This helps my pancreatitis

Posted , 4 users are following.

Hello:

Wanted to find a forum where I could potentially help others. I have chronic pancreatitis due to my gall bladder being removed. If you are reading this you know the disease sucks. I am a non-drinker with a poor diet. What helps me a lot is drinking water. Great example was tonight, had excruciating pancrease pain, grabbed a bottle of water and chugged it. Gave me relief in two minutes. I normally now drink 64 ounces of water every day, NOT to be healthy or follow a trend, I do it simply to help keep the pancreatitis at bay. By nature I am a coffee, tea or coke drinker, anything but water. That has now changed.

Not saying drinking water will cure your pancreatitis, just saying it could help reduce the pain significantly. When I eat a high fat meal and I realize "oh no this is not going to end well" I drink a lot of water and it helps. No idea if this will help others, only hope that it does.

Wanted to point something else out that I have experienced. Normally I eat ok, but say around the holidays I go off the rails and eat a lot more junk than usual it will take a couple of days to have consequences. Meaning I can get away with eating a lot of junk for maybe 1-2 days, but 3 days and I will feel the pancreatitis coming on quickly. So.....I try and keep my poor eating down to two days in a row.

I make no assumption that your experience will mirror mine, but....if you are in pain, would it hurt to drink two bottles of water in a short period of time to see if it helps? If I thought it would help ease my pancreatitis pain I would walk naked down the street, thankfully for my neighbors no evidence that would ease my pain. Give it a try, unless for some medical reason it's a bad ideal to drink water. I wish you all well as I know how bad this can be. Cheers! Matt

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  • Posted

    Hi I've recently been diagnosed with chronic pancreatitis I feel ive just been left in the dark with strong painkillers , i dont take as im not in constant pain .

    I have a blockage that is calcified in my digestive duck the specialist didn't talk to me about it ! also found a nodule on my left lung but its only tiny so he will do another x Ray end of month! All of this inflation I was told in a letter therefore I've been unable to talk about it and find out

    ontop of all this I have chronic nerve pain and at the moment its horrendous ! I was hurt at work about 2 week ago I work in mental health and ended up being thrown against a door My head bounced of the door my back hit the floor then my head bounced my doctor says its whip lash And im thinking its what has disturbed the nerve ending in my spine top of neck ..

    I'm just so fed up in gona go see doctor on morning N tell him it's becoming debilitating ,sorry to go on x

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    • Posted

      Hi Yvonne I'm sorry about what's happened. Even when armed with knowledge about a diagnosis of pancreatitis one can be left feeling quite helpless with the lack of control that can result.

      At least you have your situation documented and you'll be seeing your specialist again soon so you can (and should) go through every single bit of that letter with him/her so you understand what's happening to you and how best to manage it.

      With regard to the incident at work resulting in nerve damage to your neck, that's something you don't need. I hope it was documented as a work place incident, that's very important, and I hope you recover soon.

      Pancreatitis can cause one to be depressed all on it's own and the fact that you're working and not taking unnecessary painkillers is reason enough to congratulate how you're managing. To have the debilitating added work-place injury as well, wow, just wow, its understandable you're feeling down. Do address the depression, don't let it

      latch on, you can sort this. Good luck.

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    • Posted

      Aww what a lovely response to me i Thank you x

      My daughter keeps at me to have a break ,some time to me and to relax , unfortunately I'm not a resting type and i need to paint my kitchen ceiling so this would be a part of my break lol I'm murder always at it ,.

      I was a bit upset , annoyed with the specialist as he says it through Alcohol abuse ! I haven't drank for 15 year !

      I personally think its through this blockage I have I've been going to doctors for over 10 yr with gastric problems never had z scan just a endoscopy revealing I have Barrets Ostoghpeus,? ,spelling might be wrong ! Im on nights its 4.15 am here therefore treated me for IBS x

      I really wish you all the very best on this pancreatitis Journey xx

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    • Posted

      Thanks for your kind words. I don't know how the whole alcohol thing works, whether it makes a difference if you stopped years ago, a good question for the specialist actually.

      I've never consumed alcohol in my life, or eaten a fatty diet, I was born with a dodgy gene that may have triggered my CP.

      I was so embarrassed when I went to my first gastro appointment after my CT scan. I was greeted by this bellowing gastro guy who loudly abused me before I even got into his office, the whole waiting room heard him. He was going on about when I had my last drink and I was totally blank because I thought he was talking about water and was terrified. I didn't even know I had pancreatitis at that point. He just had this disgusted look on his face and screamed at me the whole time. I think he assumed I knew I had pancreatitis and must have been a drinker, not that I think anyone deserves to be so disrespected drinker or not.

