There is Hope - End Stage

Edited , 37 users are following.

Since joining the site I have read some really sad posts, mostly from people believing they are knocking on deaths doorstep from end stage liver disease relating to alcoholism. You need to know that the body is a VERY resiliant multicellular organism. It's entire Job is to keep you living as long as possible to ensure the survival of the human race. With that said, if you astain from alcohol and follow the proper dietary requirements, the progression of Cirrhosis can be slowed to a snails pace and even halted in some cases. It is never to late, but you must STOP drinking as the body can't begin its healing process and deal with your abuse at the same time. I wish everyone well, and I pray daily for anyone and everyone who is effected by this horrible disease.

Love you all.

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  • Posted

    I love your positive attitude, we both share this. I am awaiting a biopsy as unfortunately, like most, i have been through the years, wrongly diagnosis. Removing my gallbladder should have been the end to my raised liver function tests and pain, but sadly it caused even more pain. Even though i feel permanently fatigued, i get up, get dressed, put my makeup on and either go out or read a book in my garden. I won't let this rule my life. Summers coming and the heat will warm up my aching bones. Good on you for remaining positive, i totally honour your attitude. Good luck and keep smiling xx
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  • Posted

    It's never the end your right I was end stage liver des ease with cancer  I've stopped drinking since I was diagnosed had hep c  aswell . I had a liver transplant in July last year and my hep c as gone my cancer  has gone and ime recovering well 
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  • Edited

    I just wish I could get the truth out of consultants. You ask them for a frank prognosis, no holds barred and they just won't answer it.
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    • Edited

      You're right. Because every case is different. I know people personally who were given 6 months at most of a "good" life, and were now years later. Medicine, medical treatment and dietary lifestyle is completely changing every day and giving us more ammunition to combat this thing. I drink a LOT of coffee, I mean A LOT (coffee will go to war with liver disease and do wonders for you)

      I juice daily;

      Best juicing for you is apple, carrot, lemon, orange, turmeric  (TUMERIC IS THE BEST NATURAL ANTI-INFLAMMATORY FOR THE LIVER, ON THE PLANET)

      OR

      apple, cucumber, ginger, kale, lemon, parsley, spinach

      I don't eat any red meat, I don't drink alcohol (obviously) I ride my bicycle 30k-60ks every day, I eat tons of veg, lean fish. Drink lots of water (but not to much) I meditate. You can slow this thing down.

      My most important daily tasks are;

      6 cups of coffee every day.

      1 Juice of either one of those.

      Some form of excersize

      Keep stress out of your life.

      36 Year old alcoholic.

      Diagnosed stage 3 liver disease 2011.

      If anyone has any questions or wants to talk 1 on 1, I have time for any of you. I've researched this damn thing for years and it has taken me to every corner of the planet.

      Love ya. 

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    • Posted

      I'm not sure where you're from, because we tend to use Child-Pugh or MELD scoring in the UK.

      Mine is Child-Pugh class A at 50 years old.

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    • Posted

      class A you are doing really well and I wouldn't worry about anything other than living a healthy lifestyle. You'll most likely die from something else other than liver disease (sorry if that sounded harsh) happy you are class A
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    • Posted

      'You'll most likely die from something else'

      Like liver cancer perhaps. Been tested for that, and they still won't say, yes you are at high risk from it, which is why we tested you. I found out by accident that they tested me, they weren't going to tell me. Comorbidity is quite a high risk.

      At the same time (same day) I went into hospital two years ago for jaundice, I had an acute cerebral haemorrhage (bleed on the brain) with a midline shift.

      One of these two or both together is going to get me at some stage, which I can deal with. I'd just like an informed opinion of the situation. Some times I have really pushed the consultant, until I felt he was going to show me the door. I know everyone is different, but I do think they have an idea.

      I take it you went away and looked up Child-Pugh then.

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    • Posted

      Why do you think Doctors are out to get you and are not telling you the truth. Thats preposterous. If they are telling you you're class A, you need to follow a healthy routine and you should be ok. The MELD and Pugh score are estimated from years of data, why do you think you're any different or a special case to not listen to those.

      - Very Confused. 

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    • Posted

      I didn't say they were out to get me. And I don't believe they are treating me differently, they are just not giving me answers. The same as the neuro surgeon, won't go into details about vascualr dementia, which stroke victims have a much higher chancee of suffering from early.

      At least whem I spoke to the stroke organisation, they had loads of data, and whilst they could only give me the average based on that data, they gave me some answers. The neuro surgeon, having seen me and having all my medical and hospital data to hand, should have been able to give me a more accurate personalised prognosis.

      https://patient.info/doctor/cirrhosis-pro

      A score of 5-6 is class A (life expectancy 15-20 years); a score of 7-9 is class B (life expectancy 4-14 years); a score of 10-15 is class C (life expectancy 1-3 years). This aligns with a perioperative mortality (for abdominal surgery) of 10%, 30%, and 80% respectively.

