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I've just joined - apologies if thi shas been discussed elsewhere but I hope I can get some information from other sufferers.
I was told I had post viral fatigue in 1997 - in 2004 I was diagosed with Chronic Fatigue Syndrome. I had to give up on my career but made a new one, working part-time hours. I've been lucky enough to scrape by.
ThisJanuary however, I started to get symptos new to me. Walking and veering to the one side, tingling in my hands and feet and numbness too. Also a terrible stiffness that affects my walking and my ability to pick things up. The worst new thing is terrible problems swallowing.
I had to give up work completely - I just couldn't do it and I am back to sleeping 14 hours a day.
My GP sent me to a neurologist. After a 13 week wait in pain and discomfort I finally saw neuro 2 days ago.
Her attitude really pissed off. Chronic Fatigue was talked about the whole time. I couldnt feel pin pricks on my face, feet or hand. I had a positive reaction to the Babinski sign (I know about it as I have a friend who is a GP). She told me, it's not MS, it's CFS.
BUT, I am being sent for an MRI, to see a speech therapist for the swallowing problems, a physiotherapist for the stiff legs, a psychologist for my memory problems and I am being put on pregabalin painkillers. (The NHS is great once you are in the system).
What I would like to ask, after years of CFS, I didn't think numbness and tingling were part of CFS symptoms.
How many of you have these types of symptoms?
Apologies for the long first post!
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