Posted , 5 users are following.
I was 10 years old when I noticed that something was wrong with the inside of my thighs after, a volleyball game. The worst part of it all is that I had to show over 30 doctors until one finally gave me these words "Hidradenitis Suppurativa" I eventually lost count on how many times I was told that I had a STD or that it was cluster of ingrown hairs. The man who finally gave me this word completely crushed me on that day. He said that the only thing that I could do is take antibiotics to keep the cysts from recurring. He was also nice enough to tell me that this disease isn't one of importance to cure and I would live with it for life. I am no longer fat but, it didn't seem to make a difference. I am lucky enough to have discovered at an early age that soaking the area in peroxide helped me so it has not spread to other areas. These antibiotics are dreadful... I can't be in direct sunlight or I pass out. If I don't take them, I get a reminder of how much pain I used to be in. Obviously, I can't be on antibiotics for very much longer. I've been taking them for 3 years and I'm almost 24yrs old. I've been to so many places trying to find one MD who won't say that there's nothing to be done. My joints are inflamed and of course, my doctor says that I have rheumatoid arthritis...(which i think is b.s) My gynecologist is the only one who seems to care about my daily health. My hormone panels are off the charts and I actually vomit throughout my period ( the rare times that I do) because, the cramps are so excruciatingly painful. I go through bouts of depression as I assume that all of you do. It's not about the physical beauty for me. I have people who love me no matter what I look like. I'm having problems with the fact that I feel really bad 90% of my life. I think to myself that if I feel like this at 24, what kind of life will I lead? my parents are wanting me to go back to the relentless search of someone who can actually help...
I'm just plain tired at this point and feeling unfortunately hopeless.
0 likes, 9 replies