Throbbing pulse like feeling in spine when lying on back

You're the first person, apart from myself, that I've heard of saying this.

For years I've been trying to explain to various Dr's about the pulse feeling in my back. Sometimes it's very strong and painful for the first few minutes when I lie down, others just like a pulse in my arm would feel.

I had L5-S1 fused years ago, but still have a lot of pain, don't notice the pulse thing standing up, just pain, but as soon as I lie down, ouch!

 

Gabriella44865,

I also had the fusion and I had that before the surgery had to lay on side it can be caused by the disc pressing on a nerve, be careful not to do more damage

Beat of luck as I have been in pain over 20 years and still no relief

Just more pain

Cynthia

Gabriella,

I had a unfortunate accident in physical therapy, a girl was eating an apple while I was in the pool and put me on the jet and threw it on, well it erupted my disc and couldn't walk or hold my urine lost feeling had emergency surgery than it was all down hill after that, some ppl get relief some get more pain, and I don't know why I was dealt this hand but I will be damned if I let pain ruin the rest of my life to pain

Almost thought of ending it after I had a procedure almost 2 weeks ago and my face is numb and good leg is out and I'm not getting no answers on getting this stimulator out,. I will not let pain get me it anymore of my life. Just take care of your issues and be careful of your choices that you make

Take care

Best of luck

Cynthia

Nomore tears

I've been trying to find medical literature about this phenomenon for the past couple days, but there's NOTHING, even though I'm finding tons of forum entries and blog posts about patients who've experienced this...

I was diagnosed at 4 years old with early childhood onset ankylosing spondylitis, which is a rare and more severe manifestation of typical ankylosing spondylitis, an auto-inflammatory/autoimmune disease. This disease causes my immune system to constantly attack my joints, especially my sacral joints and my entire spine, causing lessons of damage. This will usually progress to these joints becoming fused, and thus more prone to osteoporosis, disc subluxation, and fracture.

I had never felt this agonizing pounding of my heart up my spine from my sacral joints until two days ago when I got up from my sleeping position too fast (I was lying flat on my back). I'm confident it is related to my unfortunately falling down the stairs about two weeks ago. My foot slipped out from under me and I fell, landing unevenly on my right buttock, and sliding down several stairs before my left arm and both feet reflexively reached out to slow and eventually stop me. I knew I hurt my spine immediately, because I distinctly felt the force of my falling through it.

All of your posts lead to believe that a "slipped disc" may be the most likely cause of this painful phenomenon. I will continue scouring the databases for validating medical literature.

Thank you all very much for sharing your experiences.

Hi Laura, I too have experienced this heart beating pain in my sacral area I was checked out thoroughly in casualty and a CT scan revealed disc herniation in my spine but the doctor had never come across this phenomenon before. I would like to give him feedback of others stories if you would kindly communicate with me .

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I've dealt with back injuries since 1992. I suffered for years because of lack of correct care. Spent 15 years on meds & epidurals. Finally founf one doctor who knew the problem other that just an "herniated disc". The disc had in fact shattered and pieced were pressing on nerve.He told me he'd operate from the back,pray with me,make a ,2 in. incision and take the bone off nerve. That's what he did and the relief was instant. So incredibly successful. I've had to have that surgery once more for another piece of bone but I was walking not falling down. From time to time when zi don't drink enough water to help balance the spinal fluid I will have that pulsation in my lower back that intensifies with each pulse until it stops. If you're over weight as I am.you can also produce to much spinal fluid which has the same pulsating pain. To little fluid causes the nerves to be inflamed. To much irritates with pressure. Hang in there. I finally have the correct combination of pain meds that I'm not wacked out of my mind and I have control over my like.

I have experienced this tonight like my heart is in my lower back I have grade two Isthmic Spondylolisthesis my consultant has told me I was born with pars defect and have tiny fractures in L5 s1 and a severe narrowing of the nerve running down my right leg. My buttock area is numb and throbs like a dull ache and my leg is weaker and my foot goes tingly and hot on top when things are bad. I also have a bulging disc. I to don’t know what causes the heart beat but it feels like it makes my back move up and down, i can’t decide whether to have surgery as the doc didn’t mince his words and basically said you need nuts and bolts ! I see him the 4th June again after my last app 6 months ago he told me to see how I feel I haven’t improved at all even with all measures taken to improve things now I have the pulse in my back aswell !! Not coping ! If you find out what it is let me know take care 

Did u ever find out what cause this I have the same issue?