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It's really sad reading everyones posts, I sympathise with you all so much! Although I'm happy to have found this forum to learn from your experiences.
I wonder if any of you out there have experiences methotrexate at all? If so how did you find it? Did it work for you? How about the side effects? Sorry, so many questions.
I have had urticaria now for 4 years, but also suffered with excema all of my life. My eczema is usually controlled pretty well with bathing in emmollients, using moisturisers and steriod creams when flaring. As the eczema has always been there, I always thought I coped with this quite well. It's the urticaria that really gets to me. It's AWFUL!
Anyhow, I have taken cyclosporine on two occasions for 3 months at a time (which worked wonders to my skin!!) however due to side effects of high blood pressure and kidney problems had to come off them. Taken azathiorine (which also worked wonders) and again, had to come off due to side effects, this time liver problems. Now I'm on waiting to start methotrexate, lets see if that works! I have had to give my liver a rest in between meds. Pretty harsh! Also tried montelukast/anti histamine combo, this didn't work for my skin. I have been taking prednisolone on and off for years but solidly for about 5 months solid now, I am so greatful for this just to be able to get by day by day, I'm trying to ignore what these might be doing to my body! I also take 2 x 180mg fexofenadine a day, also chlorphenamine for night time to sleep a bit better.
I have all my fingers and toes crossed that methotrexate will be ok for me, and I don't experience side effects that badly that I have to stop taking it.
I really appreciate all of what my Dermatologist has done for me, and am so greatful to for being looked after. I completely understand that finding medication that works is completely trial and error, and we are in effect guinea pigs to modern medicine. What might work for one person, won't work for someone else. What might work for your skin condition might be a problem for other parts of your body! You just don't know!
Fingers crossed for third time lucky for me, I've got high hopes for this methotrexate!! I hope all of you sufferers out there are getting somewhere with your meds and can keep your urticaria fairly under control.
If anyone has experience of methotrexate, both good and bad, please let me know :-)
Thanks for reading,
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