THERE HAS TO BE A CAUSE OF URTICARIA ...
Posted , 116 users are following.
I absolutely REFUSE to accept a diagnosis of 'Chronic Idiopathic Urticaria' which basically means the medical profession have yet to discover the cause. They NEED to get on with their research. This is a deeply FRUSTRATING, IRRITATING, SCARY, DISTRESSING, PHYSICALLY AND PSYCHOLIGALLY DEPRESSING condition and CIA diagnosis is just not good enough. And most of us CIU sufferers are the type of people who 'don't like to keep complaining', so we put up with the damned itching and also we're too EXHAUSTED with the condition to keep running to the doctor every few days.
GPs don't seem to know who to refer us to. We go for allergy tests, nothing is detected, we're put on antihistamines, they don't work. We go to dermatologists, same thing all over again, all tests are done to RULE OUT this and that, but never to RULE IN. In the UK, there are 'within normal limits' criteria for blood tests. What if you have a body that doesn't work alongside the 'norm'? Your overlooked.
I started with this CIU during a really persistent chest infection which wouldn't go away. I knew exactly where in my right lung the pest was living and yet my GP continually 'couldn't hear anything' with the stethoscope, but I could FEEL something not right. Then I had C reactive protein tests which showed and inflammation 'somewhere in my body' but they didn't know where. I KNEW WHERE.
I suffered with breathing problems and this stupid CIU for 10 months, ended up in A & E several times with angio-oedema and anaphylaxis, now carry an Epipen. The rash eventually subsided after almost a year, but not due to antihistamines because they didn't work, some even made it worse.
But my skin remained itchy all over. So I live with constant itching. Two months ago, the rash flared up, I still have it, been to my GP, given Atarax at first which made it worse. Went back, given Cetirizine 3 a day, Ranitidine one a day plus Monteleukast if that didn't work. Before I had the chance to even take that, I had to be rushed to A & E a few days ago because the rash was creeping up to my throat and head and I felt my tongue tingling and had a fat lip. Put on IV Piriton, steroids, sent home after 6 hours with a 5 day course of Prednisolone steroid tabs. Still had the rash but it went down and for ONE DAY I WAS TOTALLY ITCH FREE. BLISS.
But it's now back again and I'm feeling really desperate. I work in a psychiatric hospital, my job is stressful, I can't concentrate and can't afford to make mistakes in my work. I have no social life because I look like a cross between a leper and a lousy dog! And most days I just feel that life isn't worth living if I have to continue like this. In fact I don't WANT to live if I have to live with this. That's how bad this skin condition makes me feel. And that's what I'm going to tell my GP next week when I see her because they have to really sit up and take notice where this CIU is concerned and stop fobbing us off with 'it's not life threatening, it will pass, it will burn itself out eventually'.
Thanks to all the posters here for their contributions about what has or hasn't worked for them.
15 likes, 259 replies
ann09075 gracIe53
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dorothy22232 gracIe53
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norman32101 gracIe53
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then I began to itch all over but particularly on my back, all sorts of creams tried but did not work. Sunbathing helped when available. Then the restless legs got so bad that sleep was restricted to early morning. I looked up causes of the problem and found an excellent patient plus article - iron deficiency was on the list. I have such complex genetic problems that proving iron deficieny was not easy, some tests such as ferritin purported to show that I have good stores. Oral iron was not well tolerated but a 15 minute drilled to massive improvements. I see that some of you have helicobacter, which causes iron deficiency. Some of you will have had tests for coeliac. Make sure that IgA antibodies were checked. IgA deficiency is common and invalidates the coeliac test.
sadly one problem is mended and another comes along. I had shingles, taking treatment < 4 hours later but still have really irritatingfacial pain, naturally worse at night.
in due course i can look forward to pruritis secondary to renal impairment and possibly also by liver damage caused by right heart failure.
two wonderful grandchildren mandate every effort to find cures or aids.
4="" hours="" later="" but="" still="" have="" really="" irritatingfacial="" pain,="" naturally="" worse="" at="" night.="" in="" due="" course="" i="" can="" look="" forward="" to="" pruritis="" secondary="" to="" renal="" impairment="" and="" possibly="" also="" by="" liver="" damage="" caused="" by="" right="" heart="" failure.="" two="" wonderful="" grandchildren="" mandate="" every="" effort="" to="" find="" cures="" or="" aids.=""> 4 hours later but still have really irritatingfacial pain, naturally worse at night.
in due course i can look forward to pruritis secondary to renal impairment and possibly also by liver damage caused by right heart failure.
two wonderful grandchildren mandate every effort to find cures or aids.
