Posted , 11 users are following.
Hi,
I'm new to this and just wondered if tingling around the affected area was a symptom. I have red sores around the anal area and tingling, not all the time. I noticed the tingling several months ago when the LS started but because it wasnt all the time put it out of my mind.
Thanks
1 like, 12 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
julia2017 joanne25205
Posted
yes, tingling and sometimes a sharp pinch are the symptoms I have. And last night for the first time in a year I had itching so bad I had to sit in hot water and then use Clobetisol on all of my nether regions front to back.
joanne25205 julia2017
Posted
Hi Julia,
How long did it take to get your symptoms under control? The pain is agony. I dont know where to put myself. It's really getting me down
julia2017 joanne25205
Posted
joanne25205,
I suffered a LONG time having no idea what was going on. When the paper cuts and itching were clearly spreading from anus, perineum to vagina, & a pinching clitoris pain was getting worse I went in for help. At that appointment realized I had labia fusing and the clitoris pain is called phimosis; the hood fused away from the clitoris not protecting it. I am soon having a procedure to correct that but they want me to use Clobetisol directly on that fusing to see if it will unfuse first. There is a small optimistic un fusing on one side. I was told the procedure will be painful so I have to do this first.
I would say I got the flare ups under control about a month into Clobetisol, Premarin used on labia, clitoral area and just inside vagina, estradiol vaginal tablets 3 days a week, seitz baths and several different experiments of moisturizing with everything the ladies on here were suggesting.
I am 60 and in retrospect I think my symptoms began at 50 with menopause. The damage is done to the architecture but symptoms better.....until last night.
Stress is a trigger and sadly the occasional glass of wine brings out the itching 😦
Su02 julia2017
Posted
Im 54 still having regular periods, so at this point im not being offered any oestrogen creams etc although i may be going that way with the atrophy! My GP has put me on the pop mini pill prostogen only to give me some rest bite as periods heavy, very sore so cant get on top of the LS. Ive most probably like yourself had the signs for a while but its great to see it can be managed it gives me hope
always_somethin joanne25205
Posted
Im not sure, i am also new to this and the only time i had tingling was when i subsequently had a herpes outbreak.
most of the time its just an itch i have to scratch which in turn causes burning.
sarb73328 joanne25205
Posted
My symptoms have always been a tingle or a 'buzz', apart from at the beginning when i had an itch. I can mostly tune it out with the help of Amytriptiline which my GP suggested. I was told it was an indicator of cell activity which I find unnerving as that sounds like a cancer - that is me overthinking though.
Su02 joanne25205
Posted
Im relatively new to diagnosis too! Tingling is a symptom, last few weeks just feel continually sore and burning when i pee i will have to try this baking soda bath! Does it work anybody?
brigitte_27336 joanne25205
Posted
Yes ... tingling is a symptom
karen23320 joanne25205
Posted
when I had tingling it indicated active disease and usually proceeded some atrophy or fusing. A change in diet paired with CLOB has stopped any symptoms, no pain, no itching and no lore tingling- unless I EAT SUGAR.
Su02 karen23320
Posted
just started to cut out gluten, im not a very sugary person anyway so not much to change there. im on my 3rd month of steroid every other day. Although it seemed to be ok first two months. But after getting very sore with a period it wont seem to settle. Can you have too much steroid?
beverly52803 karen23320
Posted
Hi karen, not sure if I missed this thread when it began or because I hadn't experienced the buzzing symptom it didn't mean much to me. My LS was diagnosed in the spring, but I just started experiencing the buzzing/tingling sensation in late fall. My gyn checked and saw no signs of the LS where I had the sensation. Matter of fact she said I was responding very well to the steroid (a milder steroid than clob) and the skin looked good.
Is eliminating sugar the main change you made to your diet? I eat very little of it, mostly just small amounts of dark chocolate. Have you eliminated sugar completely? Do you use honey or drink wine? I've cut way back on wine. I see Julia said wine is a trigger for her.
I called my doc last week to ask how often I can use the steroid and was told as often as I need to. Maybe because it is not as strong as the clob it's safer to use. I had been reluctant to use it very often, but now I feel I have to until the feeling (hopefully) subsides.
How often are you using the steroid?
jennifer89416 Su02
Posted
Hi. Can you share which dietary changes are most beneficial? Is it mostly just supporting immune system? I just got my diagnosis last night, after years of chronic "yeast infections."