The Urolift procedure; patient views and questions
Posted , 264 users are following.
Would it be possible to keep this thread purely about Urolift and a means of sharing experiences from those who have undergone the process and invite debate from those considering it.
The Urolift process plus pros and cons are accurately described at many a website. Other very long threads discuss in detail BPH and other treatments such as TURPS, laser tend to overshadow people looking for advice on Urolift.
So for me, tired of getting up in the night. Tired of the medication and its side effects, tiredness and ED. Quality of life getting me down. I am 60 and reckon to be pretty fit and active.
I underwent this treatment (as an alternative to TURPS) 2 weeks ago at one of the 5 or 6 clinics/hospitals that appear to offer this treatment in the UK. It really was as simple as described on the web.
I had a 30 minute consultation with the consultant whereby he explained the procedure.
The treatment was booked for 10 am., it took about 15 minutes. I had it done under a local anaesthetic. To be frank if you are used to having your prostate and other bits probed there is no pain. It is just the thought of it you have to come to terms with. After the treatment you have to drink a lot of water to flush your system but I was allowed to drive home by dinner time.
First warning here. I did have to stop probably every 15 minutes with a sudden need to urinate. Fortunately I took a urine bottle from the clinic !
I could write for ages but will see what response I get to this post. I know on the day I was there, 4 other blokes were having the procedure and I sensed there was a regular flow of patients.
I’m now going through the period whereby I’m asking myself is there any improvement? It’s only 2 weeks in. I’m not sure is the answer at the moment. We are all different and recovery and improvement I am told does take time anything from 2/3 weeks to 2/3 months maybe longer. Your system needs time to readjust, I understand that, I don’t know how much time but I’m due for a follow up next week. I'm remaining positive.Would welcome comments from others.
18 likes, 1911 replies
blake26564 charles40613
Posted
I had the Urolift procedure done the first week of June 2019 I have had issues with no improvement yet My stream is still the same as prior to the surgery i am currently having some discomfort on the left side of my bladder, left testicle and kidney No infection My doctor has said that they have had one incident where a stable has pierced through the prostate and into the bladder. I am beginning to wonder if this is what has happened in my case. I am meeting with the doctor as soon as I can get an appointment to discuss. I will keep all updated.
andrew23481 blake26564
Posted
Hey Blake, I hope you get some resolution.
Urolift has been a failure for me and I am also left with pain/discomfort on the right side just in from the testicle, painful to sit, painful to move. I have had a cystoscopy since that confirmed no staple ends in the bladder and that the prostate has grown around the clips and causing blockage again. If I still have pain after a year since the urolift I think I'll have to press for some further investigation as to where the clip ends are.
william59988 charles40613
Posted
I had Urolift 6 weeks ago. A couple of days ago I returned to the doctor for my checkup. I have experienced mild success - my pee stream is better (not great) and gradually my night time getting up has improved to mostly 2 times. After peeing for a urine sample, they did a bladder scan and the result was good - almost complete emptying. Oh, and I and I am still taking Tamulosin (Flomax). The doctor said full healing can take 3 months, so my next visit will be in November.
Here's my question. Last night things changed. I had to get up to pee almost every hour and a half - about 4 times! The only think I can think of differently is that I had a bowl of ice cream before bed. Can a dairy product cause this??
kenneth1955 william59988
Posted
William
Glad things are doing well. You just have to give it time.
There are many thing that can do this to the bladder we are all different. I have to stay away citus Just relax and listen to the doctor.
It's been 4.5 years for me and I am still open.
hwstock charles40613
Posted
Do you have blood sugar issues?
william59988 hwstock
Posted
No.
lew82832 charles40613
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I had the urolift 10 months ago, and it didnt work. I think it is restricting my flow and making bph worse.
hwstock charles40613
Posted
Had the urolift about 3 weeks back.
QUESTION: has anyone had sudden testicular pain associated with the urolift?
JohnGateshead charles40613
Posted
I've just been in hospital and had a Urolift having expected to have HoLEP. I had wanted Urolift but the surgeon initially said that my prostate was unsuitable (fairly small but with a median lobe): on further inspection he decided it was fine for Urolift.
I was surprised to wake up without a catheter but, in the next few hours, found I was unable to urinate and had to have one inserted. This immediately filled up with 500ml of purple urine - and I had thought my bladder would hold 300-400 at the very most. Through the rest of the day, the urine cleared reassuringly to a yellow colour.
I was pleased this morning when the catheter was removed and, an hour later, I was able to urinate (painfully and with a small blood clot). However, an hour later I needed to go again and there was no easing of the pain/strain. On the third and subsequent attempts I had the unnerving stinging and the feeling I was about to pee, but nothing came out but a couple of slightly bloody drops. My bladder contained over 400ml of fluid when I was catheterised again, and I was disappointed to have to leave hospital with a catheter.
I had seen the surgeon a couple of hours after the operation and he told me he had never had a Urolift patient who needed a catheter, which worried me slightly, especially as things aren't improved today. While the nurse mentioned my returning to have the catheter removed in 5-7 days, my discharge letter said I would get an appointment within two weeks! The surgeon wasn't available today to give me advice. Bearing in mind what we hear about bladder infections from catheters, and the fact that the catheter packaging says "Recommended usage 5-7 days", I would not be happy to be wearing this beyond a week.
Any thoughts?
JohnGateshead charles40613
Posted
I have to add to my previous post that I've been disappointed with my hospital's aftercare after my Urolift. I got very little advice on leading the hospital but was under the impression that the catheter would only be needed for a few days. Not having heard from them the day after the consultant was back (with my follow-up appointment to remove the catheter) I rang to be told that they'd made one for me on Thursday 10th, nearly two weeks after it was inserted! It sounds as if this was just because the clinics are overbooked (our NHS is definitely under strain).
