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Thyroid nodules and goiter at 28 year old

Posted , 5 users are following.

momofalexis
momofalexis

am new to this site, so hello everyone! I have been trying to find help and information about my thyroid because it is all new to me. Let me start by saying i am 28 years old before i begin saying whats wrong. I went in for a physical about seven months ago and the nurse practioner I see found through examination that my thyroid was swollen. She sent me to have blood work and ultra sound of my thyroid done. The results came back and showed that I had four small nodules, and goiter as well but all my t3 and t4 test results came back as being normal. She went ahead and put me on a dosage of 25 MG of Levithyroxine and we waited a month to have my blood tested again. Blood level came back almost exactly the same but another nodule was found. My nurse practioner sent my to an endocrinologist and he done the same things that she did only he done an ultra sound himself and found another nodule. Theyre not big wnough to test to see if they could be xancerous. I am scared and worried as to what is going on with my body. I am gaining weight every month and I am too tired/sluggish to do anything about it and the nurse practioner I see won't up my dosage of levithyroxine because my t3 and t4 levels are normal. What do you all think I should do? Thanks so much!

2 likes, 12 replies

12 Replies

  • shellyC19
    shellyC19 momofalexis

    Posted

    Hello Momofalexis:

    My name is Shelly and I am a nurse in the USA.  I have Hashimoto's Thyroid disease.

    I was 27 when I was diagnosed and I am now 54. I have 3 nodules that have been there for a long time and I have a goiter.

    Most thyroid nodules are not cancerous (benign) and some made contain a cellular fluid and can be drained as they are more cyst like.  Then can do a fine needle biopsy of them.

    On the ultrasound  mine were small and  that is also a good sign since if they get big quickly it could be cancer. 

    Having low thyroid problems, you will be sleepy, and feel cold, you may have muscle aches, constipation, weight gain, hair loss, brittle nails and dry skin and brusing.

    You need some extra blood work. Ask your doctor to do TPOA antibodies test, Vit D level, B-12, sodium, potassium, Magnesium, calcium, iron & ferritin levels.  We need our minerals to be good and we need our ferritin levels in good shape for our thyroid med.  Also many of us with thyroid problems can be low in Vit D, and that can be replaced.

    I have a type of Hypothyroidism that runs in my family and it is autoimmune and knowing if you have the antibodies  will help to diagnose if you have it.  It can also make your blood look to be in proper order but things are not.  Sometimes a virus called Epstein-Barr "MONO",  can cause damage to the thyroid. 

    Take your Levo 25mcg an hour before eating and do not have food in the belly, as food blocks the medication.

    Get a copy of your blood work and post your TSH, T4 and T3 levels so we can see what is happening with you.  You are allowed your own medical reports by law.

    I hope this helps, ask any questions you need to.

    Shelly

    • momofalexis
      momofalexis shellyC19

      Posted

      Shelly, thank you for your reply! I am going to make an appointment after the holiday and have her test what you mentioned. I will ask for a copy of my blood work as well and I will post it. I appreciate your help, I have really been lost as to what to do. I slept all day again today until 5 pm. I have a 6 year old daughter and a husband who miss seeing me when asleep all day. It helps so much to have people to talk to that have thyroid trouble because they understand and most of you know much more than me and I am glad for people that are willing to teach me what I need to do to get help. Thanks again, so much!
    • LAHs
      LAHs shellyC19

      Posted

      Thank  you so much for helping people Shelly, and today in particular momofalexis. Sometimes these posts break my heart and after momo's reply to you, it is broken.
    • shellyC19
      shellyC19 LAHs

      Posted

      Hello LAH,

      I am glad to help where I can.  I feel and know you do also feel, for people and if we can help by information sharing, then we can prevent  them feeling worried or alone in this all.

      XO Shelly

  • barbara98940
    barbara98940 momofalexis

    Posted

    Hello, I would have replied earlier but for some reason I didn't get an email from patient to say a new discussion had been created.

    I would like to add to Shelly's advice re blood tests: also ask for selenium and zinc levels to be tested. If this isn't possible it's worth taking a multivitamin that has these in. Ferritin, Zinc and selenium are reported to be essential to thyroid health.

    Best wishes Barbara

    • momofalexis
      momofalexis barbara98940

      Posted

      Thank you for your reply Barbara. I am sorry I've not got to get back on here until today. I'm a teaching student about to be finished in about 6 months and we're loaded with things to do. I am going to make a doctors appointment ad soon as I get a break and I will definitely have her test these things ad well. Thank you all for being so helpful!
    • barbara98940
      barbara98940 momofalexis

      Posted

      That's what's useful about this forum - it's good just being able to pick up messages when our busy lives allow. By the way, you won't find ferritin in a multivitamin as it's 'stored iron' that is created when our bodies process iron. Try and ring for a GP appt today as they get very busy around Christmas. I'll PM you a good multi-vitamin. Good luck with your studies.
    • cindy72112
      cindy72112 barbara98940

      Posted

      Barbara

      I received an e mail from a friend saying exactly the same that is the importance of zinc, ferratin,selenium, iodine, salt for thyroid health and the absorption of iodine.

      He sent me a video on the subject which was very interesting.

      I am scared of buying any vitamins etc online.

      Cindy.

    • barbara98940
      barbara98940 cindy72112

      Posted

      I understand and share your reluctance to buy online. So you can imaginw what I felt like in june when I developed allergies and intolerances to the fillers (mauze starc) in all the synthetic thyroid meds. The NHS wasn't responding quickly enough to get my tested and compounded thyroxine made for me, so I ended up buying NDT (Natural Desiccated Thyroid) on line from a supplier who classed it as a 'nutritional supplement' so that people in my position would be able to purchase it. Scary. With the multivitamin company I recommended, I've been using them for many (25?) years. You can just use the link I sent to look up what the multivitamin includes, print it, then walk into a health food shop and ask if they've got anything like it. I was tring to save you the effort of the hours of research I did to find a comprehensive one.

      By the way be careful of iodine as too much of it damages one's thyroid.

    • cindy72112
      cindy72112 barbara98940

      Posted

      Dear Barbara

      Thank you very much for the information. I am searching my e mails to try to find the link you sent to me.

      I appreciate your efforts to save me time and am grateful to you.

       

    • cindy72112
      cindy72112 barbara98940

      Posted

      I am having a problem trying to locate the link.Barbara

      Is it possible to re send it please?

      Many thanks

      Cindy

       

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