Thyroid function test

Posted , 2 users are following.

HI

My daughter got a thyroid test done and it says deranged with TSH 13.00 and TPO antibodies 523.7 ....i have googled as i do but just so much stuff .. am i right in thinking this could be signs of hashimoto disease or greaves disease? anything else it could be?

Thanks so much

0 likes, 7 replies

Report

7 Replies

  • Posted

    Hi Leanne, I was diagnosed with Hashimoto's 20 years ago with a TSH of 5 and antibodies in the 400s. I would agree with you in that your daughter could have Hashi's.

    Report Reply
    • Posted

      HI Ruth

      is it easy enough to deal with ?? shes only 9...waiting on a specialist appointment will probably be waiting ages for it though. did you have to start medication for it?

      thanks for getting back

      Report Reply
    • Posted

      Hi Leanne,

      Everyone's "journey" is different, but I was prescribed Thyroxine by my GP whilst awaiting an appointment with an endocrinologist. (Thyroxine is called something different depending what country you are in.)

      Because your daughter is so young, they might adopt a "wait and see" attitude and monitor her TSH level. Really she needs a full panel of thyroid function tests (if she hasn't had this already) including free thyroxine, free thyroxine T4 , total thyroxine and a free T3 test as well as the TSH because the TSH is a pituitary measurement, whereas the T4 and T3 show what is happening at cellular level. Thyroxine (a synthetic drug) provides T4 only so it is possible to still be deficient although meds are being taken. Some people find they do better by adding T3 to their prescribed T4, though if you are in the UK, this natural dessicated thyroid medication is not generally available on the NHS and most doctors don't agree with it .

      It is very early days for your daughter but you do need to know both her thyroglobulin antibodies and her thyroid peroxidase antibodies. It is possible to have one normal whilst the other isn't, so you do need to test both.

      I think that until she has been seen by the endocrinologist, the diagnosis is still a bit uncertain, so I don't think you can do much at this stage.

      I hope the appointment comes through quickly so that you can ask the questions you need to and set your mind at rest.

      Good luck.

      Report Reply
    • Posted

      thank you for explaining all that...yeah we are in the uk and have a holiday to the usa in 6 1/2 weeks ..hoping i was seen before that..i doubt it though.. other than if she gets medication its not life threatening ? i have read about it a lot but sometimes its more helpful asking someone thats going through it .

      Report Reply
    • Posted

      Yeah, being realistic, I doubt that the endo appointment will come through prior to your holiday. Hashimoto's can be life threatening but only if it leads to hypothyroidism which goes untreated for a long time, which then turns into myxedema coma.

      I don't think your daughter falls into this category.

      At least in the USA they have good medical care so I wouldn't worry about anything untoward cropping up whilst you are away, that couldn't be dealt with.

      Have a super holiday.

      And try not to worry too much in the meantime. Until you get a proper diagnosis and know exactly what your daughter's problem is, there is nothing you can do , though reading is always good.

      x

      Report Reply
    • Posted

      Hi Ruth

      yes the medical care in the us is far better ...yes you pay for it but the nhs not that its not great its just been abused and people get knocked back for life saving medication which just isn't right.

      I will try not worry but i know i will i always do ..it was my daughters pediatrician i spoke with she was foreign and was very hard to understand ... i think i will call the doctor and explain we have a holiday just incase she should be on medication as we are away for 3 weeks .

      again Ruth thank you

      Leanne

      Report Reply

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up