Tingling in legs and hands

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Hi I was diagnosed with AS 20 years ago and have had lots of aches pains etc... with it, a few weeks ag a had a virus which triggered pain and stiffness in left side lower back, this eased but progressed to pain down my left leg, now I have tingling in legs and feet, does anyone else experience this? I expect it will eventually burn itself out as has all my other pains over the years.

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  • Posted

    I googled this becuz I have the same thing. It's due to hip replacement surgery and herniated disc. This is other options from Google.Vitamin deficiency, diabetes, and kidney failure are among the medical causes of tingling in the Legs & feet due to nerve damage. Taking certain medications can also cause tingling in the hands and feet. Other potential causes of peripheral neuropathy include autoimmune diseases, toxins, alcoholism, and infections

    there are so many reasons for the tingling you describe. Even neuropathy nerve damage.

    see a doctor it's a symptom that should be evaluated.

    Good Luck 

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    • Posted

      I have googled as well but have come to the conclusion that it is to do with AS, the tingling is more prominent at the moment because of the pain down the back of my leg, I have had tingling to a lesser degree in my legs for years, this could be down to the fact that my back is fused at the bottom and I have neck problems, I have balance problems and a bit of dizziness if I bend my neck back, although I was diagnosed 20 years ago I can work it out that I was suffering from it for many years before that, generally I don’t worry too much about symptoms as painful as they may be and have found that new areas become affected but eventually burn themselves out, I tend to worry about new symptoms until I get used to them. I rarely take medication for it, thank you for replying 😊

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  • Posted

    Hello, sorry you are having this on top of everything else. I too have this in my hands and feet. The specialist says it's a vascular problem...as in veins and circulation. My hands are very red and I have tiny broken veins in the joints of my fingers also hematomas...small but painful.My feet are always painful and some bruising on my toes. Let me know if things improve....hugs..G

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    • Posted

      Hi Gloria, I have pain in my feet and toes, I also get cramp in them, sometimes I get an intense sore burning sensation on the tops of me feet which can be quite painful, it goes after a few minutes. I have had the tingling to a lesser degree for years but have never really taken much notice of it, my legs can become shaken but this is usually when I’m worried or frightened about something. Thank you for your reply 😊

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  • Posted

    I googled this becuz I have the same thing. It's due to hip replacement surgery and herniated disc. This is other options from Google.Vitamin deficiency, diabetes, and kidney failure are among the medical causes of tingling in the Legs & feet due to nerve damage. Taking certain medications can also cause tingling in the hands and feet. Other potential causes of peripheral neuropathy include autoimmune diseases, toxins, alcoholism, and infections

    there are so many reasons for the tingling you describe. Even neuropathy nerve damage.

    see a doctor it's a symptom that should be evaluated.

    Good Luck 

    Report Reply
  • Posted

    Hi Annette,

    Yep.  I'm 53, diagnosed at 32 with symptoms started @7yo.

    Doctors have said tingling, shooting pain and numbness in legs comes from lower back changes. 

    I have also been told the pain and tingling in hands and lower arms I've been experiencing the past 9 months is from nerve damage in my neck.  I disagree.  I also have inflammation in my elbow and hands and the pain is significant. I think that is more like arthro spondylitis, the flip side of AS. 

    I started using Voltaren gel for my feet, hands, etc. It's wonderful. 

    I hope your new symptoms are short lived and without pain. Cheers!

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    • Posted

      Yes CtKathleen you are spot on as my doctor explained spondylitis is the inflammation of the vertebrae This can cause tingling in the limbs. Viltaren gel is helpful , massage also hot tubs. Etanercept has also helped the inflammation bio injections to help stop the damage to the vertebrae from spondylitis. 

       

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    • Posted

      Hi CtKathleen

      Thank you for your reply, it’s always comforting to hear that others have similar symptoms, though I wouldn’t wish them on anyone! I was diagnosed 20 years ago at age 41, after the birth of my 4th and last child, apparently the mechanics of birth was a major trigger and caused a lot of problems at the time ie hips seizing up, iritis and after a short while terrific lower back pain. I was advised to not have any more children, after diagnosis I worked out myself that I had probably had symptoms since my early 20’s. I have found that each new trouble spot does eventually burn itself out over time never to return again. I reckon I have had a slight tingling in my legs for a long time , but I’be just not really bothered about it, so I think like yours it’s to do with my neck and lower back both of which are damaged, I think it’s more noticeable at the moment because of the pain that’s set up down the back of my legs, the tingling is also in my buttocks. I think that over time it will work itself right, the pains down my legs are very very slowly getting better, I keep going for a half hour brisk walk to get it all working, I find that working my aches and pains does help. I tend not to talk about my symptoms to friends and family because I have so many niggles that I’m sure I would come across as an hypochondriac haha, though my husband does know when I’m in pain as much as I try to hide it. Do you find that the dr’s treat you for other things even though you try and tell them that you think it’s your AS playing up, I was treated for acid reflux two years ago, I tool the medication prescribed just to prove to myself that it wasn’t acid, the tablets didn’t do a thing! I eventually decided to let my body sort itself out, I still get chest and middle back pain/burning but it is becoming less, there are so many niggles with As aren’t there, have you found this? 🤔

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    • Posted

      CtKathleen, just to add that I hope your elbow and hands settle down over time, it can be a really painful and debilitating condition when flaring up can’t it 😥

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    • Posted

      Hiya, yes my doctors also say that the tingling in the hands and arms is from my neck where four vertebrae are damaged. I can see that....but what about the feet, could it be from lumbar damage...( three there )...I agree with you that Voltaren cream is great. So are hot packs or hot towels. Lets hope that we can survive all this pain and lead as normal a life as possible with AS....wish you all gentle hugs..G
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  • Posted

    Hi, first I’d like to apologize for how long it’s taken me to reply. I have taken a big hit with digestive problems. I lost 15 lbs in 4 weeks, ER, etc., I’m sure you’re all familiar!  I’m feeling much stronger now and ready to attack life!

    I  want to note that AS can include so much more than joints in the spine. 

    Enthesitus is inflammation where tendons and ligaments attach to the bone.  I’ve had a bunch of this in the past 2-3 years, with almost zero SI irritation. It’s primarily in the tops of my feet now. 

    With feet and hands, I’ve also come across other problems caused by AS:

    Plantar fasciitis (steroid injections knocked it out quickly)

    Dactylitis, aka sausage fingers, swelling of fingers or toes. 

    Many rhuemmies only want to look at HLA-B27 and the SI joint, but there’s so much more. Some of what I’ve read indicates these and many other problems are indicating the the AS in not under control and require more aggressive treatment, like biologics.  

    It is very important to remember that AS can cause permanent damage and please don’t sweep it under the rug. 

    I wish all of you health and joy on your AS journeys!!

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  • Posted

    Hi Annette - I have recently been dx with AS and am unable to walk without boot and crutches. I have painful tingling in my foot and have been prescribed Cosentyx but worried about side effects. Have you ever taken medication for your AS?
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    • Posted

      Hi lee1963

      Sorry for late reply, not been on here for a good while. 

      No I don’t take any medication except the odd Ibuprofen,  in my experience with AS the troublesome area has tended to burn itself out over time, hopefully this will be true in your case.

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