Tips for HS sufferers like me

I have stage three HS and have suffered with this for thirty years. I'm allergic to penicillin and have been given Erythromycin hundreds of times for 6 months or more. All these tablets do for me is bring out more of the abcesses. I'm am sick and tired of being cut to peices. I am not over weight and I don't smoke and I'm quite sure it's nothing to do with menstral cycle. I had a full abdominal hysterectomy with everything including my ovaries removed and still have several breakouts at a time. So I'm quiet sure it's not hormonal. My friends husband had stage 2 and died after having one burst inside is rectum he was 35. It's an awful disease to put up with but I have now found a cream that not only gives relief after applying but if you put some on an adhesive dressing and cover the breakout it either bursts or goes away within a day or two. This is the only thing that works for me after having several different antibiotics and creams. I've also tried food elimination. I am allergic to wheat and yeast and have been for many years so I avoid all foods etc with these in. I found that tomatoes and red peppers and all beans were also toxic for me to eat after re introduction to my diet. I soon took them back out after getting several lumps appear after eating them. The cream I use is around 42 pounds on amazon and I'm never without it. This is called Emuaid max strength it all natural products in the cream and works wonders for me. Look in to reading the book with regards to HS written by a sufferer it's called the hidden plague. Also the paleo diet. Best of luck with your HS. Regards Karen.

No potatoes, tomatoes or peppers. (Nightshades)

Consider whether you are dairy or gluten intolerant.

Ensure to rinse skin every time you sweat -

Tea tree, dettol & Epsom salt baths DAILY, make sure you rinse off. Don't apply any sort of creams to problem areas at all -

Instead apply Sudocrem mixed with tea tree oil to affected areas.

If drainage occurs, pull skin taught and try to apply pressure to skin just next to absess in order to drain (with clean hands) & apply the sudocrem & tea tree oil.

This is all information I learned through trial & error, & a good few years of research.

I think HS is the body's response to what we ingest & what we intake, whether it be what we eat, drink, smoke or even breathe in. (Pollution)

So be mindful of these things, & research some detox's & cleanses to naturally rid the body of any heavy metal toxicity..

Happy HS awareness week!

Or use cold things to bring the swelling down, which I don't personally so but some find very helpful.

I've been suffering from HS for years. I just had a cyst the size of

A softball on my bikini line burst and needed medical treatment.

I have not seen a specialist in hs yet because 90% of derms want

To prescribe acne treatment medications which only aggravate the

area, I have it in armpits as well. Worse when period rolls around.

I will say the paleo diet helped but it's a lifestyle change that is

difficult to adapt to. My latest bout involved injectable antibiotics

with a doctor helping draining the cyst. The other thing that has

helped me is salt baths and hot compresses infused with a home

remedy of tea tree oil, olive oil, aloe Vera gel, a zinc tablet and

witch hazel, all diluted in water and microwave for 1:00 or more

depending on the heat you can stand. It worked to bring it to a

Head and burst with 3 days, now after 2 days of antibiotic injections

I am about to start 10 days on augmentin. I was on doxycycline

for a previous battle which helped reduce the size. I am still on a

quest to eliminate the buggers but I have been told it's hereditary

and I do have cousins with the same problem. I wish I could give

you a cure but I cant. It's hormonal and hereditary but I would never

suggest messing with your hormones. I almost wonder though if

getting our hormones tested for irregularities might be an option. I

will do a follow up after 10 days to see how they are doing after

this antibiotic round and I am also wondering about laser hair

removal, any suggestions? This is a sucky thing to endure....

did find that peppers might be a culprit also paprika (unfortunately I

LOVE both) also tomatoes. But they never fully went away, and still

got cysts just not as big. When I did the paleo diet it eliminated

Grains which might be my source because I will say this, that

eliminating grains helped me loose weight and the cysts decreased

way more dramatically and the weight I lost was probably just water

it was about 10 pounds. My issue was pasta.....love it, pasta is

another weakness, and ultimately I failed to stay on the diet because

of my weaknesses. I have been on augmentin for about 3 days and

It's doing a number on my poor intestines, so I started a probbiotic

yesterday to counteract the destruction. So I guess once my

antibiotic stint is over I will go back on an elimination diet. Again

see if grains are my source (it will be difficult) but necessary.

Just so you all know I do not have celiac or chrones, maybe just

A sensitivity.

pasta and nightshades. Grew up on casseroles or all sorts and an

Italian mother. I wonder if maybe my immune system crashed one

day and boom HS happened. Something triggered it....it's bizarre.

I do think nightshades and/or grains are a source but different for

each person. One might tolerate potatoes but not tomatoes, others

it's grains, and maybe some it's all of the above. I agree that it's a

autoimmune disease. But I really do not want to be on meds for the

rest of my life.

my HS was hormonal as it always flared 3 days before my period. I was subseqently dx with PCOS  at 45 and given drugs for this which also prevented further flares. However, I was never convinced with the PCOS dx and it turned out I was insuline resistant instead. High levels of insuline has been found to cause androgen production which has been found to intiate the flares.

http://www.eblue.org/article/S0190-9622(15)01990-8/abstract

I have been working on a low slow carb diet to reduce the insuline and as a conseqence I have been able to come off all drugs for HS with the exception of curcumin which I only take occassionally when I think a flare is occuring.  For those who find the palo diet hard you may get the same benefit by going down the low slow carb route, at the very least it will reduce your likelyhood of getting type two diabeties/ metabloic syndrome. Another study also found a link between vit D and H.S. I have been prescribed a monthly supplement and it may also be of help. 

http://www.ncbi.nlm.nih.gov/pubmed/25512084

Best wishes to everyone out there.