Thoughts and Suggestions Welcomed
Posted , 2 users are following.
Hello everyone! I am male, 28 in. a few months.
I have been on a long journey seeking a diagnosis. In 2015 I had a swollen lymph node in my groin that been there for months. My gp sent me to a surgeon who discovered I had both a swollen node and hernia. He repaired the hernia with mesh but failed to collect the lymph node. said it "burst" which meant it was an infection and not to worry.
2016 a new lymph node appears in my groin along with balanitis. GP useless. Urologist useless. both acted as if they had never heard of it before and a urologist should have definitely known! Urologist said sometimes nodes just swell. Balanitis cleared up but not the node.
2017 a year passes and the node is still there. They biopsy the node and find it to be reactive only. the node was causing pain so I was happy to have it out either way. 1 month after biopsy a lymph node in my left armpit swells. Doctor suggest as possible allergic reaction so I change everything. soaps, detergents. even toothpaste. This node cause excruciating pain at times. sometimes causing severe swelling. oddly enough if I go for a run or ride the stationary bike the swelling goes down within 30 minutes. I have periods of time where it goes away completely.
2018 symptoms continue same as 2017. I am tested for everything HIV, STDs, Inflammation, several cbc and metabolic blood tests. Thyroid levels and thyroid scan. The thyroid scan finds a small semi-solid lesion. follow-up was not recommended. due to new onset of abdominal issues had colonoscopy, endoscopy,
2019 two ER visits due to the swelling and pain in my upper left armpit/ breast area. Pain is now worse than it has ever been. In addition pain has now creeped up in myleft shoulder, and right leg. the left shoulder usually hurts exactly when armpit hurts. the leg is pain above upper right calf right above the pit if the knee. Doctor refuses to pay it any attention.. just keeps advising me to take more aleve. A CT of chest performed, they found two 2mm nodules, they said this is common, no follow-up reommended
it is now almost 2020 and. still no diagnosis. should they biopsy another node? suggestions on tests I should request? my mind has me on many things, pancreas (also have persistent abdominal pain), lymphoma, tumor of some kind somewhere, or even a histamine issue.
all thoughts are welcomed!
0 likes, 2 replies
harrishill1 johnnyh192838
Posted
Hi Johnny. My disease is totally unrelated. However, my diagnosis was confirmed when the specialist had my blood tested for gene mutations related to PV.
I tested positive for a gene mutation meaning I had Polycethemia Vera. It can turn into cancer. A suggestion is a simple blood test for a gene mutation. Your doctor would know what specialist to recommend and to have the test done. swollen nodes related to cancer probably could be the basis for this test being done. I hope you have success in asking your doctor to see a specialist. Best wishes,
harrishill1
johnnyh192838 harrishill1
Posted
Hi Harrishill1,
Thank you for the message and recommendation. Sorry to hear about your own issue, it sounds challenging! I hope you are doing well.