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Tietze's specialist

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1964diana
1964diana

My 18 year old daughter has had severe Tietze's syndrome for 4 years.  She has recently seen the pain specialist at our local hospital who has suggested changing her medication.  Previously she was taking 7 different medications a day.  Her new GP has said that if she can find a Specialist or anyone doing research he will refer her.  We cannot find anyone.  Does anyone know of anyone?

0 likes, 5 replies

5 Replies

  • QueenMo
    QueenMo 1964diana

    Posted

    Where do you live? I've heard of a study being done in Florida ...

  • Auntyanne
    Auntyanne 1964diana

    Posted

    I not know of research in UK. I have tietze syndrome mine is manageable at moment only two flare ups in four years. Previously the pain unbearable most days. I only take tablets when it hurts alot, must remember it hurts when breathing so it niggle most of the time. I do find yoga helps a lot. I have had this along time, it took 12 years to find the problem area and that was full body scan (catscan). I really do not take tablets everyday I found it masked the real pain when a flare up happened. We are all different. Just slow walking and building up from there can improve how you feel enormously.

    • Auntyanne
      Auntyanne

      Posted

      Rheumatologist I see in Bridgend Jenkins her name very through. She who diagnosed me with Tietze Syndrome.
  • 22loulou22
    22loulou22 1964diana

    Posted

    I see a chiroprator and she has massively improved my Tietze symptoms, would highly recommend.
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