The usual probs with Steroids
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Well it looks as if this Disease is going to be with me for quite a while.
Whilst I have full confidence in my Primary GP, I am beginning to wonder if there is more to this disease than checks on ESR and CRP.
My last ESR was within normal limits, but my CRP was still high. So now I am into my 5th year of the Hamster Wheel of varying doses of Prednisone, (presently at 5mgms each morning ) and experiencing pain / pressure behind my eyes.
Some days are not too bad but other days are very difficult to manage. I try to carry on each day as it comes, and still do my Volunteer work.
My last visit to the GP revealed elevated B/P..........which to my mind is something to be expected due to swollen Arteries. This of course could lead to a host of other problems (but I do not wish to add more medication to my daily routine )
I wonder if anyone else read the article on Beetroot juice having the properties to lower Blood Pressure. If so please tell more. Would it interfere with the Steroids.....as we know just because something has the word \"Natural\" as a label does not mean Safe.
0 likes, 4 replies
Ms_B
Posted
It seems that there is not very much interest in GCA, and no new treatment.
Is it because the majority of people with this type of autoimmune disease are suffering from PMR, and so all the \"news\" is about the developments in this disease ?
I am now into my 5th year with Steroids as my daily companion. ...not much of a companion but the only one that will keep me \"as well as can be expected\".
If anyone has had the chance to consult a Specialist with any new ideas............please do let me know.
I am cheesed off at looking like a Pumpkin on birds legs...wearing baggy clothes to hide the ravages of the Steroids. I long to be free of meds but know I can't just stop them.[/b]
Ms_B
Posted
I seem to be replying to my own experiences !!
After 4.5 years ....yes Four and a half years of this disease, and the meds of course, it has been decided that I must start on Anti Hypertensives as the Prednisolone has been pushing my Blood pressure ever closer to a non acceptable level.
The drug is Amlodipine..have not tried it yet, and was wondering if Mavis from the North East of the UK has any theories on this.
mrs_k
Posted
Sorry not been on this part of the site for sometime.
That is a new one on me, but will check it out.
Milly07, I know this sound queer, but the PMR thread on this site has more information on GCA as well as PMR as there are more people with both than just the one. Its lively and well worth a look.
Ms_B
Posted