Thoughts?
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Hello everyone! I am male, 28 in. a few months.
I have been on a long journey seeking a diagnosis. In 2015 I had a swollen lymph node in my groin that been there for months. My gp sent me to a surgeon who discovered I had both a swollen node and hernia. He repaired the hernia with mesh but failed to collect the lymph node. said it "burst" which meant it was an infection and not to worry.
2016 a new lymph node appears in my groin along with balanitis. GP useless. Urologist useless. both acted as if they had never heard of it before and a urologist should have definitely known! Urologist said sometimes nodes just swell. Balanitis cleared up but not the node.
2017 a year passes and the node is still there. They biopsy the node and find it to be reactive only. the node was causing pain so I was happy to have it out either way. 1 month after biopsy a lymph node in my left armpit swells. Doctor suggest as possible allergic reaction so I change everything. soaps, detergents. even toothpaste. This node cause excruciating pain at times. sometimes causing severe swelling. oddly enough if I go for a run or ride the stationary bike the swelling goes down within 30 minutes. I have periods of time where it goes away completely.
2018 symptoms continue same as 2017. I am tested for everything HIV, STDs, Inflammation, several cbc and metabolic blood tests. Thyroid levels and thyroid scan. The thyroid scan finds a small semi-solid lesion. follow-up was not recommended. due to new onset of abdominal issues had colonoscopy, endoscopy,
2019 two ER visits due to the swelling and pain in my upper left armpit/ breast area. Pain is now worse than it has ever been. In addition pain has now creeped up in myleft shoulder, and right leg. the left shoulder usually hurts exactly when armpit hurts. the leg is pain above upper right calf right above the pit if the knee. Doctor refuses to pay it any attention.. just keeps advising me to take more aleve. A CT of chest performed, they found two 2mm nodules, they said this is common for people from ohio, no follow-up reommended
it is now almost 2020 and. still no diagnosis. should they biopsy another node? suggestions on tests I should request? my mind has me on many things, pancreas, lymphoma, tumor of some kind somewhere, or even a histamine issue.
all thoughts are welcomed!
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johnnyh192838
Posted
I had an ultrasound in February that stated "no malignancy identified" further down it stated "multiple abnormal lymph nodes". my doctor at the time overread the abnormal lymph node part I guess.. because he told me no findings and that all was good. when meeting with a different doctor last week she noticed the reference to my lymph nodes. I am now booked to see a surgeon tomorrow for biopsy. I will keep updating this post so others can learn from my experience.
My Opinion: I have lymphoma and have had it for a while now. I expect stage 3 or 4 at this point. I have pain and swelling in abdomen, loose stools, and pain in joints and bones. I cough with phlegm and have a constant runny nose. I have occasional night sweats. I have not lost weight and am still hungry.
johnnyh192838
Posted
My Ultrasound is tomorrow.. nervous!