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I'm hoping to hear from anyone though realize it's an old thread, that could actually be helpful. I'm writing in regards of my boyfriend who has a major adversion to doctors and hospitals, likely stemming from getting a transaxial (through armpit) surgery for artero TOS when he was in high school, a year apart on either side. He will be 26 in April and had these done when he was 17 and 18 when his arms swelled drastically and lost feeling and I believe grew pale suddenly a while after getting serious about weight lifting. I know his doctor told him it was an experimental surgery, though it could've been his first time as it was performed in OSU medical, a teaching hospital in Ohio that I doubt gets a lot of traffic for the condition. I know they told him he wouldn't be able to play drums the same for a very long time, if ever, but he pushed himself to be performing again within 6 weeks by duct taping the sticks in his hands (his band was actually touring a few states, he's pretty good and it is definitely an arm intensive activity) but also remember stories of him not being able to hold a pencil in school. I've actually held the pieces of rib he got removed, his mom had one made in to a necklace for his last birthday, and it seems they took about 2 inches to make a gap? From what I've read on here it sounds like in other cases the surgeons chose to remove much more?
I'm asking because he's recently told me he still feels it regularly in his left arm, muscle weakness/pain and that nerve tingling, his hands shake often, he complains of headaches in the back base (like directly inferior to external occipital protuberance) which I've read are a symptom? I just wanted to know if in your opinion/experience if this was common? Like a ghost pain or result of nerve damage, an unsuccessful surgery? I wish he would talk to a doc about it but refuses, he has done a lot of drumming/manual labor since high school, I'm not sure if that could've made things worse, and I don't have every faith in the hospital or surgeon, though he says he was a great guy he sounds inexperienced...his family didn't have another option financially.
I was hoping to hear of any ways to lessen the pain he is still living with or if this is possibly more serious than he lets on, or maybe if you guys have had the same things happen? It's just been over 8 years and I would hope the full recovery would be done by now but I'm no expert, and if he needs another surgery to resolve this idk I would have to really talk him in to even getting it looked at again.
Thanks in advance!
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