Tingling in calves and feet
Posted , 9 users are following.
I've had PMR for several years, and up until the last year was mostly controlled by prednisone down to 5. The rheumy added (one at a time ) 4 different meds to try to help me get off pred. None worked . A year ago I had to increase my pred. And now I'm up to 27 ( down from 30) and not completely symptom free... some mild girdle area, especially hamstring pain. But I've developed a new tingling in my calves and feet. It is worse after playing sports. Anyone else experience this? Idea of the cause? Why suddenly after so many years? It's very tolerable, but concerns me as it is new. Thanks for any thoughts on this development.
0 likes, 12 replies
BioMedGeoff Bethune
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amkoffee Bethune
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Michdonn Bethune
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Hi Bethune, sorry to say it does sound like neuropathy. I am a diabetic and have had neuropathy for years, but the Pred has made it much worse. After my flare I also had to go up to 30 mg, currently tapering to 10. As you decrease the Pred, I think the neuropathy will decrease also. Good luck on your journey. Think positive. 🙂
Bethune Michdonn
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EileenH Bethune
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Is your doctor sure it is PMR? Haven't come across the tingling you mention though - something to ask your doctor I think. It could be neuropathy - but I hope your doctor has been monitoring your blood sugar levels while you have been on pred.
Bethune EileenH
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Eileen, yes we have been monitoring. I am at prediabetic levels. I've altered my diet and am not at all overweight. And very physically active. Might be time to return for a diabetes check with my GP.
Kinda depressing how every treatment for PNR leads to trouble somewhere else. Thanks for your suggestions!
Daisy64 Bethune
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Bethune Daisy64
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Michdonn Bethune
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Last year, the Pred side effects was in my mouth mostly my tongue, very uncomfortable. And when I posted the symptom several other people also had similar side effects. Pred does strange things. Good luck with your journey. Think positive. 🙂
peggy_56092 Bethune
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Bethune peggy_56092
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Peggy, its always a bit comforting a new symptom isn't unheard of and that others have improved.
jan21306 Bethune
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Pred 3 years ago. It varies from day to day. Doctors say it is small fibre neuropathy probably caused by steroids. It does seem to be a bit better since i reduced to 6.5 mg Pred.