Things just got scarey

Posted , 4 users are following.

Hi guys I had been diagnosed fibro last year I have heart condition and arthritis and copd as well but things took a turn for the worst in now losing power to walk I saw my specialist Monday and he took one look at Mr and said I've deatorated that bad that now I'm having to use a wheel chair he checked all my nerves in legs and said their all dead and now I have to have an electric test on them and another MRI has this happened to anyone else I'm so down now in so much leg and back pain and don't understand what's happening to me any advice now would be lovely thanks love to you all cherl

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  • Posted

    Hello, cherl:  I'm so glad that you posted this morning.  I'm 67 yrs. old, much older than, you, I'm sure.  I was diagnosed with Fibro years ago, but I also have scoliosis, and spinal stenosis, and tons of arthritis.  I have deteriated so much in the last few years.  I'm have such a hard time walking.  I also have two bad knees and a really bad flat left foot.  I am trying so hard to keep from going to a wheel chair, but I know it must be coming.  I am so depressed over all the pain that I have to endure every day.  I have to live on pain killers...Looks like we are in the same boat, sweetie...If you have any suggestions for us, let me know...HUGS.
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    • Posted

      Hi carol ghosh life is so cruel I live on pain killers but their no good at the best of times and lack of sleep due to a lot of pain doesn't help I've had my ot lady in and their getting me a special riser recliner chair I too have serve arthritis in my lower spine and ostheritis in my knees ,apparently the numbness in spine and legs is not due to fibro so please get it checked out I got a call today to say one of the special bloods has come back positive for m s so now I have got to have another lumber puncture as well as MRI as it looks like it could be M's as well I just hope their wrong I'll keep you posted plus waiting to go in for operation to fix the muscle and bone impingement of my shoulder so not looking forward to that, all I can say is don't let doctors fob you off saying its just fibro ,I'm not looking forward to my wheelchair as I'm only 53 but at moment I'm a house prisoner as can't get out as can't walk more than 4 paces so it be nice to have some fresh air again my love to you all cherl xxxx

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  • Posted

    Hi cherl450 I was diagnosed with fibro in 2014 after 10 years of many tests and seeing different specialists. My mobility has got worse since last year I know have to use a wheelchair when I go out. I use a walking stick and walking frame when balnce is a problem. I had physio in 2014 on my legs physio said my muscels were waisting away, and that my mobility wouldnt improve which it hasnt its got worse. Im in constant pain with back legs been to the drs about it. and got no help? I cant take pain relief because of the severe side affects I have. Fibro has alot to answear too. You could mention physio to your gp see what they say. The physio I had did nothing for me at all. What I do is bend my feet towards me and back and move my feet in a circle motion whilost sitting just try raise each leg a couple of times. These are things the physio told me to do. Hope your mri and electric test goes well for you. please let us know how get on. take care 
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    • Posted

      Hi kas yes I will let you know I don't just get pain I lose the feeling in my legs and collapse and the it can take up to an hour before it comes back to normal and get numbness in my lower back I have been physo like you but the physo wouldn't touch me because of the pain I'm being reffered to pain clinic as their on about doing acupuncture on me my specialist is wondering if maybe I have m s as well so I'll keep you posted hope your managing OK love always xxxx

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    • Posted

      Hi cherl450 I get numbness in legs lower back and also in hands and sometimes in the face. Hope all goes well when you go to the pain clinic, Im struggling today something went crack in the right side of my back when I was getting dressed. its quiet painful hope it will be ok as got mri on the 13th feb. you take care keep us posted on how you get on. xxxxx
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  • Posted

    Hi cher450 it's Zoe. U sent me a message so I shall do the same.

    Answer to ur question is yes. I went from coming home from work one day. Relaxed in Bath and went to bed.

    In the morning well, how can I put this....I went from walking into so much pain all over. Going to the toilet was a nightmare as I literally could hardly move. I looked like I was about 150 lol. But seriously I couldn't believe I had gone from work to this. There was no escape from excruciating pain and hardly any strength to move. I was stuck. I had no help at all. I was completely by myself. It was a very scary time.

    So that was my first big flare up.

    I had to give up work. I can't get across just how bad it was. I was literally very seriously unable to do anything. I dreaded going to the loo. Apart from the pain I was bent over completely when I tried to walk. Looking back I don't know how I coped. But we do don't we......sink or swim.

    After weeks like that I got an appointment with a McTimoney chiropractor. He got me upright by 2nd visit. I carried on working with him.

    He was not a BCA chiropractor he was McTimoney chiropractor.

    I rave to people about this treatment. It is seriously amazing.

    Ur like me we have other things to deal with on top of Fibro etc....

    I hope this helps in some way cherl450.

    I feel for u. It's tough isn't it.

    I send my gentle hug and ur in my thoughts.

    Zoe x

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