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Thyca, ruptured eptopic and now more cysts! I could cry

Posted , 3 users are following.

Thycamom
Thycamom

Im posting because Im literally at my wits end

I will try and keep back history short

- diagnosed with thyroid cancer, radiation treatment 2 ops later now clear but on levothyroxine for life and monitored

-since then ive had 2 babies,

-went to a&e after passing out from period pain (most likey burst cyst- sent home after painkillers made me feel better)

- year later my appendix out (was a burst cyst again they mistook for appendicitis til they got in there and saw blood all in my pelvis but they took appendix anyway)

-Ruptured eptopic, DESPITE COIL, lost left fallopian tube, had 15CM pregnancy mass and 11cm cyst, lost a lot of blood, internal bleeding and so on

So when i nealry died from ruptured eptopic, i signed it all away and said take what you want, I dont want any more children I had the coil and it failed. It scared the life out of me. They apparently heard save as much as you can..? So they saved my ovary and its thanked us all by growing another cyst in less than a year.

That was beginning of last year, since then ive been totally paranoid. I knew I had another cyst, same symptoms as eptopic. Except I know im not pregnant this time.

So since Christmas I told them I have a cyst, I was on waiting list to be sterilised so they said we will do the two together. Had a scan in the mean time which said yep 6.5cm cyst

So I went in yesterday after suffering so much these last 3 months with bladder pressure, hip pain, tummy swelling- you read ovarian cyst symptoms ive got 'em! 

get all my wrist bands on, speak to anaethatists, nurses, surgeon comes... and says what cyst? we just have you down to be sterilised? (as no contracption left for me and dont want any more children and eptopic scared the life out of me).

SO my op was cancelled

after waiting so long, they have promised me it will be done as an in-patient in next 2 wks as she could feel cyst was large and she was not confident to do it in day surgery which is fair enough but why did no one notice this before??

I am petrified of the cyst rupturing like the eptopic, I still cry when I see an ambulance as it brings back horrible memories. I probably have PTSD thinking about it but who wouldnt? I nearly died and never felt pain like it, even after 2 babies.

Ive got a scan Monday and I know the cyst has grown, I just cant wait much longer and am so petrified of it rupturing in the mean time.

I feel like my body is not my friend and I dont trust it. And also I dont want to keep on at my poor family and friends who I am a constant worry too all the time

 

2 likes, 3 replies

3 Replies

  • eldk75
    eldk75 Thycamom

    Posted

    Hi

    I'm so sorry to hear that you have had such a horrendous time with it all.

    What would you prefer to happen? If you would rather be sterilised than go back to your gynaecologists and make them listen to you or even ask for a second opinion.

    There is nothing worse than feeling you are about to have all your prayers answered just for it all to come crashing down. I had a complex cyst removed in January, only to discover at the end of February that another one has already grown back. I have no real options, but feel there is only so much my husband and friends will listen to me.

    The very best of luck. Xx

    • Thycamom
      Thycamom eldk75

      Posted

      Are you having another op to remove new cyst?

      I still want to be sterilised and they have promised me it will all be done (sterilise and cyst removed) as an inpatient in next 2 weeks and have ultrasound booked for. Monday which I know is quick but so frustrating when I thought I was going to be done Wednesday.

      I know what you mean about family and friends, I feel like all I ever do is moan about the pain I'm in or getting appointments which they are sympathetic too but I get that it's pretty boring now as they are not living with it x

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