Time line.

Posted , 6 users are following.

hey there.

recently had my first flare up. how long does it run its course if I play my cards right?

Coatesy

0 likes, 10 replies

10 Replies

  • Posted

    Did the doctor tell u why you have Chronic pancreaitis . what caused it

    • Posted

      Steven_86 he said alcohol but never did an actual diagnosis. but it very well may be

    • Posted

      told mine was alcohol although I haven't touched it in 15 yr , I'm p****d off as i feel ive been left to fend for my self,

      a blockage in digestive duck caused by gallstone ? still not told me how why and if anything what they will do

      whilst doing CT scan found a nodule on my left lung 🤔 to review n x-ray in 3 month it is 3 month NO app ! also reg checks for pancreatic cancer ... you guessed Nothing !!!

  • Posted

    Hi Coatsey, not sure what cards you plan to play so will cover the basics. No alcohol,

    don't smoke (pancreas really hates it), low fat diet (essential), drink water, take digestive enzymes, perhaps take a PPI and manage pain. If you follow those rules the pain may

    subside or go away altogether depending on your particular associated issues. Managing

    the pain by following the rules is far preferable to relying on pain drugs as they become less

    effective after awhile.

    During a flare up it helps to give your pancreas a rest by eliminating solid food altogether

    for 2-3 days, it can help with the pain. You must however ensure you take nourishing

    fluids and water. Ensure and electrolyte drinks are helpful. The Ensure might assist with weight too.

    A flare occurs when your pancreas becomes inflamed so it's common sense to give it a rest. A gradual return to low fat solids can then be tried. Manage your portions too, don't eat too much at once, better to have 5 or 6 small meals a day to keep pancreas inflammation in check.

    How long a flare lasts is pretty much an individual thing and depends on what other associated

    issues you may have.

    Re the constipation be aware that taking digestive enzymes like Creon can cause constipation.

    I was told to take a product called Movicol which replicates a normal cycle, no pain or running to the loo, it's just like normal. When required I take 3 or 4 satchels a day for a week then take a break for 2 or 3 weeks until my body tells me I need it again. Again one needs to drink water.

    I think you need to be referred to a gastroenterolgist who specialises in the pancreas. They

    really do know much more than regular gastro's. Good luck.

    • Posted

      Reefsider,

      thank you very much for this info. everyone has been a great help so far. good for moral to know I'm not alone in our little journey. I am Canadian so I'm not sure if Movicol is available but I'll see as I have a doc appt today. another thing is my job. we are all different but do you become well enough to work again if you play your cards right so to speak? my occupation is not labor intensive but does involve plenty walking.... also any website you can recommend regarding a good lowfat diet? I am aware of the basics but I also enjoy the taste of food like most ppl. thanks again

      Coatesy

      p.s. I am super new so I have no idea what "cards to play".

    • Posted

      Theres a site you should go on its called acute and chronic pancreaitis support . its a brillant site and can help you with anything you want to know about this illness

    • Posted

      what is the actual website called?

    • Posted

      Coatesy I just noticed my response to you about recipes was deleted by the moderators for some reason, I included the email address so figure one mustn't be allowed to do that. Hopefully you'll follow this clue. The cookbook is on the pancreas foundation website. It's those two words followed by dot org. There's a whole cookbook which I find handy if only for ideas.

  • Posted

    its a wild guess, a wild ride sometimes. some folks have regular flare ups, sometimes its very rarely chronic, no way to know.

    there's a lot they don't know about pancreatitis, chronic or otherwise. there's even a lot of argument among professionals - even alcoholic pancreatitis has got detractors - there's a lot more alcoholics that DON'T have pancreatitis than do. why doesn't everyone that drinks to excess get pancreatitis? if alcohol causes it, MANY more people would have pancreatitis. some researchers believe alcohol is almost never the cause, only a complication same as fatty food, it just makes it worse. there's many other causes, some are completly idiopathic or unknown. Rmoval of the pancreas is not neccessrily curative either, be very cautious of the surgeon. it made my pain worse, not better.

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