Time between exacerbations.
Posted , 6 users are following.
I would like to gather some idea of the frequency of exacerbations of bronchiectasis (GP/hospital referrals, treatment) experienced during one year, in order to get some idea of the status of my condition of non-CF bronchiectasis. My last stay in hospital (five days) was early 2013, so I guess that this is a mild history compared to some of you reading this thread? Or is that the norm? I know that there is a severity index and wonder if this is common knowledge.
2 likes, 11 replies
mo_69 terry03242
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ruthie2673 terry03242
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Since being on azithromycin I have had one exacerbation recently which responded quickly to the right antibiotic, but i was left with tight breathing and ended up having to see an emergency doctor and have a short course of oral steroids,(I have mild asthma too). i still have more shortness of breath than my usual and am taking greater doses of my inhalers than normal, and still taking azithromycin. Not sure if this is a post-infective thing, general levels of air pollution and spring pollen....who knows.
Most of the time I feel well, and have a lot of energy for my age.
I was told i had a mild case of bronchiectasis. I still find it very frustrating when these infections seem to come out of nowhere.
lesley05714 terry03242
Posted
I have never had to stay in hospital, although I was offered a stay after a lung bleed but as we only live a few minutes away from the hospital, I just took the antibiotics and then followed up with a CT scan which diagnosed bronchiectasis.
Going off my own experience, if you feel off colour at all and your situation changes, a sputum test is the first place to go.
I had to change my doctor to get one, the old doctor wouldn't take me seriously and and said sputum tests were a waste of time!! What planet do these people live on.
Now I have Staphylococcus Aurelis in my lungs and a course of Tetracycline 250mg four times a day for 7 days. Treatment is all thanks to my new...very efficient...doctor. I am off to the specialist at the hospital next week.
Do hope this helps. I also have had Azythromycin three times a week, but stopped them as someone on the forum said to stop them before a sputum test.
Blessings,
Lesley
mo_69 lesley05714
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lesley05714 mo_69
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mo_69 lesley05714
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lesley05714 mo_69
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These Tetracycline tablets are playing havoc with my system! I can't stray far from the bathroom. I've also found that I need a very light diet and just have a salad for a 6pm meal, keeping fish for lunch and tofu or quinoa for the evening. I will be so pleased when they have finished, 6 more tablets to go...if I last that long...
mo_69 lesley05714
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lesley05714 mo_69
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terry03242
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thorax.bmj.com/content/68/Suppl_3/A64.2
I agree with you about the information value of this forum and am finding it very helpful.
Emis Moderator comment: I don't know if it will be useful or not but there is a tool linked below for this.
http://www.bronchiectasisseverity.com/
BookNut terry03242
Posted