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i had a sudden onset of swelling accompanied by 5 clots in my right arm and upper chest - i was diagnosed in the ER with paget-shroedder syndrome/venous TOS.
i had a thrombectomy to remove 4 of the clots, one was stuck under my collar bone. i had my first rib removed to access that, i also needed my subclavian vein patched as it has split, the rib removal also caused a pneumothorax - fun!
painful and unexpected
a year later i am having issues in my esophagus - lower neck, anyone experience this post op? having a contrast CT this week, ive been uncomfortable for almost 4 months with burning/lump feeling, ENT thinks it may be related to TOS surgery.
interested to hear anyone elses experience
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