      Thankfully he wasn't to be my doctor and shortly after my pancreas

      specialist arrived and the rest of the tests were done and he explained everything beautifully. I hope you find an understanding someone too. You really do need to learn to relax, stress will upset your pancreas as much as a fatty lunch.

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    • Posted

      I am gona tryn relax more like completely relax , i going camping in August thats always fun we are almost on the shore ,it's ace , i dont rest up much as I take my granddaughter, but she's no trouble we fly the kite play games, have a fire in the fire pit, she can just run off N play So safe , looking forward to it

      I was warned that people automatically thinking one is a alcoholic or drinks excessively I am not having this specialist writing this on my notes!

      I truly believe that because this gallstone came loose , perhaps one of the times Ive been vitally ill but just got into my bed , ah well can't change what has happened ... take care x

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    • Posted

      Yvonne: Sorry you have had a bad month(s). Suggestions are easy to make when I'm not in your shoes or in your pain. But I will make one.

      My wife has Parkinson's so I have some experience talking with Doctors. Here is my suggestion, make the assumption you have only sixty seconds to talk with your doctor. If that is the case every second counts. To prepare make a list on paper of your medical issues starting with the most urgent and work your way down to the less urgent. Once you have them written out on paper then add detail\information to the list. Because every second counts, any word that does not directly impact how the doctor will treat you leave it out. I do this with my wife and our list goes through many revisions. In the end we have a concise list of the issues and just as important what we want from the Doctor (if we know, often we don't know). In the end we have a list, no paragraphs.

      If you have your list and you get fifteen minutes with your Doctor and were prepared to have only one minute, you will be pleasantly surprised. Keep in mind doctors are often over worked, they are thinking "what is the problem" and "what is the fix". The clearer we can communicate with Doctors the better chance we have of getting our issues resolved. I realize their is no magic in your situation. I wish you the best and hope things work out.

      There is some type of crazy auto correct used for this website, it's like playing a game when you read posts trying to figure out what the author mean to say.

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    • Posted

      Hi Mark25963

      That's a very good idea and ultra necessary if you don't want to leave the surgery with the most important issues dealt with.... I have been doing that through necessity since just going to the surgery set up anxiety situations and I'd forget some important issues the rush. Good luck to Yvonne86771.

      All the best to you and your wife 222Claire

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  • Posted

    Thanks for sharing Matt, yes drinking water is important. If only that was enough to keep everything under control. I have Chronic too, Auto Immune, mine isn't too bad

    really as far as pain goes. I do watch my diet, eat low fat. You should really eliminate junk food as Chronic Pancreatitis is progressive and you don't want to jump on that slippery slide if you can prevent or at least slow down the progression. Digestive enzymes (Creon) help me a lot as I live with chronic malabsorption issues. One needs

    to drink water when taking Creon because it can cause constipation so that's my

    incentive as I really don't like it, makes me nauseous. You have a lovely upbeat vibe

    don't lose it. Take care

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  • Posted

    Reefsider thanks for the kind words. Water is not a cure, but it does help me. The one word that scares me is word you used. Progressive that words scares me and to your point, should try to eat better as once the pendulum gets to a certain point I'll have a much larger problem than what I have now. Thank you for telling me what works for you, I have taken notes for the future , when things do get worse. Unfortunately, not a lot of "good" therapies\medicines to treat pancreatitis. I don't have auto immune issues, but I realize those can be brutal. Hopefully they can find an auto immune drug that helps. You know, the issues with auto immune drugs is they almost always come with side effects. Then it's a case of is the cure worse than the disease.

    Take care !

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  • Posted

    Reefsider thanks for the kind words. Water is not a cure, but it does help me. The one word that scares me is word you used. Progressive that words scares me and to your point, should try to eat better as once the pendulum gets to a certain point I'll have a much larger problem than what I have now. Thank you for telling me what works for you, I have taken notes for the future , when things do get worse. Unfortunately, not a lot of "good" therapies\medicines to treat pancreatitis. I don't have auto immune issues, but I realize those can be brutal. Hopefully they can find an auto immune drug that helps. You know, the issues with auto immune drugs is they almost always come with side effects. Then it's a case of is the cure worse than the disease.

    Take care !

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  • Posted

    Thanks Matt. I think any experience of others is useful. I also have got more conscious around water drinking. It has always been a weak area for me. Cold water is a problem for me so I tend to drink it warm , but not too hot. Any water drinking is a huge help. Do you get nausea on waking? A bit like morning sickness, but I wouldn't expect you to have experienced that! 😃 Thanks ...222Claire

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