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Hi guys. I'd really like your advice as I'm not coping at the moment with my health that is just deteriorating and going further downhill. I started getting a lot of symptoms in late 2011/early 2012 after a period of stress when I kept having panic attacks about my relationship and then was hospitalised with a heart rate of 170. They were satisfied that it was psychological, and I was sent home. But I continued to be in emotional distress as I have an anxiety disorder and depression, and I noticed some sudden physical sensations that I'd never had before. These were mainly indigestion/acid reflux, and a head that felt strangely fuzzy, a little light, but heavy at the same time. I became sensitive to heat, to the sun (it made me feel light headed and dehydrated), and noise and light. Muscle pain also started, and I got weaker, very weak. 6 years on, I'm still dealing with all of these things. The acid reflux is the worst and I'd open the sky and move the heavens to be free of it. I've had an endoscopy for it, a barium, and now a manometry. I haven't had the results of the manometry yet, I'll find out when I go to the hospital in March. PPI's have never even touched it, and I've been on them all at least twice, including a H2 blocker. As for my head, I was given iron and vitamin D, as I was fairly low on both, though not much, but they made no difference to my dizziness. I had a 24 hour blood pressure monitor. Totally fine. And as for my muscles, "exercise more."
Last summer it was suggested that I might have celiac disease, so I had a blood test. Negative. A couple of months later I saw the gastroenterologist at the hospital, who sent me for another one as I tick so many of the boxes. Negative. I've read up on the disease over the last few months, and it's really stuck in my head as it describes my symptoms very well. When I had the blood tests I was eating gluten twice a day, toast for breakfast, and bread with dinner. I wasn't having lunch then, and my snacks were usually dairy. I really want an endoscopy to make certain, but I don't know if my gastroenterologist will go for it as I've had two negative blood tests. I must say, my dad has had chronic fatigue syndrome/M.E and fibromyalgia for 20 years, and he is convinced I inherited it from him. I am considering this too as my symptoms also describe CFS. Celiac and CFS seem to have very similar signs. My dad's doctor wanted to test him for celiac disease, but for some reason nothing came of it, and my father never heard anything about it.
I think I've waffled on, so I will list my symptoms, all started at the end of 2011 or the first couple of months of 2012 after my panic attacks.
-Severe acid reflux
-IBS (intolerance to FODMAPS and certain fruits, vegetables; constipation; sometimes loose stools; occasionally stools are a pale, light colour; a lot of gas, popping, bubbling; cramping and pains)
-Head feels funny, light, fuzzy. I have not been able to twirl in a circle in years, and my head feels very strange and uncomfortable in elevators. It feels worse when it's sunny out. Also get headaches
-Muscle pains, some joint pain, severe muscle weakness
- Sensitivity to heat, noise, and light. My cinema choices have been limited since 2012 as the booms and crashes make me very light headed
-Allergies. Before 2012, I had summer hayfever in reaction to grass pollen. Since all these symptoms came on, I've also been allergic to tree and weed pollen, maybe more. I always have congestion and a runny nose
-Acne and severely dry skin. I've always had a problem with acne since I was 12, however, it gave me a nice break until 2012 when I suddenly developed severe infected acne. My skin also suddenly became very flaky
-Mouth ulcers and gum problems. These started in 2015, and I had at least 3 mouth ulcers last year
-Low on iron, vitamin D, and now B12. I have to get B12 shots every 3 months
-Fatigue. I can't believe I forgot to mention it! I get dog tired doing absolutely nothing. Sleep is unrefreshing
I recently had a strange reaction to Greek yogurt, which I never usually eat. I got diareahh and was sweating all over, and was readying myself to pass out. I eat regular dairy fine, so I don't understand what happened with the Greek yogurt.
Thank you for reading. The IBS and fatigue seemed to get worse after adding some lunch into my diet, and biscuits. I have bread rolls or pancakes for lunch, and noticed I was going more often after I added rolls to my daily diet, but that might just be the fibre. I just really want to get to the bottom of all this now. I feel awful.
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