thigh dvt

I have spoken to my anticoagulation nurse today told him I was sent to the hospital and sent away , explained about how much pain I am in he said he is disgusted that the hospital didn't rescan me

He and a dr think the clot may have got bigger so im booked in to be re scanned Friday and to see a dr and have medication changed I feel a bit like I'm getting somewhere xx

hi glad you are getting somewhere.hope ur clot is not bigger.what meds are they changing you too.i have been to see my doc today who says that my swelling in left leg will never go away.i am due for another scan end of august hopefully i will know more then.its looking like i might have to have a wheelchair for getting out and about but iv not to use it all the time must walk as well.

 

Hi Jackie, from another set of posts too, have you had a diagnosis about the swelling yet? Why do they say swelling will go away?

Sheila.

 

All that will be decided tomorrow so I'm a bit in the dark today , he just called again and said to ask for a thigh length stocking tomorrow when I'm there so I dunno gets more complicated by the minute!

I use crutches at the minute if I need to get about

Just sitting here leg elevated in tremendous pain it's so awful hard to stay cheery isn't it x

Hi, Good luck tomorrow. Do ask about clot removal as so extensive. Don't forget to ask about the possibility of May Thurner syndrome and Post Thrombotic Syndrome. let us know how you get on. Sheila.

hi shelia. no i havent got a scan in august but whether it will show anything.asked doc last week why swelling in groin to be told its water retension so on tabs for that.but doc i saw today says its not.dont know what to beleive.

hi. hope your ok.your lucky i havent been offered one at all. been today and was told that mine will never go down.but doc i saw last week said it was fluid.so dont know.what to think.i will wait till scan then get appointment with doc at hospital to see what he says.good luck for tomz

Hi Jackie, did you mention MTS to them? I dont know where else they scan inside the vein and detect compression due to MTS apart from G&St T. Maybe your GP could find out. Frustrating for you. Sheila.

 

hi shelia thanks for info i will ask doc when i go next thursday and let you know.

 

Sorry to hear that, but not surprised. What else did he have to say? did he mention MTS? and what happens next? As you know my son had PTS and is 6 months post stenting at St Thomas' London. He has no pain and only tiny amount of residual swelling.

I haven't said so far but we did consider suing the hosp where he had the surgery as he wasn't told about DVT and he wasnt anti coagulated after discharge. We went through the complaints procedure, Pals, meeting with the Trust and they did say they had changed some of their procedures as a consequence of his life changing DVT. We went to Ombudsman as well and were advised that we were unlikely to win as the DVT was 29 days post surgery. We were pleased to have made a difference though so that others are less likely to suffer. 

Do keep in touch.

Dad spoke to pals on the way out we have a complaint pack ,I have been there 5.5hrs today sitting waiting for decisions to be made my leg is so unbelievably swollen, iv had to miss a day off work was planning on going in afterwards but only had an hour left!

So now waiting for vascular referral given amitriptyline to try ,anticoagulation clinic team appointment see its all stepping up now something that should have happened 3 weeks ago when I was sent in by gp but I was sent home !