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There's hope even after a failure

Posted , 8 users are following.

shiteh65317
shiteh65317

Most people feel its the end of life or the end of fun once you're down to below 10% or a complete failure. the truth is there's increasingly more hope than most of us know. Yes its sometimes very expensive but many people manage to get theirs replaced. Whether you're able to buy or just wait in line for a donor; there's hope and we have to keep it alive. i am a first hand witness so please brace up.

2 likes, 12 replies

12 Replies

  • doug68605
    doug68605 shiteh65317

    Posted

    I’ll share another encouraging story.

    I suffered acute renal failure due to hydronephrosis 3 years ago. I was diagnosed with renal cell carcinoma and had a kidney removed a year and a half ago. My eGFR got down to 16and I was preparing to start PD. In my neck of the woods dialysis stats around eGFR15. I was told by 3 different doctors that kidneys never get better and the best I could hope for was to hold even. I saw my nephrologist, had blood work done and scheduled catheter placement, scheduled with the dialysis nurse and prepared for my life to be drastically changed. Got results of the blood work back 3 days before surgery and my eGFR had zoomed up to 23 and creatinine had dropped 1 1/2 points! Surgery and dialysis avoided! My nephrologist said he’d never seen this before. Dialysis may be inevitable but not now! There is hope!

  • MrsO-UK_Surrey
    MrsO-UK_Surrey shiteh65317

    Posted

    It's great to hear such good news stories. My good news story is that I had a kidney removed 64 years ago, and for those of you looking in who have recently lost a kidney for whatever reason, it might boost your morale to know that my remaining kidney has been fantastic doing the work of two.  Unfortunately, about 10 years ago, it took a long time to be diagnosed with an autoimmune inflammatory condition and I had to take ibuprofen for a few months. Either the untreated inflammation, the Ibuprofen or the X-ray contrast caused my kidney to start losing function at the same time.  It's also being pummeled by very difficult to treat high blood pressure but I am at CKD3b with a present eGFR of 33 and desperately trying to keep it stable.  Good luck everyone! 

  • shiteh65317
    shiteh65317

    Posted

    Thanks for sharing. Hold on strong and hopefully you're a Christian; keep putting you trust in God.

  • rick39522
    rick39522 shiteh65317

    Posted

    I certainly have heard of waiting on the list and hope and pray you some day get picked in time to save your life.  Unfortunately the vast majority never get selected.  I have not heard of buying one (certainly not legally) and I can not imagine there is a reputable physician or hospital that would perform such an operation on a kidney you somehow bought.  But certainly the message of never lose hope is a good one.
    • shiteh65317
      shiteh65317 rick39522

      Posted

      If you read and research well you'd notice that people do buy. Some people donate for a fee while others are free. whichever it is; there are just terms used to bypass the laws in place. so far as the organ isn't harvested without consent, recipients should feel luck and grateful to be healthy again.

    • porky2836504
      porky2836504 rick39522

      Posted

      Yes it is true, some people do pay for a kidney. I have been on the double transplant list for about eight years,(kidney/pancreas). I once met a young man who was desperate for a kidney and he paid £13k, which covered all medical expenses. He lives in the UK and went to Hungary for it. That was 8 years ago, so what it would cost now god knows. It sounds all good BUT how good are the hospital checks and comparisons of blood and tissue matches. All sounds a bit risky to me. Better the devil you know.

    • shiteh65317
      shiteh65317 porky2836504

      Posted

      Exactly; you have money, you have health these days. There are people ready to trade one of their kidneys for a better life for their families. they do it like a donation so its legal but of course money changes hands between the people involved. Most people cant achieve it for sure but there's absolutely no need to suffer if you have what someone else wants and he/she can save your life. thanks for sharing

    • shiteh65317
      shiteh65317 porky2836504

      Posted

      A friend got a transplant on the 28th. He's stable and we're expectant but everything went as planned so he should be great in a couple of weeks. spent a s**t load of money though. people are suffering while organs just sit there waiting on the rich

  • bert74483
    bert74483 shiteh65317

    Posted

    What a lovely, uplifting post! My GFR is now down to a little less than six and life is still good. I went to theatre  with my wife last night and I am hoping to go to Walsingham in June.

    I know I don't have much time left -- and I'm not going to spend a minute of it on dialysis machines -- but life is good.

    Rejoice for every new day!

     

  • Janinec87
    Janinec87 shiteh65317

    Posted

    For some it's not... some are not able to have transplants and have to live on dialysis... being in dialysis for a long time does more damage to you. People get complications and other health problems that come with ckd... not everyone has a transplant and is OK. ... so I can't agree with this and be totally positive

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