There is a light at the end of the tunnel

To-day, the 13th of December is the Lucia Day in Sweden. Lucia is the queen o lights and she comes to us with lights during the darkest period of the year. In every city, they have an official Lucia and it is a very honorable thing to become the Lucia. In schools, every class has a Lucia and she also has Star Boys as attendants. If you want to know more about the Lucia celebration, go to https://en.wikipedia.org/wiki/Saint_Lucy%27s_Day and https://sweden.se/culture-traditions/lucia/ As the Nobel Prize winner always are in Sweden during the Lucia celebration, they were at least in earlier days woken up with a Lucia entering their rooom singing the Lucia song. It was said that one old man (as you know, most laureates are old) woke up and thought he as in heaven and that angels were singing for him.

It is now 11 years ago that I came off pred after having had pmr and GCA. I chose to say December 13th as the Lucia Day is easy to remember. I stayed on 5 mg for a year due to fatigue. After that I tried a new regime with one day new dose, two days old dose and repeated that 2-3 times. This way I got off pred without problems and without flares. Later, somebody called it Ragnar´s Method and many tried it and also got off pred. Then Eileen H et al made a new method where the period going over to the new dose was stetched out even more. This was called the DSNS (dead slow nearly stop) method and very many have tried it with success. When I started posting many years ago there were also groups in the US and Canada but unfortunately, those other groups stopped being on internet. In the UK group in the Northeast, I was one of those who posted their stories and I think it was very interesting to see how different we had been acting and how different we had gone through to Zero pred. At one time, I started Club Zero on the Northeast Forum and it was nice to see how many that became members as they stopped taking pred. Now I look at the posts in patient.info when there is a discussion where I think I can help with an opinion.

With the Lucia celebration, let us look forward to the lighter period and also a better period of taking pred. There is a light at the end of the tunnel!!!

(My first name is Ragnar and I had pmr and GCA for 3 1/2 years)

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