Posted , 15 users are following.
Hi All,
I am interested to know what times people are taking Pred when splitting the dose. Also have you noticed any changes in sleeping patterns. My sleeping pattern is awful not going to sleep till 3 or 4am waking at 6.30. I take Pred at 1am as I seem to tolerate it better. Not sure what will happen with side effects if I split the dose.
Welcome your suggestions.
Cheers
Kath
1 like, 35 replies
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Poupe Kassiebeetle
Posted
I have noticed disturbance in sleeping. Usually will go a couple of nights waking up about 2:00 am and not able to fall back to sleep. Thus will end up taking Melitonin the next night to get a full nights rest.
Kassiebeetle Poupe
Posted
Thanks for that. I have heard of melatonin. Will do some research.
Waking up at 2am. What do you to keep yourself amused in the middle of the night?
Poupe Kassiebeetle
Posted
TheRaven Kassiebeetle
Posted
I take my morning dose in the 6-7am range and evenings around 7:30-8:30pm.
I originally took one dose in the morning but after 2 months and a flareup, Just taking it all in the morning was never lasting until the next morning. I'd wake up hurting until the morning dose kicked in. I'm doing a very slow reduction and currently take 10 mg in the morning and 3 mg evening. Since splitting the dose I've had much better luck sleeping. I'm not sure if that's because I take the majority of it in the morning or not. Just glad I don't wander all night like I used to.
My sleep schedule still isn't normal but it's certainly much better than it was, which was very similar to yours. It seems like my sleep times change every 2-3 weeks but think that's more likely because of things I do that unintentionally push my sleeping hours earlier or later. Currently I usually fall asleep about 10:30pm, wake up about 2am for an hour and then am able to go back to sleep until the alarm wakes me in the 6:30 - 7:00am range for work.
A month or 2 ago I was extremely busy and somehow forgot to take my morning pills PLUS missed the evening dose as well. I went to bed and never thought of it until about 3:00-4:00am when my body reminded me what PMR originally felt like before taking Prednisone!
Kassiebeetle TheRaven
Posted
Cheers
Kath
Michdonn Kassiebeetle
Posted
Kassiebeetle, I take first dose after my morning shake and 2nd dose at bedtime. Second dose is 15-20% of morning dose. Currently on 11 mg tapering to 12 mg. Good luck on your journey. Thinking positive and smiling. 🙂
nick67069 Kassiebeetle
Posted
I used to take 1/2 very late ( 1-1:30AM) just before going to sleep and second dose after getting up 8-9AM.
Now that I am down to 4mg, I take only one dose late at night.
Experiment with time, what worked for me, doesn't have to be the best solution for you. It depends on your schedule, how long does pred stay in your body, etc...
Kassiebeetle nick67069
Posted
I probably get about 20 hours relief. I have just come back from talking to Pharmacist. I explained to her about side effects and why I take Pred at 1-2 am and I was thinking of splitting the dose, BUT as per usual professionals have very tunnel vision and she advised me to take the whole dose at 8am. Oh Lordy.
EileenH Kassiebeetle
Posted
There is a post put up today from Twopies whose doctor had been at a rheumy conference where they were told that it was now good to say twice daily as they had found it worked better!!!!!
https://patient.info/forums/discuss/pmr-prednisone-and-split-dose-624053?utm_source=forum&utm_campaign=discussion-notification&utm_medium=email
The all in one at 8am is for patients on short-term courses of pred - and it probbaly makes their stopping it after up to 6 weeks easier. We are going have adrenal suppression anyway - when and how you take your pred isn't going to make any difference until possibly below about 7mg. Even then, not necessarily.
Kassiebeetle EileenH
Posted
How was the holiday in Malta?
EileenH Kassiebeetle
Posted
Very nice - the resort was in a slightly scruffy area a short walk from a rather more main tourist area. Where we were was quiet, 100 yds from the sea where there were a few good restaurants with another excellent one in the other direction. You could walk by the sea all the way round the point almost on the flat for about 3 miles - perfect. The weather was about 19-20C and sunny almost the whole time, couple of wet days. When Malta does a thunderstorm it really does it! But we got home on Tuesday afternoon - and woke to the first snow of the winter down here in the valley on Wednesday. And this morning it was -13C early doors! Brrrr!
Last year on Dec 1st we put the lights on the balcony and then I sat down for a cup of tea out there. Don't somehow think I shall be doing that this year...
Kassiebeetle EileenH
Posted
Must tell you a funny story about friends of mine who went to Malta a couple of months ago. John is a Vietnam Vet who stepped on a mine and lost his leg and arm and part of his other hand. He decided that he wanted to buy a new shoe. Went into a shoe shop tried on a shoe and decided to buy it. The funny side of the story is the shop assistant put the shoes in the box and gave it to John who promptly said I don't want both shoes. She said no he had to take it. Meantime her colleagues were having a good old laugh as was John's wife When the penny finally dropped she accepted the shoe back rather sheepishly.
Take Care and thanks for all your great advice. Kath.
Michdonn EileenH
Posted
Please ship me some cold weather, I do not know how warm it was today, probably mid 60s worked outside with just a shirt. Still no snow here, maybe a friend and I might go a bit further north to get a few runs in, in a week or so. Too warm and dry here, still waiting for winter. Thinking positive for snow and smiling.🙂
EileenH Michdonn
Posted
Last December 1st we put the lights up on the balcony and then I sat out there and drank a cup of tea! No lights yet at -5C yesterday afternoon...
EileenH Michdonn
Posted
PS - just watching the men's downhill from Beaver Creek and it looks a bit short of snow! 3330m/11,000ft and +2C/35F isn't promising is it! Might have to go a LONG way north!