THIS DISEASE IS SO BAD :((

Hi Joseph 

I am really sorry to hear you having such a bad time with pain in your joints, do you take any type of medication, and do you see any medical people at any time, maybe your collage has some type of health personnel that you could visit.  

i also have a lot of pain in my joints but I have Rheumatoid arthritis you did not say if you also have this, I do have the most awfull discomfort with my sinuses (nose) I use a saline spray to relieve the discomfort with dry nasal passages and if possible try an eye drop for your eyes such as a natural tears.  I hope you get some help with your  symptoms so you can manage your studies. 

Dear Joseph,

This must be terrible for you, I'm so sorry. This might be a stupid question but... have you actually been able to see a doctor and get a diagnosis? You're very young to have Sjogren's syndrome (though it's not impossible) so I'm wondering whether your doctor has looked at alternative diagnoses.

Hi Joseph ~

I too and sorry you're suffering so much with this awful disease.  Sjogrens in the eyes alone is enough to make one go mad but the added inflammation of the joints from this can really suck!  Have you seen a Rheumatologist?  They perscribe usually a steroid for eyes and for the joints to help with the pain and dryness.  Plus for the eyes you can get an eye drop with a gel in it.  Be sure it has that gel in it because that's what's going to help the drops to stick around for a while.  It's a bit more expensive but you'll use it less and less.  Also, at night, you can get an eye ointment to put in your eyes so you won't wake up with that pain and dryness that hurts so much.  If you eyes become so dry (as mine did) you can injure your cornea.  For me that cause temporary blindness in my left eye.  That's why the ointment is so very and desperately needed.

For your joint pain, I suspect that the Rheumi will give you something for that until you go into remission, and hopefully you will do just that.

I wish you good luck and again, I'm sorry you are suffering like you are and at such an early age.  Please do not stop until you see a Rheumi and they dx you with this disease and give you meds to take care of it.  Meantime, get those drops and help yourself before you have worse effects.

Warm regards,

Frustrated

I apologize for the repeating of my messages.  It's a glich in the system and I've asked the MOD to remove all but the initial one.  Again, not my fault but sorry you had to read and read lol

Warmly,

Frustrated

Hello Joseph, im sorry what a horrible hard time your having at the moment with this disease. Try to rest if /when you need to!! This is the only way to replenish any energy your lacking when fatigued. i know it can be frustrating  & worrying missing things like  school, i have the same not being able to get on with things i would like to in life. Can you have some work sent home, so you can do some when your feeling up to it?  Are you taking any painkillers for your pain? Keep your faith and talk to God to make some peace in your life. I will be thinking of you & praying you have relief in the near future.

Just another small thing, you need to see someone to get the right help with drops. But in the morning I wake up not wanting to open my eyes they are so uncomfortable. My Rhuemtoligist gave me little tip that helps a little. Warm a flannel or cloth & hold it over you eyes in the morning. 

i take drops and it doesnt work ( i go  Rhuemtologist he tell us to i should go through blood test but my family didnt take it...i wait for my mom because she is the one who understand me ( i been experience this in two years..i need more advice what should i do .. im not being diagnose but some of the symptoms i experience it ( please help me 

oww its not about suicide ) i am a child of god .. i am a fighter in this world.. sorry for misunderstand my words... "i will be a good boy at the last of my life" it means i'll be a good boy until i become old...i will make my mother proud ... my mother is working in hongkong she will save money to  cure this sickness..... this sickness cannot defeat me... filipinos are stronger thats why i am strong...

oww thanks for the reply and giving your little time to me all of you ( i stop go to school right now.. i have 5 months of vacation ..please give some advice i need get rid of this dry eyes,joint pain.nasal dryness.. in my times (especially in highschool) i take marijuana and i smoke ciggaretes..this the most regret of my life why i do that thing -___- well i am just teenager and i didn't the right path..but right now sadly to say i need to be cure..please give some advice..my mom will come home in march it takes 5 months to take a blood test..my family cannot understand me (( only god and me knows what i've been through with this pain...