Tinnitus and lightheadedness

Hi Terrie,

So sorry you are suffering with tinnitus too. I too have the symptoms of Eustachian tube dysfunction, fullness in ears, pain and sometimes tickling in ears, dizziness (not vertigo) and of course tinnitus. I've always had sinus problems. How long have you had tinnitus for Terrie, if you don't mind me asking and when you say vertigo, do you mean room spinning? Just wondering whether mine has been going on too long to be that.

It's so debilitating, like you I just want my life back, I haven't driven in ages.

I hope your ENT text show good results for you and hopefully a quick fix.

Thanks for responding to my post. Hearing other people's views is very reassuring particularly when they are going through similar problems.

Best wishes

Jayn, iv had T for..May will be 2 yrs. The dizzy spells are some days debilitating, but other times its like I'm walking sideways and other tkmes, lightheadedness..always seems to be different. The ENG test should show which area for them to look at..it will show if it's inner ear, or caused from eustation tube, or brain disorder. I am so ready to know what is causing this. Does yr head buzz and make lie weird sounds? It has sounded like a door slamming..ent said that's from the etd..such weird symptoms..Room.spins occassionally, not everytime..sometimes worse than other times..I also feel like when I close my eyes at nite, like my eyes do like a REM thing..just unreal all the crazy symptoms..hope you get answers as well..

Hi Terrie,

I get white noise tinnitus. Sometimes it's the feeling you get like being on an aeroplane, the level of noise increases and decreases. It's like a release of pressure in the ear. I don't get room spinning but rather a slight dizziness and muzzy head feeling. I get a tickling sensation in my ears and sometimes earache comes and goes. I sometimes feel off balance but not too badly. I feel every motion when I'm in a car. I sometimes feel the giddiness when I turn over to my right side in bed and my eyes feel a bit weird then. If I stay there for a while it goes. My eyes sometimes feel strained but I had my eyes tested a few months ago and nothing was said other than a new prescription. I can't say my head buzzez, I've had something similar like head zaps but I put that down to anxiety. Like you I've had enough now and need to get to the bottom of it.

Take care

Definitely symptoms of etd..do u do the holding nose and blowing out gently until the ears both pop.? Sometimes left does, sometimes it doesn't..ent said to do tht like 30 a day..and use flonase but if no better he wants ro put a tube in..sorry if repeating myself..yep, I get the zaps too..etd causes all the noise. .anxiety too..Tha testing me as well for nystagmus..sure praying I dnt have that..I just am so confused as to what all to allow them to do..some say tubes didn't help..just dnt know..weeks are so long to wait. Trying not to be an anxious wreck

Hi,

I just held nose and blew and both ears popped. I haven't made a habit of doing that, I'll give it a go though. I think the more we worry the worse symptoms become. I try to keep positive and carry on as normal a life as possible and try to dismiss negative thoughts. I keep telling myself that but I have to push myself really hard. I went out today and felt nervous about going, not knowing how I would feel, if I would be able to cope, I wasn't alone though. When I was out I walked about and went shopping and I felt better because my mind wasn't focussed on my problems. I think anxiety has a big role to play with me for sure. When I start to feel anxious, usually at night, I use my tablet to look up famous people and read all about them. This helps take my mind off things and when I ring mum she likes hearing about all the gossip so that's another distraction.

When you have your next appointment all of your options will be discussed, perhaps medication will be tried first of all. I have read that grommets have a good success rate also but it may not come to that. Stay positive and try not to worry because anxiety can cause giddiness and plenty of other weird symptoms.

Take care,

I ?

Thank you Jayn, you are so right. I will get back to my faith and hope and to know God's got this..Take care

Hi Martin,

I cannot imagine living the next 23 years like this. So sorry it's stuck with you all this time, does it give you any other problems?

Hi Jayn, I know what you mean, when I started with Tinnitus I was 42 I remember it well, probably noise induced, work, night clubs, etc, back then went to GP sent to specialist ear nose throat, he basically said it's Tinnitus and may go but probably won't and there is no cure, when first started it was something like a jet engine, then different noises some like dropping piles of dinner plates, joined a self help group I think that seemed to make it worse, tried noise generating therapy, no good really, I went to see a world expert give a talk on Tinnitus he said lots of things, but basically you do get sort of habituated to it, you have to change your mindset to it, don't hate it except it, which sounds bad but the reality it's unlikely to go, it's not uncommon and famous people suffered with it Beethoven, Vincent Van Gogh, Charles Darwin, etc, so if you have it you are in good company. Oh sorry no other problems with it physically.

Hi, have you checked out Meniere's Disease ?.

Hi Martin,

I don't have vertigo and I don't have hearing loss. My ears are sensitive to noises.

In car at moment.

Thanks

Hi again Martin,

I thought of menieres but I don't have some of the symptoms. Maybe it is, I don't know. I think I could cope with the tinnitus noise, (not if it was like yours though with crashing dinner plates or jet engines), mine is white noise, it's the other symptoms I can't cope with.

I had a nasty bang on the head several years ago and I sometimes wonder if that has something to do with it. Today was a relatively good day, not great but managable. I see ENT in two weeks.

I have a friend who has had tinnitus for years. She gets migraines, light headedness, neuralgia and bad anxiety. She didn't find any benefit from ENT.

Hopefully there will be a cure for T in the not too distant future, wouldn't that be great!

Thanks for taking the time to reply, much appreciated.

Best wishes

J?