Thrombolysis procedure as a treatment for DVT after 8 weeks?

Posted , 3 users are following.

Hello everybody, I got DVT in my arm sad 

6 weeks ago when it was discovered I had a chance to do the troblolysis procedure in hospital but I pulled it down due to bleeding risks and because the procedure recommended in first 2 weeks (I came after 4 weeks). After that I saw another private vascular consultant and he couldn't recommend me the best solution, he was 50/50, so we decided conservative treatment. But I regret so much now about my decision and really want to go ahead with the procedure. Does anyone had or knows someone who had this procedure after 6-8 weeks on blood thinners? Will be grateful for any information, thanks.

0 likes, 8 replies

8 Replies

  • Posted

    Hello Ivan

    Are you in the UK. My first question and secondly troblolysis is not a word I’m familiar with.  Any DVT/ Pulmonary Embolism will be treated immediately in the NHS.  First they do  a D-Dimer blood test which indicates if your blood is carrying clots. Then you are injected immediately with a blood thinner that stops you clotting more.  Then they take you through the procedures to take oral meds for 6 months or how ever long you need them for. 

    It it is very dangerous for you to not have treatment if they have diagnosed dvt/ pulmonary embolism.

    I have been on medication for dvt/ pulmonary embolisms for 18 months now. After the first dvt I developed several large & small pe’s. l’m on injections for life.

    So, get back their & deal with it. The benefits out way the risks. Otherwise your dvt could break off & kill you. Sorry to be so blunt. 

    Cannot understand any Doctor not telling you how important the treatment is. 

    Hope this is enough information & assists you in making the right decision.

    Regards

    Christine 

  • Posted

    Hi Ivan

    We were told that we would not be eligible after the length of time you say., Unfortunately. That is because the clot is too "healed" to be able to get rid of it  with thrombolysis. 

    However, I know of people (actually on this post) who have had not had treatment and then gone on to have a stent because of post thrombotic syndrome - eg the scarring from a clot causes them continued problems. 

    If you do have such problems then that might be something worth investigating. Hope this helps!

  • Posted

    Thanks guys. I am in UK, been on Rivaroxaban for 4 weeks and now moved to apixaban due to acid reflux but don’t see any difference sad the ranitidine/lansoprozole/eseprozole doesn’t help me for some reason.
    • Posted

      Hello Ivan

      I believe you will find you will get interactions between those acid reducing meds lansoprozole/ omeprazole & others of a similar nature. Also, interactions can occur with clairthromyacin or macroglide antibiotics.  Both of those drugs you have already tried are from the same group. 

      There is only warfarin & dabigstran left.

      The reason I’m telling you this is I spent over 10 months very poorly with all these drugs &  then a haematologist discovered I have allergic reactions to all the NOACS as they call them. I now have to inject heparin every day for life.  

      Keep going back back until they find a suitable one. Also, please do your own research with the respective drug companies & the NHS website. You will master your own health that way. Keep on at them until you’re satisfied.  I have other health issues too so my quality of life was affected.

      regards

      Christine

       

  • Posted

    Hi Ivan

    No medical tests.  Visual perception & adverse effects. For example:  Christmas 2016 I was admitted into hospital overnight, for Extreme Breathlessness - Swollen Eyes - Numbness in my face & left side of my tongue - feeling faint all the time.  You will know quite quickly if you have an allergic reaction.  

    Bear in mind these symptoms were severe.  My blood pressure dropped very low too. It was discovered that the anticoagulants were reacting with my normal meds.  One  enhancing the effect of another, this in turn affected my kidney function & I had to see a Nephrologist for a few months until my kidneys stabilised.  

    So then I was on a merry go round to try all the Noacs.  These made me poorly for a long time effecting my breathing quite badly. 

    It was the haematologist they sent me to, having no success with the Noacs, that pointed out I was suffering Urticaria badly on my arms & legs, which my GP thought was bruising, then classified as being allergic to all Noacs from that point on.

    All meds have side effects the difference is knowing when they become a problem.

    I'm pleased to say I now feel better & recovered from my extreme symptoms but do occasionally have side effects with the introduction of a new drug.

    So, don't despair. I am an exception to the rule.  Suffering from Severe Asthma & Copd presents it's own difficulties. My daily intake of Prednisolone has put my adrenal glands to sleep so I have Secondary Adrenal Insufficiency also.

    Hope this helps. Best go back to your GP or Practice Nurse if you are struggling.  It is difficult to have someone to talk to when you are concerned.  I was admitted to our local A E C unit several times before they referred me to a Haematologist. Good luck with it all.  

    Regards

    Christine

    • Posted

      Thank you very much for reply Christine. God bless you, wish you and everyone to wake up one day fully recovered!

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