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This is hell. Inner ear damage/ disturbance

Posted , 6 users are following.

c4013
c4013

I have seen a ent specialist now twice can you ask for a second opinion, does anyone have any advice. Dont feel like I was listened to not given the opportunity to go through my concerns. While i fully accept that the consultant could be 100 % correct that rehabilitation is the only way to combat this. I feel that other issues such as chronic sinnus problem which I think may be hindering this have not been considered or treated. I am probably talking nonsense. I know these specialists must see this all the time but when I interupted the specialist with a question . He told me I was making him very angry. Bed side manner may be lacking but perhaps hes right. But i never really got to speak about any of my concerns fully at all. What does anyone else think is it worth trying to see someone else even if they probably tell me the same, i dont know just feel all at sea in every sense of the word. Would be grateful for anyone elses view on this. I fully appreciate that only people who have experienced this horrible condition can appreciate the anxiety and way it effects every aspect of life.Also has anyone any advice about what has helped them.

0 likes, 23 replies

23 Replies

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  • kaykay1972
    kaykay1972 c4013

    Posted

    Hi 

     You re not alone. Most of specialists are in a hurry to reach a diagnosis and get on with the next patient . The vestibular appratus diseases can have varied symptoms hence the ENT or neurologists already know what you re through . As it is the disease causes a lot of anxiety and hence one can feel irritated at smallest of inconvenience.  Believe me this happens to all of us . I went for a online specialists website health care magic . They listed to me patiently I uploaded my reports . The Dr confirmed the diagnosis. Do use such sites to ask all your queries which remain unanswered in Dr s office . All the best 

    • gillian76726
      gillian76726 kaykay1972

      Posted

      can I ask what you mean by om line specialists website health care? are you in UK?
    • kaykay1972
      kaykay1972 gillian76726

      Posted

      Hi ,

           It s a website so it can be accessed from anywhere in the world . i must say that the Dr s are professionals. And you re not supposed to diagnose your self with help of virtual Dr s . I used the site to calm my nerves after the episode of vestibular neuritis. It worked for me 

  • brenda71967
    brenda71967 c4013

    Posted

    Hi c4013,

    i am so sorry you are feeling like the rest of us. I have seen 4 ENT doctors and they did all the tests and the only thing they can find is inner ear damag. They don't know why . I did Vestibular Physical Therapy for 4 months and he sent me away because it was not helping me at all.a waste of time and money. I have been fighting this for 1 year now and still no answers !!!! I had a rude , insensitive doctor too. I wanted to run out and cry after 2 minutes of talking with him. I am not having any luck with doctors. I have given up on them. I am miserable everyday and I have to work thru my days. It's very hard and miserable. No answers and it's the same day over and over. I have ringing in both ears, fullness in one ear, and vision problems in left eye. Headaches and severe anxiety due to my symptoms. Good luck and keep us posted. SOrry you feel bad

    • gillian76726
      gillian76726 brenda71967

      Posted

      HiBrenda, 'only ear damage'!!! That is. O small thing.  You need to get a referral, telling your GP yoau want a second opinion. First do your research I. Your area, of hospitals, look up,the ENT depts and you will see the names of the doctors and the. Research them, am not saying this is fullproof as they can has great CV's which isn.t everything. also look for reviews on the hospital, and if poss the dept itself. MWorse case scenario get a referral to a big hospital ie In London, as you are allowed under choose and Book, but that may change so you need to,do,it soon!
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