tietzes syndrome

I have had tieztes syndrome diagnosed since last summer by a professor after spending 7 weeks in and out of hospital with the same symptoms as everyone else seems to have on here. at the time as i had just flown as well and my bloods (tested for blood clots) came back high i was treated as if i had a blood clot. since having it ive noticed it comes and goes in intensity sometimes just struggling to get a full breathe then getting the pains in different areas in my chest and also up near my collar bone dizzyness, heart beats irregular, pins and needles in my face. not one doctor in my hospital knew or had even heard of the syndrome before which is very frustrating. my problem is i have also had quite a bad past so people try to pass it off as part of my ptsd even the professor said my tietze syndrome is very much there but it was psychologically caused (brought on by stress) all my scans come back normal etc apart from my bloods. which ive recently learnt tietzes shows a high blood count on tests. recently i have been collapsing and been taken into hospital and then being treated for clots again! doctors can be very unsympathetic and tend to think im lying which is upsetting i was left to walk home (20 min walk) after an appointment which made my chest worse and given a doctors note just saying chest pain even though i have been diagnosed. carrying and pulling or reaching for things also makes it worse. i am struggling through my 2nd year of uni with extensions and losing money from my job because i cant go in from the temporary paralysis. i feel really alone with this situation because its not even classed as a disability so i cant get any help to and from anywhere, does anyone else have the same problem or feel the same, it feels like your just left to deal with it. Hayley

2 likes, 3 replies