somewhat unfortunately and maybe connected to being NHS, my Uro performed none fo the pre-op checks himself. Had he done the cystoscopy himself I think he would have been better placed to recommend a treatment. As it was the cystoscopy was done elsewhere with no video or photographic record and a report that said urethra and bladder neck normal which left us both confused. Anyway I think I ended up with the best solution.

    Hope this helps anyone else in the UK.

  • Posted

    HI CHARLES ,

    I HAVE been off the site for a good while. i had the UL done 2.5 yrs ago, and after a few weeks i did have much improvement in urine flow & reduced bathroom trips at night to 1 or 2.

    i took a med caused VESICARE after a few months which helped my bladder to relax and

    improved my flow.About 6 months ago, symptoms returned and gradually I was back to

    square one. just had the UL redone.. just local and some nitrous oxide. (helped a little).

    He placed 6 clips this time as opposed to 4 the first time. I am 5 days post op, and so

    far not much improvement, but I know I HAVE TO BE PATIENT! STILL taking VESICARE.

    NO SEXUAL issues with VESICARE. MD said I WOULD haveto have LASER TMT NEXT TIME.

    we have to give it more time. i am expecting a big improvement after a few more weeks.

    I WILL CHECK BACK IN After a couple more weeks.

    REGARDS,

    HAL

  • Posted

    I am now 7 days post op and still in pain and frequency is worse than before the op though some is attributable to drinking more. I am getting up typically 10 times now at night whereas pre-op it was 2 to 4 times. Is this normal for 7 days? The hype surrounding Urolift makes recovery sound like a walk in the park and that you can return to work in a few days. Flow is still good which is something I suppose but so far not worth the discomfort.

    I am 61 and had 5 implants.

  • Posted

    Charles Give yourself some time. I had a catheter for 3 days when I had mine. I think it is a good thing for any man with any procedure to have a catheter.....Because the prostate need time to relax and being that it is going to be swallow it will help you through the first 3 days of the spasms and bleeding. I went through some of what you are going through. I only had the catheter 3 days. ( It is up to the doctor if he put one in ) Each man heal in a different way and some take longer. After they took the catheter out. I did have to go to the bathroom All ways had the feeling. After 10 days it calmed down. If you have no more bleeding. You can stop drinking the extra water. Do not stop all together you have to drink water or juice. Stay away from any citrus juice because it will bother your bladder. You should be seeing more improvement No sex or any rough stuff until after 4 weeks. They want the clips to a hear to the prostate. It has been 3 1/2 year for me Prostate is still wide open. Just relax It will get better Ken

  • Posted

    Day 8: Now I have an infection on top of everything else. Was up every hour last night; no sleep. Rang doctor who without seeing me or testing urine prescribed 2 weeks anti-biotic. When I collected them found out it was Cipro 2 X 500mg per day! Told my wife I was not taking that; too many horror stories out there. So took myself to a walk-in centre; UTI confirmed and some other anti-biotics given which I am just starting.

    Absolutely no-way I can go to work yet but the Urolift hype suggests you can be back within a few days or even the next day. Can't even think about sex; everything to painful to contemplate. Seems like some have a much easier recovery.

    • Posted

      Andrew.. Sorry that you are having a problem. I wonder what cause the infection. But you can get a infection with any procedure. No sex for 4 weeks. Please try to relax it will get better. Ken

    • Posted

      Had a similar experience, things do get better painwise, took a few weeks. Had my procedure done in mid March, I am at ground zero. No improvement what so ever, still on the castration drug Tamsulosin, but if I stop that, I stop peeing. Would love to know the statistcal success rate of this procedure. See a few success here, but also several failures. Not sure my MD was the best. I've given up on any more proceedure's, unfortunately sticking on the drug route. One thing that has helped me sleep better through the night is a vap of CBD. Still get up, 4 times last night, but some nights its only once. Soon as your pain and infection (bad MD technique IMHO) subside, sincerely hope you are one of the success's.

    • Posted

      Andrew, hang in there. From reading the forum you know that everyone's recovery is different. The urolift procedure worked for me. I am coming up on 3 years. Let your body recover from the procedure. Good luck.

    • Posted

      From what is written about urolift--the success rate is high. With the need, after having the urolift procedure, to have another procedure at a low level: "The rate of surgical intervention for failure to cure with the UroLift System remains low for a BPH procedure, with approximately 13.6% over five years or about 2-3% per year."

      However, it seems pre-qualifying the person for urolift is very important, as is executing the urolift implants properly, and in the right quantity, based on prostate size.

      I think human nature to be more vocal, if there is a problem, my explain why there are many negative comments on the forum. Just a thought.

  • Posted

    Hey, thanks for the words of encouragement. This forum has certainly been more useful than any info I've got from the health service.

    A shame I now have an infection but I may be prone to them as I had one a similar amount of time after the cystoscopy. I'm on MacroBid for the infection; preferable to 14 days of Cipro I think.