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patrick28085 gracIe53
Posted
It works, just heard about this and I am going to receive treatment soon. Look more information up this is relatively new. Also known as omalizumab. Hope this helps everybody, pretty sure an Asthma/allergy doctor can help out with this
kurt_49646 gracIe53
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From U.S. I've had same problem steroids work for short period and wanted to scream. F****** doctors lol truth is they don't know anything I switched my detergent to allergy free waited hives went away (they say body changes every seven years) aby way keep living my symptoms went away but I'm now suffering from allergic excema
Keep the faith this too shall pass
Kurt
capo gracIe53
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capo gracIe53
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sam1427 gracIe53
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The TCM names of urticaria include, wind rash (feng zhen), wind itch concealed rash (feng sao yin zhen), and wind rash lumps (feng zhen kuai)
Signs and Symptoms
Pale or red wheals appear suddenly on the skin and are caused by vascular dilatation and edema, with an itching or burning sensation. The lesions may remain small (1-5mm) or enlarge to as much as 10cm or more across. Crops of skin lesions come and go, with a lesion remaining in one site for several hours, and then disappearing within 24 hours.
Acute urticaria is self-limiting and typically subsides in several days to 2 weeks. Chronic urticaria recurrently attacks for more than 6 weeks.
Traditional Chinese Medicine Etiology
Wind is the main pathogen in urticaria.
• Wind-cold or wind-heat invades the body, which results in a disharmony between nutritive and defensive qi
• Damp-heat accumulates in the stomach and intestines, due to an irregular diet or intestinal parasites.
• A congenital defect with qi and blood deficiency results in wind and defensive qi deficiency.
• Mental irritation, disharmony of the Chong and Ren, or liver and kidney deficiency can not nourish skin, generating wind and dryness.
Differentiation and Treatment
1. Wind-cold
White colored wheals appear and they are aggravated by cold and wind and alleviated by warmth, and occur most frequently in the winter. There is no thirst and the tongue is pale with a thin white coating, and the pulse is floating.
Treatment principle: Disperse wind and cold, harmonize nutritive Qi and defensive Qi
2. Wind-heat
Red colored wheals appear and are aggravated by heat and alleviated by cold. The temperature of the lesions is higher than that of the normal skin, and the lesions occur most frequently in the summer. There is also restlessness and thirst. The tongue is red with a thin yellow coating, and the pulse is floating and rapid.
Treatment principle: Disperse wind, clear heat, and stop itching
3. Damp-heat in stomach and intestine
Red colored wheals appear with an irregular diet, accompanied with abdominal pain, nausea, vomiting, and dry or loose stools. The tongue is red with a yellow and greasy coating and the pulse is slippery or rapid. Some cases have intestinal parasites
Treatment principle: Clear intestines and transform dampness, disperse wind and stop itching
Rummercat gracIe53
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My own research into all this has reached as far as MAST CELLS being the culprit. WHAT ARE MAST CELLS?
Mast cells are "master regulators" of the immune system. They come from bone marrow and go into all tissues of the body. Each mast cell contains secretory granules (storage sacs), each containing powerful biologically active molecules called mediators. These can be secreted when mast cells are triggered, leading to allergic and inflammatory diseases/conditions.
And this is just the beginning!! Their is a lot on the web regarding Mast Cells so take a look.
I still can't find a cure, but knowing how these things start and that they're all linked plays a crucial part in how I care for myself to stop Mast Cells from reproducing. I'm only 40years old, I really don't want another Auto Immune Disease!! Good luck to all with these conditions.
PBurn Rummercat
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This scientific paper may help but there is massive amounts of information on the internet for this. All auto-immune conditions can be helped - they come as a result of hyperintestinal permeability aka "leaky gut syndrome". Cutting out gluten, sugars and carbs can be very helpful. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1379444/
Collettl gracIe53
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barbara64316 gracIe53
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I was prescribed antihistamines which I took for about four years. They made the rash less severe but that was all -.they never made the it go away and after taking them for so long they upset my sleep patterns and I was like a zombie.
At one stage I was completely covered with the rash and prescribed steroids, which were no real answer to the problem. I have also experienced the severe swelling of the face which you mention. The worst example of this was on a
When I was a child I used to get what my mum called "heat lumps" and I was given a vile cocoction of sulphur powder in milk , which got rid of them. In 1999 I remembered this and decided to try sulphur tablets which were freely available at that time. They got rid of the rash COMPLETELY in a matter of days and I have had no trouble with urticaria until March of this year.
Sulphur tablets are no longer freely available because of health concerns. One concern seem to be that they are not regulated. I have surfed the net to try to ascertain what the medical risks are posed by taking these tablets are, but without success. As you work in a hospital maybe someone there could explain it to you
However I have managed to get a homeopathic remedy called Urta and I have had some success.
This time the rash started on my lower legs, firstly on the right leg (quite severe) then the left (not as bad). The remedy has had little effect on the rash which was established, but it has since tried to spread to my arms and the spots there have gone down without becoming red and itchy. The rash on my left leg has subsided considerably and has almost gone and my right leg is much better.
If you try this, I think you will probably need to take it for 4 to 6 weeks before you see any real improvement.
I hope I have been of some help because I know how awful it is, especially when it erupts on your face.
PBurn gracIe53
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sheila62513 gracIe53
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I am now looking at hypnosis because I am pretty sure that stress is the trigger. Had one session and am looking at a weekend away to try and break the stress cycle. Only had one week off in 5 years and I know that helped, especially the sea.
debolite gracIe53
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