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this is Not Good

Posted , 8 users are following.

jane08222
jane08222

I am 71.....never heard of lichen sclerosus....and for the last seven months I have tried to control it, make the sand paper feel go away...the pain.....tried to stop or at least slow this horrible disease down.....the Drs take one look at my age, and pretty much dismiss everything I say..I am depressed, my husband and kids are clueless, but want to help....anyone else going through the same emotional/physical things???

1 like, 20 replies

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  • Cheetah
    Cheetah jane08222

    Posted

    So sorry to hear that you're suffering with this, Jane.  Have you seen a specialist?  GPs often don't know enough to treat effectively.  I'm 72 now and one GP I saw about the symptoms even asked if I used sex toys!  Please ask to be referred to a dermatologist - not a gynaecologist.  I was lucky to see a dermatologist who specialised in vulval problems.  It was only when I asked to be referred that I was given the correct diagnosis (lichen planus in my case, not lichen sclerosis) and a regime to follow for treatment.  Do you have anyone who could go with you to the doctor and could provide moral support?  I hope that things improve for you.  Take care.

  • martha91317
    martha91317 jane08222

    Posted

    I am 73 and have had this several years. I’ve been seeing my gyn every 6 months. A couple of weeks ago she said she wants to do a biopsy. Said she saw a red “bump” that was a little larger than last time. I go this Wednesday. I’m so scared.
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