Tinnitis
Posted , 8 users are following.
Hi All,
Just wondering if anyone else has a problem with tinnitis - ringing in the ears? Is this anything that could be related to RA, or meds? I'm on 20mg MTX injection weekly. I stopped taking Plaquenil because it did not help me. I've always had some minimal ear issues, but recently I noticed this high pitched sound has gotten worse. Any kind of advice on what to do for this? I already take magnesium, tumeric, folic acid, and the usual vitamins... Just concerned if this could be RA related? Thanks for any advice!
0 likes, 13 replies
frances85589 Justgettinby
Posted
Yes I have it too.It's so annoying.I have few auto immune diseases including RA. Doctors sent me for ear test and said I had high frequency drop. Had MRI which discovered acoustic tumour. Ask gp for advice.I thought mine was just tinnitus
Justgettinby frances85589
Posted
I also have 2 other autoimmune diseases..Seems to be a common theme among all of us here. Sorry yours ended up to be a tumor, I hope your doing ok? I have a hard time telling if this noise cones from just 1 or both ears. I do know my hearing is going bad though and I'm only 51 :-( I plan to ask about it at my rheum visit next week. Thank you for your input.
frances85589 Justgettinby
Posted
I would bypass the rheumy and get your doctor to check.Rheumatologists just say it's part if your condition. They only specialise in what they know really
Justgettinby frances85589
Posted
I have my regular check up with him so I thought I would mention it. I do have a regular dr visit coming up in March too, so if my rheum can't answer it or help, I'll ask her. Thank you.
mary76396 Justgettinby
Posted
Hi, I was diagnosed with Menieres many years ago and tinnitus was part of that diagnosis. As I've got older the Menieres got better but I still had very slight ringing (very high pitched) just recently, and I don't know why, the high pitched ringing has got very bad again in my right ear, although the Menieres has not reappeared. You could be right, I'm on MTX and Cimzia. I was also on Plaquinil but didn't continue use for long as it didn't do anything for me. Let me know if you find anything out. I mentioned it to my Doctor, not my Rheumatologist, but just got a shrug and told nothing would help.
Justgettinby mary76396
Posted
Interesting. . I have my rheum visit next week, so I plan to ask about it then. I feel like I'm always hearing high pitched crickets and it's getting very annoying. My mom has trouble with ringing too, so I don't know, maybe its hereditary? Just another annoying thing to deal with...ugh. Thanks for your input.
mary76396 Justgettinby
Posted
As you say it's very interesting, my Father had the same thing! So maybe it is hereditary. Would appreciate knowing what your Rheumatologist thinks.
lyn1951 Justgettinby
Posted
Husband developed tinnitus after being in hospital for heat failure, given a bunch of heart drugs, and aspirin for bloood thinning. Dr's opinion nothing could be done for tinnitis, incl heart specialists. Started research ourselves, he was a huge coffee drinker, stopped coffee, headaches caused by withdrawl, then noticed tinnitus less. 2 years passed, tinnitus continued but not as bad, then developed more headaches and sinus pain, GP Dr diagnosed reflux, gave him Nexium, three days into taking doseage tinnitus dissappeared. Reported to Dr unexpected side effect, and also the chemist, as on the instructions given with medication nexium can cause tinnitus, chemists wrote up in chain magazine our story. Some months later visited heart specialist our usual 6 monthly appt, and asked if any new medications added to his list of tablets, nexium I said, at that point the specialist said, Oh yes we are experiementing with it in the hospital for heart patients complaining of tinnitus, read about it in a chain chemists newsletter, I kept my mouth shut, but I wonder, still on nexium, 3 years later, is aspirin the culprit, probably, but he must take aspirin. In your case i wonder if you have silent reflux, and it is causing ringing sounds, try eliminating some of your alternative tablets, tumeric could be causing stomach upsets, known for that, be careful with prescription medications, talk to Dr's before changing any of them.
I have run my theory of estachion tube being irritated by stomach acid, swelling, and causing a narrowing of one and the same tube, GP Dr did not laugh, he looked at me and said thats not a bad theory, and is in the realms of possible. I have a very good GP who I can run past the most unlikely ideas, and sometimes he and i have a really good discussions, and or he gets a really good laugh, and shares that laugh with me. GP has given me some of his cardio books to borrow so my understanding of my husbands heart condition is very high. Even had a furious arguement with junior cardio's at hospital when husband collapsed at home nearly a year ago, we ended up being angry with each other, until the consultant overheard, and walked in and said she's right, nodding at me, and called an immedaite meeting in his office with husbands file, wish I had been a fly on that office wall, consultant not one to be messing with or so the nurses told us.
Justgettinby lyn1951
Posted
First let me say my dad has CHF so i can relate to how difficult it can be to care for a loved one who deals with this. Bless you for doing what sounds like a great job caring for him. He is lucky to have you on his side and advocating for him.
As for me, I know aspirin can cause this, but I don't take any. I do have very narrow eustachian tubes and have had ear troubles pretty much my entire life. I'm wondering if maybe I have some kind of damage in there from previous infections and the 2 times my ears blew up after air travel - my tubes do not adjust to pressure due to the tubes. I got worried about the possibility that it's related to my RA after doing some research online. I used to work as a nurse and actually worked in GI for several years, so I'm pretty familiar with Nexium and other PPI meds. I had never heard it could help with this, but hey, you just never know how each person's body will react. As for the tumeric, it doesn't bother my stomach at all, and I have no issues with reflux, nor any symptoms so I hate to add Nexium to my growing med list unless I knew for sure it would help. I know tinnitus can be quite a mystery to explain and figure out a cause for. I guess I'm just hoping it isn't RA related. I do know that it has for sure gotten worse since being on methotrexate, but maybe it's just a coincidence too.. Thank you for your input!
lyn1951 Justgettinby
Posted
When husband first sick, and GP saying nothing wrong with him, heart beat normal, and BP normal, even ECG deemed to be normal by GP.
Two days later collapsed at home, so breathless and dropping in and out of sleep, NO UNCONCIOUS, rang for an ambulance, and told afterwards he was in full on congestive heart failure and lucky I did ring for ambulance, he would not have survived very much longer, amazing that he has never had swollen ankles, usual symptom, and to this day six years on, does not suffer from swollen ankles, even last stay in hospital, nurses checking him every hour for swollen ankles, despite my protests, you are wasting your time, only change is his weight as he retains fluid in belly.
Local hospital discharged him the next day, nurses approached me in the corridor and said get him out of here, and drive him across town to the heart hospital, which I did, difference attitude there, kept him 8 days got him on the right medication, we return to heart hospital anytime there is a problem.
After all this was over talked to sister, a senior nurse in hospital, and said to her ''How did I know', she bluntly told me, your father had heart failure his entire life, you lived it, and he even died of it, before modern medication, she was right, I did know, just didn't realise I knew.
susan_03245 Justgettinby
Posted
frances85589 susan_03245
Posted
christy0 Justgettinby
Posted
Tinnitis is a nerve probem as few experts have stated and I dug deep for my customers and found chelated minerals plus antioxidants and chia seeds daily helped.
Soak your feet in warm water and epsom or hand harvested sea salt daily.