I'm not happy about this for all kinds of reasons. My understanding is that a catheter should only be in place for as long as it's needed for medical reasons: if this is to allow swelling to subside, shouldn't the maximum time be 5-7 days? I know that, the longer a catheter is in place, the greater the danger of urinary tract infections.
I'm also having trouble managing the catheter. It's uncomfortable to move around and, if I leave the house, the straps slide down my legs within minutes (despite being tightened repeatedly) and I need to stop and hide myself so I can delve into my (loose) trousers to hitch them up. Showering is difficult. I have a large "night bag" that attaches to the catheter for sleeping but can't turn over in bed because of the tube, and have to wake up and lean out of the bed every couple of hours to ensure the small bag drains into the large one, because my bed isn't as high as a hospital one and the night bag sits too high relative to the bed. In short, very frustrating.
Four days after the operation, my urine is generally clear but, when I defecated today, this was more uncomfortable than it had been the previous few times and a noticeable amount of blood came out into the catheter bag. I guess this will improve with time but the temptation, of course, is to wonder if a Urolift clip is loose and digging into my bladder...
chuck68670 JohnGateshead
Posted
John,
To be clear sir...
Do not follow any recommendations, nor advice from anyone except a a fully Trained, Certified, Licensed Medical Doctor. I am NOT giving you any medical advice, nor am I recommending you do anything other than what a fully Trained, Certified, Licensed Medical Doctor would recommend for you. Terrible things could happen if I did so. So I am certainly NOT doing so. This may sound like a Legal Disclaimer; only because it is. So please STOP reading here. Do not read anything else. The following stuff is NOT worth reading, nor even thinking about. You should quit reading this ignorant post !!!
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Legal Disclaimer (above) is still, and ALWAYS will be, in effect.
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Last Warning. DO NOT proceed any further.
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Okay, blithering ramblings of a Fool ahead...
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If I were to look on the internet, I am certain there are simple to follow instruction, nay probably complete videos on the method(s) to remove indwelling catheters, 2-way, 3-way, etc... Yourself. It is not a hard, complex, nor discomforting procedure. And many, many people have done it by themselves. It is not magic. But I would also be knowledgeable about how to self-cath ( CIC ) and what to do if there were any complications.
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I mean absolutely nothing by the above Ludicrous comments.
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Just saying....
JohnGateshead chuck68670
Posted
Thanks for the suggestion, Chuck. I'm working on my GP (local doctor) in the hope that he can persuade the district nurse to help me. If not, I may just wait for the hospital appointment.
JohnGateshead
Posted
Three weeks after my Urolift, I thought it might be useful to report back here. All good now! As I've said, I wasn't impressed with much of the aftercare I got, as I think the catheter was left in place too long just because of NHS staff shortages: ten days eventually, although it should have been 5-7, and would have been 13 days if I hadn't got in earlier due to a cancellation.
Anyway, the pain on urinating after the catheter was taken out took about three days to go away and, during that time, it took me longer to start peeing. (This was a burning pain inside, rather than the stinging in the penis and towards the end of the urethra that was characteristic after the cystocopies I've had. )
After that, things improved quickly: the frequency of my urination has now definitely reduced: I can now sometimes go for more than three hours without the toilet through the morning, and with less discomfort than I previously had after two, and the urgency is less marked. Getting up during the night is reduced and my bladder capacity already seems to have improved so that it can hold nearly 400ml without extreme discomfort, when this was previously only 200-300. Fingers crossed that the improvement lasts but, so far, I would definitely say that the operation was worthwhile.
By the way, I'm 61, not overweight and reasonably fit. If anyone has any questions to ask about my experience, I'll do my best to answer them.
lew82832 charles40613
Posted
I want to get a diferent procedure because the urolft is not working.
2019Guy charles40613
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Hello Everyone - just discovered this group and this thread and it's been immensely valuable. I had a Urolift two days ago, 10/21/19 and have some questions.
First, I was surprised when I arrived at the urology dept of the hospital and met the uro who was doing the procedure - (my regular uro does not, this was one of his colleagues), as he told me that I would be put under (propofol) and that I would be going home with a catheter - as I'd read that most of these, at least here in the United States, were done in the doctor's office with no sedation; and that 85% of patients did not need a catheter.
Well, I was glad of the former and did not look forward to the latter. I was right, as it took 2 days for my urine to be clear enough for them to remove the catheter this morning. Not fun as I'm sure many of you know!
At any event, now I have very little control and quite a bit of urgency. I'm at home, so no accidents... yet. I'm wondering how long it generally takes for things to return to normal. Also, statistically I'd read that about 70% of Urolifts are beneficial. Meaning that 30% do no good and that in perhaps some small fraction of that things get worse.
My surgeon said that he's done over 100 of them and that his success rate is 75%-25%, with no one being any worse off. So he's ahead of the curve: great.
Any and all advice is greatly appreciated! Thanks.
JohnGateshead 2019Guy
Posted
I had the catheter for nearly two weeks and I gather it takes at least that time to feel any benefit from the Urolift even when not catheterised. It took me about 3 days to recover from the catheter (that is, for the pain on peeing to go away) and now, 4 weeks after the operation, my waterworks feel noticeably better than they did before it
2019Guy JohnGateshead
Posted
John, thanks for replying and that's great to hear. Presently I'm only 24 hours removed from my little rubber guest, so I'll hope that my recovery mirrors yours. I'm so glad to read that things are better for you.
Onward and upward!