Posted , 5 users are following.
i am 55 female have been tested 8 years ago for thyroid function after having a gynae problem! would you believe , no symptoms . not complaining of any.
perfectly healthy. looking forward to rest of life .
though i begged to differ over the diagnosis of being underactive with a borderline test result of 10.5 i was told yes it was necessary .
against my judgement i took thyroxine from day one i noticed blurred vision feeling out of things. started feeling cold . heart palpitations . pains i body so severe i stood and cried . burning mouth syndrome . carpal tunnel syndrome . feeling down . rashes . and this was supposed to improve things? though i saw doctor about she did not tie any of it in with the drugs i was taking as thyroxine is natural and harmless.
this i know not to be true now .
years i have been left suffering . even worse when had no symptoms at start . work became impossible. concentration. headaches nausea
in fact i could have lost my job it was that bad .
my gp finally gave up even trying . i saw a specialist after a year who said i may need increase. as i felt well to start and now ill hard to know how that would help!
it didnt i got worse.
he saw me again as i was desperate and laughed me out of his office at the suggestion that this may be caused by drugs, its harmless he said .
he said i was having an anxiety over something so trivial which i wasnt but the pain was getting me down . he said he couldnt help me as tests were fine tsh nearly normal .,
i was then left nowhere to turn . gp treating me for anything that i complained of as a separate issue . joint pains .pre arthritic tests . dizzinesss possible ear infections . headaches eye tests . stiffness joints put down to being old at 47!
this carried on . me knowing things were very wrong . blaming myself for ever agreeing to take pills when new i was ok . regrets
mentally in a right state.
finally last year putting uup with headaches . dizziness. pain . things got worse as i had sinus probs . headaches. feeling tired cold . and ended up lifeless sitting in chaI staring into space for 2 days crying .
my husband didnt know what to do .
couldnt work . felt brain dead. scary and i realised any worse i would be in a coma state. wasnt this the worst state you could getin with thyroid untreated? been off med and fine for a year as dr on phone said i may need hrt perhaps? or change of med. this is first time anyone suggested that in 7 years .
i stayed off med until oct. as i demanded to see a different specialiost at mk this time .
they immediately said that these things are usually down to side effects try liothyronine . low dose see how get on
first day severe pains all over body in bones soreness . worrying on its own . then stomach bloating . irritable bowel . headaches , mood changes . muscle weakness . couldnt lift weights or finding dificult to drive. tried to assume this would go eventually as knew my options for treatment are few .
this got worse so i came off . saw spec again . said i had to take something as thyroid wont keep on much longer . some people dont get on with any treatment . what happens tothem i dont know?
anyway i went back on , pain continuos saw new gp who admitted yes pills dont suit everyone could be that , tested me for esr and bone probs .
esr came back raised . retested month later must have been lower .
saw specialist again by this time levels were .8 less not much . he said try bit higher dose which i did ,
couldnt take as pains so bad . took more in desperation see what happened . finally i got changes in mood cold tired again . and last weekend ended up with severe heads. back in chair off work week . crying . no energy , lifeless. no point to doing anything even if i had energy to .
rang hospital specialist in state . told to come off med as if side effects best to soon as poss. yet i had been suffering it with my gp for 7 years and they think it has no side effects!
this i did anyway as i have no desire to be in a coma and thats next thing i am sure . now i have had to get the drug out of my system slowly iam returning back to my normal happy self energy back no pains. and i just keep wondering why i ever needed to do this to myself . i was so scare to come off the thyroxine when it reacted badly . i asked and asked to come off but was told to give it longer,
i did 7 years longer . had the gp known enough about the trratment and poss side effects i could have been saved all this misery,
but more than blaming her is the fact the consultant in northampton where i live laughed me out of his office at any suggestion of it being side effects . his words were he could do nothing for me take me home!
the anger i feel now is really upsetting as i have no outlet for it . mk have been honest and brillant , really caring i not sure where i will go from this . i feel i would like to wait til i get any possible side effects from not ttreating thyroid now. if i have symptoms which i should at tsh 38 then i would be glad to be treated as have experienced the worst symptoms with treatment .
it has all worked in reverese . started well ended up headng towards coma . as my husband told them when you think she should be ill she is well . when you think she well at 2.5 tsh shes ill .
i dont know whats happening here whether i need treatment or not they say i do . if it had effect of an aspirin like my 2 sisters say then i would take willingly .
it seems worse than a pure allergy side effects to me.
does anyone know whats going on and can help ??? confused . my next appointment is not util june they are going to look into it then . but i dont want to keep testing drugs out being ill . my only daughter gets married next april and i dont want to be in a vegetative state like that and be too ill to go . something i have looked forward to so long .
i wish i could turn the clock back and had never done what gp advised . i thought it was harmless too but not the case. for a lot of people from what i hear. just would like my life back . constantly unsure of whethe it will last now i feel better every day not on them . not worse . it could all end like they say it will but least i will know as been through it all in interests of health , apparrently? thanks
0 likes, 9 replies