    We'll see how it goes.

    • Posted

      I don't remember what I took before my procedure, almost 3 years ago, but I've read it is common to prescribe antibiotics to prevent infections from the urolift procedure. Were you prescribed antibiotics?

    • Posted

      No its not usual here in the UK to take anti-biotics just as a precaution.

      Last night was better since starting the MacroBid; only up about 5 times which is a 50% improvement.

  • Posted

    Two weeks

    Still some pain in pelvic floor region. Just finishing anti-biotics which have solved infection for now. Urgency much less than last week but this and frequency not much different to pre-op; up 4 times in the night. Improvement in flow and feeling that my bladder is emptying better than pre-op. Jury still out on whether it was worth-it for me.

    • Posted

      Andrew, improvement sounds good. give it time. good luck. Bob

    • Posted

      Hi Andrew l had urolift 4 weeks ago prostate was large 8 clips were used. l still have frequency and slight sting on completion decided to take antibiotics in case it was infection. I thought l was ok and play tennis when l went home l had bleeding which scared me. Jury still out on my procedure a bit better than pre op but not as good as l would like frequency was something l wanted to fix. Andrew

    • Posted

      Andy. You also have to remember that you had 2 surgery The Urolift and a Laser Bladder Neck Incision. The Urolift take about 4 weeks to heal but the BNI can take months. Remember your doctor cut your bladder neck and now it will not close the way it is suppose to..

      Your Frequency and your stinging are only a few of the symptoms. You should have not played tennis. Let I told you. You should have had just the Urolift first. I did inform the company about what was going on. Your going to have to deal with it now. I just hope you don't start to leak.

      Have a good day Ken

    • Posted

      Yes you may be right Not impressed with partial voiding because you need to keep going something l wanted to improve so l could travel with confidence l can see a follow up procedure in the future. l was meant to see surgeon this week but he had to perform emergency surgery. l wonder why? Anyway l think l would see another urologist if this goes pear shape. He told me that my prostate was to big for urolift maybe l shoukd have listened

    • Posted

      Hey Ken did you get the slight stinging in the tip of your penis when you voided? Could it be infection or just related to the trauma that the uretha suffered? I put myself on antibiotics just in case

    • Posted

      I think when you were telling me you were right at the cut off. It's to late now I'm sorry that it's not doing what you should. If you would have had just the Urolift I think you would have been much better off. Ken

    • Posted

      No I didn't. I only had the burning in the urethra the first 24 hours after the catheter came out. That was 3 day's after I had the procedure. The urethra stings like that because it does not make it's own lube. Take the antibiotics it won't hurt.

      At 4 weeks you would have been healed with the Urolift. That doctor did not want to hear anything from anyone. He was not going to listen. I bet if you would have said no to the laser BNI He would have done it anyway. Because he had that attitude I'm the Doctor. That type of person I would walk out of the office. When you don't listen to your patient it's time to get another. Your going to have at least another month on the bladder neck. It all depends were to did the cuts

      Good Luck Ken

    • Posted

      Thanks for your thoughts Ken. I guess if the top of the bladder neck is fused to the bottom you would have no choice but to integrate laser with the urolift. What does concern me was that the other Urolift specialist said that the prostate was too large for urolift and wanted to do the full turps. The other specialist said he could do 8 clips and some laser and he had done bigger prostates than mine. However, if you do not improve after procedure it makes you think they only care about the money.

    • Posted

      Andy:

      FYI, I had stinging at the tip for at least a week or two. There was a lot of trauma from the instruments use to perform the procedures. It will go away so hang in there. Your doctor may know exactly what he wanted to do and why and you may have a terrific outcome after everything heals.

    • Posted

      Andy

      When we were talking I think you told me that your prostate was around 80 gr which is the cut off. But doctor are doing them up to 100 gr. 8 clips would have done it. They were going to do what they wanted anyway.

      I know when I have talked with the company they said that they would not stay by if another procedure was added to the Urolift. Each procedure has it's own healing time. That is not saying if the Urolift does not work that they can't go back in and do something else.

      I think you got the head on the nail. They were sure pushing anything they could with you. I know it's to late but you should have put your foot down and did one at a time. 4 week with the Urolift you would have see some improvement. But Oh well Hope things get better Ken

    • Posted

      Hi Ken, just having frequency issue with slight burning or stinging Would antibiotics designed to clear bacteria frOm urinary tract cause that . The worst thing is not being able to pee the second worst is frequency. Maybe l pushed the boundaries by playing tennis and with the bleeding this has set me back. Bleeding stopped quickly but maybe it caused a clip to tear some tissue. I will see surgeon on Wed and see what he says but l will not put up with frequency. At this stage no better than before surgery apart from no meds.

    • Posted

      Andy Give your self some time. Doctors that do more then one procedure do not take in account that they are 2 different procedure and they are different in heal. Just relax and no more tennis Ken

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