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    • Posted

      Yes, absolutely, Doctor. This is not theory, this is proven and WELL known in the medical community. Just a simple google search "how coffee helps the liver study" will give you all the information you need. Heavy Coffee drinking alcoholics never develop Cirrhosis, coincidence? Nope.
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    • Posted

      I wonder about tea and its effects on the liver though it's low octane compared to coffee.

      I also wonder if the coffee helped neutralize the alcohol and how it helps after the diagnosis of cirrhosis🤔Also, would like to know if your liver doctor has made dietary/supplement suggestions and if so which ones is he adamant on? Is there certain medicines that can halt or reverse cirrhosis?

      Hope you keep this post going. I found the discussion between you and others helpful.

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    • Edited

      bb123 Alcoholic Cirhossis is absolutely haltable (not reversible) Any natural anti-inflamatory is encourage ( to keep your liver cells from imflamation ) the less inflamation, the less scarring. Staying away from everything toxic is a must, hair spray, cologne, exhaust from vehicles, it's hard yes I know but just being concious about it can help. I can get you an entire scope of my diet if you like. 
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    • Posted

      Thankfully there is a juicing store that does fresh juices every morning, so I just purchase there. Coffee, because its statistically proven that heavy coffee drinking alcoholics very rarely will ever progress to cirrhosis and independent studies from doctors have shown that it may just slow down the progression of the disease to a snails pace by acting as a protector to inflamed cells.
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    • Posted

      Thanks so much for all of the information you've shared. My partner of 8yrs has been diagnosed w end stage alcoholic Liver disease and have told us she may have 6 months. As her family, we are not wanting to except that. She's only 46 and she doesn't want to die, but with that said she's very weak. It's difficult to get her to eat, she's been drinking Boost plus; which is a liquid dietary supplement. She's been having terrible dry heaving in the evenings, no blood in bowel movements or vomit(if anything comes up). I want to atleast try some of the dietary drinks / foods you've mentioned and I'm hoping we can get her through this, without death being her only option. Praying it's not too late to heal her and fighting like hell to save her.

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    • Posted

      I understand exactly what you're talking about. I run into it all the time I went through over 25 doctors in order to get my diagnosis for something I had for 55 years. And actually the answer is, they don't know as much as you think they do. They're not withholding information from you, they don't know the answers. And they don't want to admit that to you.

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    • Posted

      Joel66 im currently 24 years old feeling strong fatigue, weakness, insomia, indigestion and nust generally not feeling well. When i was 15 i started drinking but in my opinion not alot. However i had a really low tolerance to alcohol and often 1/4 times end up really drunk. I got my blood test done which showed elevated ALT levels of 80 , 2nd blood test 3 months later showed 110. My doctor sent me for a Ultrasound which revealed a fatty liver. He continued and tested me for billirubin levels which in my opinion were probably high because he asked me if im experiencing jaundice. Do i have fibrosis, cirrhosis?
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    • Posted

      Absolutely true.  I seem to know more than my Doctors - I have heard "I have no idea" many times!!!  When they don't know what my problem is - be it a rash or tender spot on the foot which makes walking painful - I suggest something, they look it up and say - hmm maybe you are right.  My regular doc retired a few years ago and she loved me going in to see her and always said what have you got for me lol?  She took early retirement because she said she just did not have the time to research into ways to combat illness the natural way.  I so miss her. 

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    • Posted

      you need a fibroscan. you said you're very young, I'm not. And I have learned over the years that if the doctor won't give you what you need which in your case, is a fibroscan, then you may have to get another doctor. until you get with a very good and very aggressive doctor knowledgeable on your illness, there are lots of things you can do for a fatty liver. the first two being no alcohol, and no soda.

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    • Posted

      Fatty Liver can happen at your age, if your diet is horrible thats a good start. More things than alcohol can raise those numbers. Were they high? The bilirubin? He would tell you. What is your urine color? Order a package of ChemStrips 10 and test your urine at home yourself. Get a Blood Sugar monitor and use it. Blood sugar is always crazy when you have fatty liver. Any pale stools? How is your fingernail heath? What Im getting at here is its going to take a lot more than a 110 ALT level forr a doctor to diagose you with anything. You need ALT ALP AST GGT, INR, BG, to really see where you are at.

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    • Posted

      I would really love to know your entire diet please. You seem to be very knowledgeable and I am in some serious need of knowledge right now.

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    • Posted

      hi, my father has this from alcohol and now has been given up to 12 months to live most. i want to offer part of my liver but he wont stop drinking how do i help or is it to late????? He has muscle wastage and i dont even recognise who he is and just want some advice or is it to late? thanks

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    • Posted

      it was very encarugung message and if

      i am diagnozed as stage 3-4 alcoholic liver

      scarred , my blod test are perfect i do not feel any problenor pain , just by random

      checkup they find out the liver problem

      what advice can you give me , i of course

      immedietely stopped drinking

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